BendyBodies Physio

06/08/2024

Celebrating 5 years of EDS-ECHO and being a Co-Facilitator of the Australasia MDT program!

23/06/2024

https://www.facebook.com/share/p/XPrgkWmu97HTEfZb/

As the financial year draws to a close please consider making a donation to .

As a very small organisation in our infancy, the support of the heritable connective tissue disorders community means so much.

All donations over $2 are tax deductible. The link to our website, where you can directly make a donation, is in our bio.

11/01/2024

20/10/2023

It's Dysautonomia Awareness Month!!
https://www.ehlers-danlos.com/dysautonomia/

03/07/2023

𝐈𝐧 𝐌𝐞𝐦𝐨𝐫𝐲 𝐨𝐟 𝐋𝐢𝐥𝐲
As many would have seen by now on the news Lily Thai - who had EDS and was a member of our Ehlers-Danlos South Australia Support group passed away last week. Lily used South Australia's voluntary assisted dying laws due to her medical issues revolving around her diagnosis of Autoimmune autonomic ganglionopathy. As we know these two diagnoses of EDS and Dysautonomia are strongly linked. Take care, everyone.
For more info on ESD please refer to: https://www.ehlers-danlos.com/

For mor information on AAG please see: http://www.dysautonomiainternational.org/page.php?ID=124

The Ehlers-Danlos Society is delighted to announce its 2023 Global Learning Conference will be a hybrid event, taking place in Dublin, Ireland from August 2-5, 2023. This event will cover difficult conversations in EDS and HSD.

03/07/2023

The Ehlers-Danlos Society is delighted to announce its 2023 Global Learning Conference will be a hybrid event, taking place in Dublin, Ireland from August 2-5, 2023. This event will cover difficult conversations in EDS and HSD.

24/04/2023

Share......https://www.instagram.com/p/CrSTQkSN-b7/?igshid=YmMyMTA2M2Y=

13/01/2023

Jacqui Main posted images on LinkedIn

08/01/2023

THE EDS ECHO COURSE IS RUNNING AGAIN THIS YEAR IN AUSTRALIA, THIS IS A VIRTUAL PROGRAM FOR HEALTHCARE PROFESSIONALS WORLDWIDE, ACROSS ALL DISCIPLINES WHO WANT TO IMPROVE THEIR ABILITY TO CARE FOR PEOPLE WITH EDS, HSD AND ASSOCIATED SYMPTOMS AND CONDITIONS.

STARTING MAY 2nd 2023for five sessions and continuing in August with the final five sessions.

This year I have the privilege of assisting as the Clinical lead along with Nicole Frost https://www.flexabilityphysio.com.au/
and Jacqui Main https://www.facebook.com/dizzy.heds/

Please invite all of your Specialists, Doctors, OTs, Physios, Speechies, Psychologists, etc and any other Health Professionals as we want to reach as many healthcare professionals as possible with the latest research and best practice so as to better care for all of YOU!
Topics to the covered include:
PART ONE
Session 1: How to Make a Diagnosis
Session 2: Pain Management
Session 3: Fatigue and Activity Management
Session 4: Physical Therapy Management
Session 5: Mental Health and Well-Being
PART TWO
Session 1: Cardiac Dysautonomia: Assessment and Management +/- MCADS
Session 2: Gastrointestinal Dysfunction: Assessment and Management +/- MCADS
Session 3: Pelvic Floor: Assessment and Management
Session 4: Pregnancy and Postpartum Care
Session 5: Understanding and Supporting People with Neuro-divergence
Take care in this heat and looking forward to another year of improving awareness of HSD and EDS.
https://www.ehlers-danlos.com/eds-echo-allied-health.../

If you can't purchase this right now please get in touch with us and a member of the team will be in touch regarding access to the event resources. Contact Us

28/12/2022

https://onlinelibrary.wiley.com/doi/10.1111/ene.15649

Background and purpose Ehlers–Danlos syndromes are hereditary disorders of connective tissue that are characterized by joint hypermobility, skin hyperextensibility and tissue fragility. The most com...