Upright Support

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More info about today’s announcement- stay informed.Thanks to PWdWA
22/04/2026

More info about today’s announcement- stay informed.
Thanks to PWdWA

Much to unpack: PWdWA opposes the Australian Government's decision to take away money from the NDIS National Disability Insurance Scheme and give it to aged care, a decision given a positive spin by NDIS Minister Mark Butler MP at his National Press Club of Australia address today.

objects to this decision. We don't live in a country where we should have to choose between aged care and disability care. We are a wealthy enough country to fund both, we don't have to disadvantage an already disadvantaged group to assist another group. And let's not forget, people with have strong human rights enshrined in the United Nations Convention on the Rights of Persons with Disabilities that the federal government must implement and follow along with our states and territories.

PWdWA opposes the government's decision to walk away from the disability access lists it agreed to with our state governments, after unpacking the NDIS announcement today from NDIS Minister Mark Butler

Talking about the future running of the National Disability Insurance Agency at the press club today, the Deputy Prime Minister rewrote the NDIS's narrative, saying it has always been about functional capacity, not the disability or medical conditions a medical practitioner has diagnosed a person with.

Using PR speak when talking about changes to the NDIS is not on.

There's a lot to unpack from the proposed changes. And the decision to force everyone onto a data-matched online payments system that will presumably force anyone providing services to be registered would fundamentally change the scheme and insert big brother in even more ways for people with disability in this country.

Not every change proposed by the government is positive. And the spin it's doing is immense is immense.

Here are our initial thoughts on the address:

* Minister Butler started with a recognition that the NDIS is a landmark human rights reform, but then why is the bottom-line that costs-containments come ahead of rights?
* PWdWA opposes the federal government's plans to reduce the number of participants in the NDIS scheme by 160,000 people to 600,000 people – especially without good foundational support schemes that are inclusive in practice. Nobody should be worse off, and we are not confident the govt's current plans comply with this principle
* PWdWA does not support a move toward mandatory provider registration that reduces access to supports without proper exemptions, transition pathways and market safeguards.
* Thin markets in Western Australia are not being talked about here or considered, although we appreciate The West Australian highlighting there's a reduction in spending when you take into account real inflation
* PWdWA is concerned about Minister Butler's comments about removing people from the NDIS, and even though we don’t want a diagnosis-based scheme, we have an immense lack of trust for the method of proposed functional capacity assessments – this time around, and last time when we gave so-called independent assessments the boot
* PWdWA opposes the Australian Government's plan to reduce community participation funding by 30% to provide the more basic supports of activities that support daily living and keep growth on the scheme to a below-inflation 2%
* PWdWA believes essential supports must never be interrupted and the proposed "reforms" don't guarantee uninterrupted service provision
* We know disability supports are frequently singled out as unsustainable, but don't understand why inefficiencies in other areas of public spending receive far less scrutiny
* Minister Butler says he wants his spin on the NDIS' original purpose to be honoured but he and the Australian Government are not honouring original principles – namely, nobody being worse off, and respecting and honouring our choice and control – the government is using convenient lines when it suits it
* Minister Butler said "Where there's very little oversight or line of sight about the quality and the qualifications of providers of essentially taxpayer funded services." But this screams of a new dependency model for us, which the NDIS was designed to move us away from. It's very hard for choice and control to exist if it's taken away
* Minister Butler said nothing about things like abuse towards people with disability, people's exclusion from education, and unemployment
* It's not clear what Minister Butler meant about reviews (and Administrative Review cases) and he did not address the danger and death people face when they need quick reviews.

Positive elements that Minister Butler suggested are the federal government's proposed investment in foundational supports, we welcome that strongly but want that to be implemented at pace and before anyone loses access to scheme. Also welcome the supportive lines around disability organisations and building back up orgs like PWdWA – if that's what he meant.

To unpack the speech yourself, check out the link below.

What are your thoughts?

Nothing About Us Without Us

—People with Disabilities WA
#

A great roundup of how families can interpret and stay informed about the announcement today.Thanks to Kids First Childr...
22/04/2026

A great roundup of how families can interpret and stay informed about the announcement today.
Thanks to Kids First Children’s Services ❤️

𝗪𝗵𝗮𝘁 𝘁𝗼𝗱𝗮𝘆’𝘀 𝗡𝗗𝗜𝗦 𝘀𝗽𝗲𝗲𝗰𝗵 𝗺𝗲𝗮𝗻𝘀 𝗳𝗼𝗿 𝗳𝗮𝗺𝗶𝗹𝗶𝗲𝘀

If you are a parent of a child with additional needs, today’s NDIS announcement may have landed with a thud.

