ACT Down Syndrome and Intellectual Disability

ACT Down Syndrome and Intellectual Disability Providing information and support to people with intellectual disability in the ACT Region

ACTDSID Vision and Mission 2020-2025

Vision
ACT Down Syndrome & Intellectual Disability leads the way in building an inclusive community for people with Down syndrome and intellectual disabilities. Mission
ACTDSID works with individuals and families through lifelong engagement to enable them to reach their full potential as active and contributing members of the wider community. ACTDSID collaborates and builds relationships with business, government and community organisations to create better outcomes for all of society.

06/01/2026

The Bureau of Meteorology (BoM) has issued a warning for Severe heatwave conditions across Canberra and forecast Severe to Extreme heatwave will peak later this week.

The Emergency Services Agency (ESA) has issued an Advice level alert to the community with advice on how to stay safe.

It is important for everyone to be aware of and prepared for hot temperatures.

Look after yourself and check in on your friends and family on warm days, especially those who have an increased risk of heat-related illness.

People who are most at risk of heat-related illness are:

• babies and young children

• people over the age of 65

• people who are pregnant or breastfeeding

• people with existing medical conditions

• people with disability

• people on medications which affect the way their bodies respond to hot weather (talk to your GP, pharmacist or other healthcare provider about this)

• people who work outdoors.


Prevention

• Plan your day around the heat - avoid being outdoors during the hottest parts of the day as much as possible. If you need to go outside, seek shade or shelter.

• Be SunSmart - wear light, loose fitting clothing, a hat and sunglasses, use SPF 30 (or higher) sunscreen.

• Keep hydrated by drinking plenty of water. Carry water with you if you are spending time outdoors.

• Stay indoors and use fans or air-conditioners or head to a shopping centre or another cool indoor public place, such as your local library (check opening hours).

• Close curtains and blinds to block out the sun and reduce heat inside your home.

• Set your air conditioner to 23 degrees or higher to maximise energy efficiency and comfort. At extremely high temperatures (around 39 degrees and above), fans can be less effective at keeping someone cool and may worsen heat stress.

• Limit physical activity (e.g. household chores or exercise) to early in the morning when it is coolest.



Talk to your GP

• Check how your medical condition/s or medication might affect your health in the heat.

• Ask about how much water you should drink in hot weather, especially if you normally limit your fluids.



If you become unwell

• Take actions to cool down and hydrate if you notice any symptoms of heat-related illness, such as:

o headaches

o dizziness

o fainting

o nausea and vomiting.



Get help

• Seek help if you are concerned. If you or someone in your care becomes very unwell from heat-related illness: o call Health direct on 1800 022 222 for health advice

o contact your GP

o visit a Walk-in Centre for non-life-threatening injuries and illnesses.

• In an emergency call triple zero (000) or go to the nearest hospital emergency department.

For further health advice visit the ACT Government website (www.act.gov.au/health) and search ‘summer safety’.

Community Information

• For life-threatening emergencies, dial triple zero (000)

• For heatwave updates, visit (https://www.esa.act.gov.au)

• For health related information visit (https://www.health.act.gov.au)

• For power outage information visit (https://www.evoenergy.com.au)

🎉 Hello 2026! 🎉Happy New Year from all of us at ACT Down Syndrome & Intellectual Disability 💙As we step into a new year,...
31/12/2025

🎉 Hello 2026! 🎉

Happy New Year from all of us at ACT Down Syndrome & Intellectual Disability 💙

As we step into a new year, we’re excited to keep advocating, supporting, and celebrating our amazing community - and continuing the work toward true inclusion for people with intellectual disability in all aspects of community.

Thank you for being part of our journey. Here’s to another year of connection, impact, and big wins (and plenty of smiles) ahead ✨

Let’s make 2026 a great one - together!

Merry Christmas from all of us at ACT Down Syndrome & Intellectual Disability!Wishing our wonderful community a joyful, ...
24/12/2025

Merry Christmas from all of us at ACT Down Syndrome & Intellectual Disability!

Wishing our wonderful community a joyful, safe, and relaxing Christmas Day. We hope it’s filled with love, laughter, and special moments with family and friends

Thank you for your ongoing support throughout the year.

Stay safe, take care, and enjoy the celebrations.

17/12/2025

The Disability Support Pension (DSP) needs to work for workers! People with disability need to be able earn a liveable wage and not run the risk of losing their DSP as a safety net!

🎄 Office Christmas Shutdown 🎄That’s a wrap for 2025! Our office is officially signing off, swapping emails for festive t...
15/12/2025

🎄 Office Christmas Shutdown 🎄

That’s a wrap for 2025! Our office is officially signing off, swapping emails for festive treats, and recharging for the new year.

We’ll be closed from 4.00pm 19th December 2025, and will be back in the office refreshed, re-energised, and ready to go on 5th January 2026.

