08/01/2023
Wednesday, what a fabulous day. I’ve been preparing for months (well years) for a day like this. I hiked, well more accurately I wandered up a path to where others likely start their hikes, I bicycled through the bush, albeit on an electric bike. I am finally living that which I’ve watched and envied other people doing — it was beautiful. No, I’m not symptom free. Yet! It’s rare a day without symptoms, although I’m learning not to fear them either. I’ve discovered how to safely increase activity without major relapse. Experiencing symptoms does not always have to indicate a “crash” or relapse.
One thing that remains consistent through this journey with Myalgic Encephalomyelitis / CFS from when I was severely disabled, to moderate, to now, it’s the unpredictability of it. Sometimes regardless of doing all the right things I will experience symptoms.
Thursday after my adventures I was wobbly and dizzy and had a day in my lovely caravan serenaded by the surrounding Aussie wildlife, drinking licorice tea, reading a funny murder mystery my mum lent me and nibbling on the occasional . I felt tempted to panic… did I overdo it? 😬Recovering from illness requires overcoming a whole lot of mental battles along with the physical. Just as suffering chronic illness can impact your mental health— so too a fearful, negative mindset can hold back your physical recovery.
It’s a lot I know. But for those on a similar journey, hold on my loves. Even though maybe today you want to let go, you’re tired of holding on. Please do, because impossible wonderful things do happen. 💜
Thanks to for teaching me all the things!!
Thank you secret Santa aka for my gorgeous active wear that I’m actually being ‘active’ in, rather than lounging! Hip hip hooray 😄
