
22/11/2024
Hi everyone
Tobias started on the deflazacort a few weeks ago , hes doing ok on it so far with a few little hiccup here and there, he’s still as cheeky as ever though 🙃
As he gets bigger he is complaining of more leg pains and is now walking on top toe all the time , we are still waiting on physio for him And his new bedtime footwear
Deannah and Tatiana did the genetic test for DMD this week , we should get the results in the next 4 weeks ,
I’ll post more updates as we have them
Thankyou so much for all over your support 🥰
Here’s a photo of Tobias with A couple of his sisters