Many families are already carrying a lot. Therapy. School. Reports. Finances. Big feelings. Uncertainty. The everyday work of raising a child who needs more support than most.

So, when a minister stands up and talks about tightening the NDIS, reducing growth and changing access, it is no surprise that parents feel worried.

Kids First founder, Sonja Walker, has heard and read what the Minister said and has created this quick summary for parents and professionals

𝗧𝗵𝗲 𝗹𝗲𝗮𝗱-𝘂𝗽 𝘁𝗼 𝘁𝗼𝗱𝗮𝘆 𝗵𝗮𝘀 𝗯𝗲𝗲𝗻 𝗶𝗻𝘁𝗲𝗿𝗲𝘀𝘁𝗶𝗻𝗴 𝘁𝗼 𝘄𝗮𝘁𝗰𝗵

Over the past few weeks, there has been a steady drip of “insider” stories in the media about what today’s speech might include.

It is hard not to wonder whether some of that was allowed to leak out so the public would be a little less shocked when the full announcement came. Whether that was deliberate or simply the usual Canberra way of doing things, it did seem to soften the ground before today’s speech landed.

Even so, hearing it all brought together in one speech was still confronting for many families.

𝗧𝗵𝗲 𝗺𝗼𝘀𝘁 𝗶𝗺𝗽𝗼𝗿𝘁𝗮𝗻𝘁 𝘁𝗵𝗶𝗻𝗴 𝘁𝗼 𝗸𝗻𝗼𝘄

𝘛𝘰𝘥𝘢𝘺’𝘴 𝘴𝘱𝘦𝘦𝘤𝘩 𝘸𝘪𝘭𝘭 𝘯𝘰𝘵 𝘤𝘩𝘢𝘯𝘨𝘦 𝘺𝘰𝘶𝘳 𝘤𝘩𝘪𝘭𝘥’𝘴 𝘱𝘭𝘢𝘯 𝘰𝘯 𝘵𝘩𝘦 𝘴𝘱𝘰𝘵.

What the Minister announced was a clearer picture of where planned changes appear to be heading.

Some parts of the Government’s plan are likely to move sooner, with legislation expected when Parliament returns for the Budget sittings from 12 May 2026.

At this stage, those earlier changes sound more like a crackdown on fraud, payment systems and areas of spending the Government says are out of control, rather than an immediate overhaul of support for most children already on the NDIS.

The bigger changes to eligibility still seem to be further down the track.

𝗪𝗵𝗮𝘁 𝘁𝗵𝗲 𝗚𝗼𝘃𝗲𝗿𝗻𝗺𝗲𝗻𝘁 𝗶𝘀 𝘁𝗿𝘆𝗶𝗻𝗴 𝘁𝗼 𝗱𝗼

In plain English, the Government is saying that the NDIS will continue and will still grow, but that it has become:

🔹 too expensive
🔹 too vulnerable to fraud
🔹 too broad in who it supports

The Minister’s message was that the Scheme needs to be tightened so it can keep supporting people with permanent and significant disability into the future.

𝗧𝗵𝗲 𝗳𝗼𝘂𝗿 𝗯𝗶𝗴 𝗺𝗲𝘀𝘀𝗮𝗴𝗲𝘀 𝗶𝗻 𝘁𝗵𝗲 𝘀𝗽𝗲𝗲𝗰𝗵

The Government is trying to:

🔹 reduce fraud and poor provider behaviour
🔹 slow down NDIS spending growth
🔹 tighten who can access the scheme
🔹 make providers and intermediaries more accountable

𝗪𝗵𝗮𝘁 𝘀𝗲𝗲𝗺𝘀 𝘁𝗼 𝗯𝗲 𝗺𝗼𝘃𝗶𝗻𝗴 𝘀𝗼𝗼𝗻𝗲𝗿

A few changes appear to be on the nearer horizon.

𝟭. 𝗟𝗲𝗴𝗶𝘀𝗹𝗮𝘁𝗶𝗼𝗻 𝗶𝗻 𝘂𝗽𝗰𝗼𝗺𝗶𝗻𝗴 𝗕𝘂𝗱𝗴𝗲𝘁 𝘀𝗶𝘁𝘁𝗶𝗻𝗴𝘀

The Minister said he intends to introduce legislation in the federal Budget sittings, beginning 12 May 2026.

