Chronic Illness Lessons Learned

Chronic Illness Lessons Learned This is a not for profit resource page for those with chronic illness syndromes in Australia.

Dysregulation. One of the hardest things about all of these types of syndromes is the dysregulation. What do I mean by d...
17/11/2024

Dysregulation.
One of the hardest things about all of these types of syndromes is the dysregulation. What do I mean by dysregulation?
The nervous system and body has natural processes embedded into it to keep us always in balance: to make us tired at night, to give us energy in the day, keep us warm when it's cold and cool when it's hot. In chronic syndrome conditions often these core mechanisms are thrown out of balance.
Living in this kind of situation, day in, day out, can be a path of incredible hardship; especially when the world asks you to put on a either a brave face, a mask, or maybe even denies that your condition exists (due to a lack of "concrete evidence"). So, if you have one of these conditions, I ask you: what increases regulation in your life? It could be anything from gentle excercise to good company, or time with loved ones. One of the greatest things I've found that brings regulation back into my nervous system is sharing openly with other human beings in an atmosphere of being real and honest. That is one of the core roles of the group (in person and online) I've created serves: what the space of this group allows us to do. Please get in contact if you are one of the many chronic syndrome sufferers on the Coffs Coast. Send me a private message or an email @ chronicsyndromesaustralia@gmail.com

Hi all. I'm opening the (very successful) local support group which started a few weeks ago for Chronic Fatigue, Fibromy...
08/11/2024

Hi all. I'm opening the (very successful) local support group which started a few weeks ago for Chronic Fatigue, Fibromyalgia and mystery Illness to more members.

Do you or someone you love suffer with chronic fatigue, fibromyalgia or a debilitating illness which defies diagnosis?
Living with these types of conditions is so challenging and can be deeply isolating, too. I've started a local support group so I can share what I've learned (over my 25 years of living with CFS/FMS) and support others to have a space where we can share openly about our illnesses with people who understand.
But this won't be a place to dwell too much on our negative experience, but rather to find ways to resource each other for strength, growth and opening our perspective to navigate these experiences with self awareness and grace.
This is a fortnightly gathering (Saturdays 2-4 in Coffs Harbour), but attendance will be flexible depending on your energy levels. I am looking for more people. Please register your interest by email at: chronicsyndromesaustralia@gmail.com

Look forward to hearing from you.
CJ

27/10/2024

Hi all. Regarding the chronic fatigue support group: someone with an email beginning with "RCmartin..." I have the wrong email for you.
Email me at chronicsyndromesaustralia@gmail.com if you want to be on the group email list.
Cheers

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