
17/05/2023
Today is World Neurofibromatosis Awareness Day ๐๐
We need to bring to NF out of the shadows.
Why is this important?
๐ซถ The first signs of NF often appear in childhood, but it is a progressive and lifelong condition. Recognising these early signs can significantly improve health outcomes and enable access to early interventions.
๐ซถ Diagnosis can be difficult due to a lack of knowledge by health professionals and the variability of symptoms.
๐ซถ Isolation, bullying and feelings of exclusion are common due to the visible and invisible signs of NF, as well as physical and social limitations. This can lead to feelings of anxiety and depression.