𝟮. 𝗡𝗲𝘄 𝗙𝗿𝗮𝗺𝗲𝘄𝗼𝗿𝗸 𝗣𝗹𝗮𝗻𝗻𝗶𝗻𝗴 𝗱𝗲𝗹𝗮𝘆𝗲𝗱

The rollout of New Framework Planning (which has been talked about for a while now) has now been pushed back again to 1 April 2027.

𝟯. 𝗦𝗼𝗺𝗲 𝗽𝗿𝗼𝘃𝗶𝗱𝗲𝗿 𝗿𝗲𝗴𝗶𝘀𝘁𝗿𝗮𝘁𝗶𝗼𝗻 𝗰𝗵𝗮𝗻𝗴𝗲𝘀 𝗮𝗹𝗿𝗲𝗮𝗱𝘆 𝗵𝗮𝘃𝗲 𝗮 𝗱𝗮𝘁𝗲

There is an existing reform date already on the public record for mandatory registration from 1 July 2026 for:

🔹 Supported Independent Living providers
🔹 platform providers

𝗪𝗵𝗮𝘁 𝗳𝗮𝗺𝗶𝗹𝗶𝗲𝘀 𝗮𝗿𝗲 𝗺𝗼𝘀𝘁 𝗹𝗶𝗸𝗲𝗹𝘆 𝘁𝗼 𝗳𝗶𝗻𝗱 𝘄𝗼𝗿𝗿𝘆𝗶𝗻𝗴

The parts of the speech likely to trouble families most are these:

🔹 tighter eligibility
🔹 a stronger focus on functional capacity
🔹 less reliance on diagnosis alone
🔹 more scrutiny of plan spending
🔹 cuts to growth in social and community participation funding

In simple terms, the Government is saying that future access should depend more on how significantly a person’s disability affects everyday life.

The Minister also made it clear that spending on social and community participation is going to be wound back, and that this will have a real impact on participant plans.

𝗪𝗵𝗮𝘁 𝗶𝘀 𝘀𝘁𝗶𝗹𝗹 𝗻𝗼𝘁 𝘀𝗲𝘁𝘁𝗹𝗲𝗱

This is the part families need to keep in mind.

The speech gave a clear direction, but not all the practical detail.

Some of the biggest changes still need to be worked through, including:

🔹 the new functional capacity access model
🔹 the fine print of future eligibility rules
🔹 broader provider registration changes for higher-risk supports
🔹 the design of the Inclusive Communities Fund
🔹 changes to plan management and support coordination

So while the tone was very clear, many of the details families need are still not settled.

𝗪𝗵𝗮𝘁 𝗮𝗯𝗼𝘂𝘁 𝗧𝗵𝗿𝗶𝘃𝗶𝗻𝗴 𝗞𝗶𝗱𝘀?

This is still a very important question.

Thriving Kids was not the focus of today’s speech. It was mentioned briefly, but not explained in a practical, detailed way.

And that is why many families are still uneasy.

There is still clearly a long way to go before parents can feel confident about:

🔹 what supports will sit outside the NDIS
🔹 where they will be available
🔹 when they will be available
🔹 how consistent they will be from one state to another

The official position remains that Thriving Kids has been agreed in principle, with staged rollout dates attached, but it is still being worked through with states and territories.

𝗪𝗵𝗮𝘁 𝗳𝗮𝗺𝗶𝗹𝗶𝗲𝘀 𝘀𝗵𝗼𝘂𝗹𝗱 𝗻𝗼𝘁 𝗮𝘀𝘀𝘂𝗺𝗲 𝘁𝗼𝗻𝗶𝗴𝗵𝘁

No one wants families to walk away from today thinking:

🔹 “My child is definitely losing their plan now.”
🔹 “Nothing outside the NDIS will be available.”
🔹 “Diagnosis no longer matters at all.”
🔹 “These changes are all settled and final already.”

That would be going further than the speech was actually saying.

𝗪𝗵𝗮𝘁 𝗳𝗮𝗺𝗶𝗹𝗶𝗲𝘀 𝘀𝗵𝗼𝘂𝗹𝗱 𝘁𝗮𝗸𝗲 𝘀𝗲𝗿𝗶𝗼𝘂𝘀𝗹𝘆

What I'd encourage families to take seriously is the direction in which the NDIS is heading.

The Government is signalling a stronger focus on:

🔹 functional impact, not just diagnosis
🔹 day-to-day disability-related needs
🔹 tighter scrutiny of plans and spending
🔹 clearer evidence about why supports are reasonable and necessary

So, if your child has an upcoming review, reassessment or access request, this is not the time for vague wording or broad statements.

