DATA - Dialysis and Transplant Association of Victoria Inc

04/04/2026

Happy Easter Everyone

11/03/2026

08/03/2026

04/03/2026

8 days. 100 mates. One unforgettable adventure that changes lives. Ready to hit the road?

The 2026 Rally isn’t your average road trip. Over eight extraordinary days, you’ll travel through some of Australia’s most stunning outback and regional landscapes, tackling dirt roads and hidden tracks, exploring towns off the tourist trail, and sharing every moment with an incredible community of rallytives.

What makes the Rally special? The heart behind it. Every kilometre you drive helps fund life-changing support for kids and young people living with kidney disease, giving them access to the programs and experiences they deserve.

Learn more about the 2026 Kidney Kar Rally here: https://fundraise.kidney.org.au/event/kidney-kar-rally-26/home

27/02/2026

February 28 – Rare Disease Day: More than you can imagine! 🌍

Today is Rare Disease Day – the international day for rare diseases, which takes place every year on the last day of February. It stands for more awareness, understanding, and justice for the more than 300 million people worldwide who live with a rare disease.

We often struggle for years with nonspecific symptoms and delayed diagnosis – a familiar problem with Pompe disease as well.

📣 Why is Rare Disease Day so important?

Although each individual rare disease is rare, the totality of all rare diseases affects millions of people worldwide. Many affected individuals experience:

• long journeys to diagnosis

• inadequate treatment options

• insufficient public visibility

• challenges in work, education, and everyday life

Rare Disease Day creates a collective voice to highlight this reality and bring about real change – whether in research, healthcare, or social perception.

Here are some ways to get involved in this years campain:

1. Share a photo: express your support for those living with rare diseases in your community by sharing a photo with painted hands on social media. Use the hashtag and tag .

2. Use crucial rare disease statistics to convey to the media that while each disease may be rare, collectively, they impact a vast number of people.

300 million people worldwide live with a rare disease.

There are over 6000 different rare diseases.

72% of rare diseases are genetic.

70% of these genetic rare diseases begin in childhood.

📌 What can you do?

👉 Share this post to raise awareness 📢

👉 Use the official hashtags:

👉 Tell your story or support people with rare diseases.

Why is this important?

• Because rare means that doctors don't always think of it right away – and you become an expert on your own life.

• Because rare means that every good tip, every recommendation, and every network is worth its weight in gold.

• Because rare means that invisible things can still hurt – and help doesn't have to be “visible” first.

• Because rare means you have to explain a lot – at work, to your family, to your friends.

26/02/2026

Ready for the adventure of a lifetime?

20/02/2026

OFFICIAL DATE ANNOUNCEMENT 🚨

The countdown begins!

The 2027 World Transplant Games will take place from 1–8 August 2027 in Leuven, Belgium 🇧🇪

For eight unforgettable days, transplant recipients, living donors and supporters from across the globe will unite to compete, inspire and celebrate the gift of life through sport.

These Games are more than competition — they are a powerful reminder of resilience, second chances and the strength of our global community.

🗓 Save the dates.
🌍 Start your journey.
💛 Be part of something extraordinary.

For official updates and information:
🌐 www.wtg2027.com

10/02/2026

Dr Dawborn who started DATA in 1972 & started shoestring in December 1972
Passed Away 29 January 2026 aged 92
Funeral will be on Thursday 12th February 2026
You can watch it on
https://www.templetonfamilyfunerals.com.au/dawborn-john/

08/02/2026

Thanks Amanda & Brendan

08/02/2026

BBQ at Holiday House