14/09/2025
What a week! The Compassionate Communities Australia Forum and Dying to Know Dinner with Mama Saba set the scene for community at the heart of conversations and action. As You n' Taboo has rightly stated, many have paved the way, reminding us that our collective work is built on decades of dedication, courage, and care.
A central highlight at for me was the lived experience leadership shared by Jodie Clarkson, who reminded us of the deep equity and communication challenges in healthcare. As she powerfully noted, “Interpreters are a bridge between languages and cultures… everyone has a right to be linguistically present, to fully understand what’s happening to them, to fully express themselves.’’
Jodie’s call powerfully underscored that compassionate care must be grounded in culturally safe language and a steadfast commitment to human rights. As someone receiving palliative care, her courage, storytelling, and wisdom were not only moving, they were a profound privilege to witness.
The gathering also strengthened the case for a public health palliative care approach and Compassionate Communities, where care extends beyond hospitals into networks of families, neighbours, and civic life.
We were invited into the depth of storytelling:
• Professor Brian Dolan reminded us that “care will always be more important than cure… mortality remains at 100%” and reframed hospital time as “days away from home,” urging us to focus on dignity, humanity, and legacy.
• Chris Hall moved us with love stories of grief, showing how families oscillate between knowing and hoping: “Death ends a life, it doesn’t end a relationship”
His words affirmed that grief is not an enemy of care, but its companion.
Through these voices, the gathering affirmed the centrality of storytelling, compassion, and equity in shaping the future of palliative care.
Heartfelt thanks to Dr Joanne Doran for being the glue that brings compassion, humanness, and joy into spaces that are often heavy.
New friends were made and old connections energised. Shout out to the wonderful PCA consumer and carer panel members, with special acknowledgment to PCA fellow carer and consumer panel members Debra Letica and Shannon Calvert, who reminded us of the urgent need for lived experience leadership and co-creation in shaping services and Simon’s skilful hosting. Thank you to PCA for your support and the efforts of all organisers. PCQ the Jacaranda was incredible! Thank you to the compassionate community that supported me in caring for our daughter while being present, the juggle is real.
We are stronger together, and must continue to authentically collaborate, evolving systems and processes so they meet the needs of all, especially those most often pushed to the margins. By grounding care in equity, presence, and humanity, we can ensure that every community is included and supported with compassion.