Thank you for an amazing year - we wish everyone a safe, happy, and joyful holiday season. See you in the new year! 🎅✨

On Friday 12 December, Charlotte attended the Australian Human Rights Commission’s Morning Tea and Awards Ceremony in Sy...
15/12/2025

On Friday 12 December, Charlotte attended the Australian Human Rights Commission’s Morning Tea and Awards Ceremony in Sydney ✨

She was named one of four finalists in the Young People's category, and while she didn’t take home the award, we couldn’t be prouder of her incredible efforts. Charlotte continues to champion meaningful employment and fair wages for people with intellectual disability, and her impact is truly inspiring.

Congratulations to all the finalists and winners of the 2025 Human Rights Awards 👏 Every finalist was so deserving - we’re sure the judges had very tough decision's to make!

Down Syndrome Australia Inclusion Australia

We are off to Sydney on Friday night for the AAustralian Human Rights CommissionAwards. We want to wish Charlotte (ACT S...
10/12/2025

We are off to Sydney on Friday night for the AAustralian Human Rights CommissionAwards. We want to wish Charlotte (ACT Self Advocate and Down Syndrome Australia Employment Ambassador) the best of luck! Check out the video below to hear Charlotte's message about Human Rights!

To mark Human Rights Days we asked some of our 2025 Australian Human Rights Awards finalists to tell us what human rights mean to them.

Are you looking for a suitable venue for your 2026 meetings, workshops or group activities?ACT Down Syndrome & Intellect...
04/12/2025

Are you looking for a suitable venue for your 2026 meetings, workshops or group activities?

ACT Down Syndrome & Intellectual Disability (ACTDSID) have a Hall and Meeting Room available for hire in PEARCE at the Pearce Community Centre.

Hall:
📍Located in Building 2, Level 1
📍Capacity and seating for up to 25 people
📍Suitable for meetings, workshops, dance classes & other recreational activities
📍Smart TV & whiteboards
📍Fully equipped kitchenette

Jamie's Place - Meeting Room:
📍Located in Building 1, Ground floor
📍Capacity and seating for up to 12 people
📍Suitable for meetings and workshops
📍Smart TV & whiteboards
📍Fully equipped kitchenette

For more information and to find out about availability please contact ACTDSID on (02) 6290 0656 or email admin@actdsid.org.au.

🌟 Happy International Day of People with Disability 2025! 🌟Today we join communities across Australia and around the wor...
03/12/2025

🌟 Happy International Day of People with Disability 2025! 🌟

Today we join communities across Australia and around the world in celebrating International Day of People with Disability (IDPwD) - a day dedicated to recognising the achievements, contributions, and rights of people with disability, and to promoting a more inclusive society for all.

We kicked off the day bright and early at EY Canberra, where Charlotte and Shannon had the pleasure of presenting and sharing insights about inclusion, accessibility, and the importance of meaningful opportunities for people with intellectual disability. It was wonderful to present alongside Carers ACT and to hear more about the wonderful programs that they running to support carers in Canberra. We’re grateful for EY’s warm welcome and their commitment to fostering inclusive workplaces and communities.

IDPwD is an important reminder that inclusion isn’t a one day event, it’s an ongoing responsibility and a collective effort. Let’s continue to champion accessibility, celebrate diverse voices, and work together towards a more inclusive Australia.

Good Things Foundation Australia and Down Syndrome Australia are looking for new Digital Champions!Digital Champions are...
27/11/2025

Good Things Foundation Australia and Down Syndrome Australia are looking for new Digital Champions!

Digital Champions are paid for their work and are located all across Australia, this means you can work from anywhere!

For more information about what the job is and how you can apply please check out the post below!

With Down Syndrome Australia, we are looking for our next Digital Champions who will help us close the digital divide.

The Champions will learn and be trained to present and support community groups on how to be safer and more confident online.

The group’s work involves:
-Having a say on the work of the Program
-Supporting people with intellectual disability involved in the Digital Champion Program
-Support other people with intellectual disability
-Help peers and community groups to understand digital safety.

Learn more about this opportunity and apply now 👉 https://www.downsyndrome.org.au/national/about-us/our-work/digital-champions/

Have you had a pathology test in the past 12 months?The Australian Commission on Safety and Quality in Health Care and H...
26/11/2025

Have you had a pathology test in the past 12 months?

The Australian Commission on Safety and Quality in Health Care and Health Care Consumers' Association Inc want to hear about your experience.

Join an online focus group to share your thoughts and help shape new National Pathology Standards that aim to improve the safety and quality of pathology services. Adults (18+) who've used a pathology service in the last 6-12 months and carers are welcome to join

Date: Monday 1st December 2025
Time: 1:00-2:30pm (online via Teams)
Participants will receive a $100 gift voucher for their time.

Register your interest here: https://members.hcca.org.au/civicrm/mailing/url/?u=2502&qid=34372

Address

Building 2, Pearce Community Centre
Canberra, ACT
2607

Opening Hours

Monday 9am - 4pm
Tuesday 9am - 4pm
Wednesday 9am - 4pm
Thursday 9am - 4pm
Friday 9am - 4pm

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