You're likely to need stronger evidence than ever about how your child’s disability affects:

🔹 communication
🔹 learning
🔹 independence
🔹 emotional regulation
🔹 safety
🔹 participation
🔹 everyday family life

𝗔 𝗺𝗲𝘀𝘀𝗮𝗴𝗲 𝗳𝗼𝗿 𝗳𝗮𝗺𝗶𝗹𝗶𝗲𝘀 𝘁𝗼𝗻𝗶𝗴𝗵𝘁 𝗮𝗻𝗱 𝗶𝗻 𝘁𝗵𝗲 𝗱𝗮𝘆𝘀 𝗮𝗵𝗲𝗮𝗱

Please don't panic.

Stay the course.

🩷 Keep loving your child.
🩷 Keep turning up.
🩷 Keep advocating.
🩷 Keep going to therapy.
🩷 Keep going to school meetings.
🩷 Keep asking sensible questions.
🩷 Keep good records.
🩷 Keep making sure your child’s needs are being described clearly and practically.

All of this still matters enormously.

𝗔𝗻𝗱 𝗮 𝘄𝗼𝗿𝗱 𝘁𝗼 𝗰𝗹𝗶𝗻𝗶𝗰𝗶𝗮𝗻𝘀, 𝘁𝗲𝗮𝗰𝗵𝗲𝗿𝘀 𝗮𝗻𝗱 𝗲𝗱𝘂𝗰𝗮𝘁𝗼𝗿𝘀

If you are one of the many professionals carrying families through this uncertain period, please hang in there too.

Keep doing what you are doing.

Children still need:

💚 good teaching
💚 good therapy
💚 calm, caring adults
💚 sensible planning
💚 practical support
💚 people who understand what day-to-day life is really like for them

Their need for 'lighthouses' who keep them safe has not changed.

𝗢𝗻𝗲 𝘁𝗵𝗶𝗻𝗴 𝘄𝗲 𝗸𝗻𝗼𝘄 𝘁𝗼𝗻𝗶𝗴𝗵𝘁

𝘛𝘩𝘦 𝘕𝘋𝘐𝘚 𝘪𝘴 𝘯𝘰𝘵 𝘦𝘯𝘥𝘪𝘯𝘨.

But it is clearly moving into a tighter phase. That likely means:

🔹 harder access for some groups over time
🔹 more emphasis on functional impact
🔹 greater scrutiny of budgets and plan spending
🔹 more pressure on families to provide clear, real-world evidence

For now, the wisest response is not fear.

It is steadiness.

🔹 Stay informed
🔹 Stay connected
🔹 Keep advocating
🔹 Keep supporting your child
🔹 Keep doing the work that matters

𝗔𝗻𝗱 𝗻𝗲𝘃𝗲𝗿 - 𝗘𝗩𝗘𝗥 - 𝗹𝗼𝘀𝗲 𝗵𝗼𝗽𝗲.

Yep ❤️
17/04/2026

Yep ❤️

This World Autism Month, we're asking the world to look a little closer.

Because there are so many me's to every autistic person -- funny, loving, brilliant, insightful, resourceful, quietly extraordinary, list goes on. And we wouldn't advise missing all of that. 💙

Something to remember when people say “Everyone is a little autistic”. Thanks to Autism Champions for sharing ❤️
10/04/2026

Something to remember when people say “Everyone is a little autistic”. Thanks to Autism Champions for sharing ❤️

The phrase everyone is a little autistic is often meant to be inclusive, but it can unintentionally erase the very real, very specific lived experiences of the autistic community. It minimizes the daily sensory battles, the need for direct communication, and the profound difference that true accessibility makes. Imagine a world built with neurodivergent needs at its core—not as an afterthought or an accommodation, but as the standard. That is the world worth fighting for.

Thanks to The Growing Space for great tips on keeping your valuables safe 👍
08/04/2026

Thanks to The Growing Space for great tips on keeping your valuables safe 👍

🛡 Ideas to keep your money and things safe from being stolen
👨 Most support workers do not steal, but sometimes it does happen.

✅ How to Help Stay Safe
🔒 Keep money and valuable things locked away.
💵 Do not keep too much money in your wallet or everyday bank account.
💳 Make sure the credit limit on cards that your worker uses are low.
📄 Check your bank statements with help from someone you trust.
📲 Pay electronically and always keep receipts.
🛒 Always ask workers to give you receipts when they buy things using your money.
🤝 Give valuable things and identity documents to someone you trust to look after.
📸 Take photos of your valuable things as a record.
👀 Choose workers carefully and always check their references.
🏡 Keep your home contents insurance up to date if you can.

