08/05/2025
“Living a meaningful life through engagement in occupations" is the entire foundation of Occupational Therapy as a profession.
More and more I reflect on the way in which, as a therapist, our focus is on the client. But the client functions as a part of a family, and empowering mums (and dads) to find joy and purpose in meaningful occupations enhances their capacity to continue in their role. Their role not only as a mum, but as a carer, a life coordinator, the holder of all information, the one who doesn't sleep and lives with constant stress, verging on burnout in any given moment. And that's for their one child with a disability. Let's not forget jobs, partners, other children, and everything else that comes with a typical adult life.
Interventions which build the child’s skills absolutely have value and purpose. But they do not for one second alleviate the enormous toll that caregivers experience on a relentless constant basis.
The further I travel down my OT path, the more I realise that my passion lies in finding that missing piece within our funding and support systems. The piece that says "I am here as your child's OT, but I want to focus on finding your joy and building your meaningful engagement, to help recharge your batteries so you can continue". Because the reality is, most children with a disability have one parent who holds it all together.
Because this constant stress and exhaustion, it doesn't change, no matter how much funding is thrown at the child. It's not only the physical toll, which in theory can be alleviated by a few hours away, but the mental toll, which is relentless and 24/7. I walk this path myself as a mum, and the one thing I need, is to feel less alone and have support systems in place that work to address that.
So I'm embarking on a passion project. I have no idea what that may look like yet. But I need your help.. As a mum, a dad, a caregiver, what comes to mind when you consider supports or options that would help you spark joy and find meaningful engagement for yourself in life. If no barriers existed. Nothing is too big or small. Throw it all at me in the comments below.