01/03/2025
TODAY is Rare Disease Day! 💙💚💜
Across the world, our rare disease community is sharing our colors and demanding equity for the 300 million people living with a rare disease.
But what’s the difference between equity and equality?
● Equality means giving everyone the same resources or opportunities.
● Equity recognizes that people have different needs and provides the specific support required to reach fair outcomes.
In healthcare, equity means ensuring that every person—no matter how rare their condition—has a fair and just opportunity to be healthy. That’s why we are committed to breaking down barriers to care, improving research, and advocating for global change.
🌍 Historic Progress for Rare Diseases! 🌍
This month, the rare disease community reached a huge milestone! The World Health Organization’s Executive Board has officially recommended the adoption of the first-ever World Health Assembly (WHA) Resolution on Rare Diseases at the upcoming 78th WHA. This resolution is a critical step toward securing global recognition, action, and healthcare equity for people living with rare diseases.
Let’s keep the momentum going. Together, we dazzle!
📣 Join the conversation! What does health equity mean to you? Drop your thoughts in the comments! ⬇️