🛑 Warning Signs
🚫 The worker will not get or show you their NDIS Worker Clearance Certificate.
💸 Missing money or items from your home.
🧾 The worker does not give receipts when buying things for you.

❗ What to Do if You Think Something Was Stolen
📝 Write down what is missing.
❔ Ask in case there was a mistake.
📞 Tell your service provider or the NDIS Commission on 1800 035 544.
👮 Call the police if needed.
❌ Stop hiring the worker right away.

💻 To learn more about hiring and keeping good workers, you can sign up for Sam’s peer workshop session, which is coming up on Tuesday 14 April as part of our ‘Your Team Your Way’ Resource Kit.

📂 It comes with the slides, the peer session recording, auto transcription and more practical tips and resources you can use.

🔗 For more info and to book, visit our website's Workshops & Kits tab (check our comments at 9am for the link).

Pic desc: A photo of someone using their mobile phone to take a photo of their necklace and ring.

FREE activities on Friday 10 April YAY!!Thanks to CINC for sharing and supporting local events ❤️
08/04/2026

FREE activities on Friday 10 April YAY!!
Thanks to CINC for sharing and supporting local events ❤️

Excited to be supporting this FREE event on Friday!

Come on down to River Park from 11 oc this Friday and join in the fun.

Team CINC xx

Help to get a driving license. Contact details in the flyer below. Thanks to CINC for arranging this program 😊
08/04/2026

Help to get a driving license. Contact details in the flyer below. Thanks to CINC for arranging this program 😊

Be sure to get in quick to get the most of this amazing program. Details in flyer.

World Autism day thoughts …
03/04/2026

World Autism day thoughts …

Autism is a lifelong neurodevelopmental condition. It affects how people experience, interact with, and relate to the world around them. Autism affects people differently – which is why there’s a common saying: “If you’ve met one Autistic person, you’ve met one Autistic person.”

Autistic people have different experiences and need different levels of support.

There are many misunderstandings about autism that can be harmful, and these can make it harder for Autistic people to access the support they need.

Here are some facts about autism that are often misunderstood:
🧠 Most Autistic people want to make friends, though some may find this difficult.
🧠 Autistic people experience the same range of emotions as other people, they may just express them differently.
🧠 Autism is defined by differences in social communication and behaviours, not intelligence. Intellectual disability or high intelligence may co occur with autism.
🧠 There is no cure for autism, but Autistic people can develop skills for life with the right support.

Autistic people have great strengths which should be celebrated. These include:
🧠 Noticing patterns, details, or inconsistencies that others may miss.
🧠 Deep focus and persistence, particularly when working on areas of interest.
🧠 Honesty, integrity, and direct communication, which can support trust and clarity in relationships.

To learn more this World Autism Day, visit www.healthdirect.gov.au/autism

Thanks as always to DSC for great information.  Choking risks - read the article in the link to know your obligations
23/03/2026

Thanks as always to DSC for great information. Choking risks - read the article in the link to know your obligations

The NDIS Commission recently launched a new campaign to ensure all providers are meeting their mealtime management obligations. Paula explores how providers can reduce choking risks for people who have difficulty swallowing.

Here’s a great resource for Auslan 😊
22/03/2026

Here’s a great resource for Auslan 😊

The Signbank Dictionary is a handy tool that helps you build your Auslan vocabulary and skills. 🔎

The dictionary lets you:

👉🏼 search for Auslan signs by keyword

👉🏼 watch videos of people signing

👉🏼 learn the meaning of each sign.

Learn more at 💻 https://ow.ly/ueVc50Ys9F2

If you were a victim of Robodebt please use the link below to get involved in the class action
06/03/2026

If you were a victim of Robodebt please use the link below to get involved in the class action

Robodebt - Class Action Registration Deadline is tomorrow!
Were you a victim of Robodebt?
I was. It was horrible. I didn’t owe anything but they said I did. This is a snip from just one of the letters I got.
I got the money back, but not back then which was when I had needed it and they were taking it out of my carer payment.
There is a new round of payments coming.
Please register at
https://www.robodebtsettlement.com.au/
The registration form is very short.
—Sam
Please share!
Pic desc: A photo of part a letter from Centrelink showing a debt of $17,460.97.

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