Scleroderma Australia

Scleroderma Australia Australia's national voice for scleroderma. We raise awareness, fund research, and walk alongside the people and families living with this condition.

You are not alone here.

Great to be at the ARA 2026 ASM in Gold Coast. .haneveld
16/05/2026

Great to be at the ARA 2026 ASM in Gold Coast. .haneveld

What actually happens in scleroderma? Scleroderma is more than a skin condition. It involves a combination of an overact...
15/05/2026

What actually happens in scleroderma?

Scleroderma is more than a skin condition. It involves a combination of an overactive immune system, blood vessel damage, and excessive collagen production.

These processes work together, leading to the thickening and hardening of the skin and, in some cases, internal organs.

While the exact cause of scleroderma is still unknown, ongoing research is helping experts better understand how the disease develops and paving the way for more effective treatments and care.

Swipe through to learn more and help raise awareness for this complex condition!

Read our brochure 'Understanding & Managing Scleroderma' to learn more!

14/05/2026

What helps you stay calm during flare-ups? Share your tips below. 🌻👇

13/05/2026

With winter just around the corner and Scleroderma Awareness Month coming up..

Now’s the perfect time to grab your World Scleroderma Day hoodie!

They’re warm, cosy, and help spark important conversations and awareness for scleroderma.

🧥 Snuggle up
📸 Share a pic in your hoodie
🏷️ Tag us to help spread awareness

Every hoodie helps support a great cause and brings our community closer together. Get yours now and snuggle up for something meaningful.

When you’re living with a lung condition, it helps to talk with people who understand. Join Lung Foundation Australia’s ...
12/05/2026

When you’re living with a lung condition, it helps to talk with people who understand.

Join Lung Foundation Australia’s Peer Support community to connect, share lived experience and feel more supported.

Submit an EOI and the team at Lung Foundation Australia will be in touch. Link in comments section.

Happy International Nurses Day! Today, we celebrate all the incredible nurses who care for, support, and advocate for pa...
12/05/2026

Happy International Nurses Day!

Today, we celebrate all the incredible nurses who care for, support, and advocate for patients every single day - especially the dedicated scleroderma nurses making a meaningful difference in the lives of people living with this complex and often misunderstood condition.

Your compassion, expertise, patience, and unwavering commitment bring comfort, guidance, and hope to so many patients and families navigating the challenges of scleroderma.

As part of our Snuggle Up for Scleroderma campaign this June and in the lead-up to World Scleroderma Day on June 29, we’re raising vital funds to help support specialist scleroderma nurses and improve care for those living with scleroderma across Australia. 🌻❄️

To every nurse supporting the scleroderma community - we see you, we appreciate you, and today we celebrate YOU! 💛

Tag a nurse who deserves to be celebrated today and help us thank the incredible people supporting the scleroderma community.

Happy Mother’s Day 💐💛To all the mums, step-mums, bonus mums, mums-to-be, mother figures, grandmothers, single mothers, d...
10/05/2026

Happy Mother’s Day 💐💛

To all the mums, step-mums, bonus mums, mums-to-be, mother figures, grandmothers, single mothers, dads embracing the mothering role - and especially the mums living with scleroderma, and the mums lovingly caring for children living with scleroderma…

Your love creates safety. Your strength inspires hope. Your care leaves a lasting impact in the hearts and lives of those around you.

Today, we celebrate you, honour you, and thank you for everything you do 💛

08/05/2026

Will you Snuggle Up for Scleroderma this June? ❄️

For many people living with scleroderma, winter can be especially challenging, with cold temperatures worsening symptoms and making it harder to stay warm and comfortable.

As we head into the cooler months, now’s the perfect time to start planning your cosy fundraiser - from PJ parties to movie nights and comfy clothes days ☕🧣

We are raising funds for specialist scleroderma nurses who provide much-needed support, care, and guidance to people living with the condition.

Get ready to snuggle up for a meaningful cause 💛 and save the date for World Scleroderma Day on 29 June 🌻

07/05/2026

How do you explain what a “good day” feels like with scleroderma?🌻

Today is World Pulmonary Hypertension Day!Pulmonary Hypertension (PH) is a serious, progressive condition and for many p...
05/05/2026

Today is World Pulmonary Hypertension Day!

Pulmonary Hypertension (PH) is a serious, progressive condition and for many people living with Scleroderma, it’s a very real and often overlooked complication.

PH is known as a “medical zebra” because its symptoms can mimic more common conditions like asthma, anxiety, or fatigue - leading to delays in diagnosis when early detection matters most.

With over 25 million people worldwide living with PH, awareness is critical - especially within the scleroderma community.

👉 If symptoms persist, look deeper
👉 If something feels off, don’t ignore it

Because sometimes… it’s not what you think.
Sometimes, it’s PH.

Let’s raise awareness, support those affected, and advocate for earlier diagnosis.

Address

East Melbourne, VIC

Website

https://feedlink.io/sclerodermaaustralia, https://www.sclerodermaaustralia.com.

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