MPS and Related Diseases Society Australia

MPS and Related Diseases Society Australia The MPS Society supports individuals affected with MPS, parents of affected children, other relatives and friends of affected children.

Our Aims Are To:

1 act as a support group for our members through

1. the provision of local family support networks,

The MPS and Related Disorders are;
MPS I: Hurler/Scheie
MPS II: Hunter
MPS III: Sanfilippo
MPS IV: Morquio
MPS VI: Maroteaux-Lamy
MPS VII: Sly
MPS IX
ML I, II, III, IV
Wolman Disease
Fabry Disease
Farber Disease
Fucosidosis
Galatosialidosis I and II
Gaucher
Krabbe Disease
Pompe Disease
Tay Sachs Disease
Sandhoff Disease
a-Mannosidosis I, II
b-Mannosidosis
Metachromatic Leucodystrophy
Batten Disease
Vogt-Spielmeyer Disease
Niemann-Pick Disease Types A, B, C1 and C2
Northern Epilepsy and
Schindler Disease

2. the publication of quarterly newsletters,

3. the holding of biennial National Conferences and

4. by providing relevant information;

2 promote a partnership between families and professionals, both locally and internationally;

3 promote community awareness of MPS and its impact on families and carers.

If anyone is interested in attending please click the link below.
22/09/2024

If anyone is interested in attending please click the link below.

Don’t forget to register for the 2024 Lysosomal Disease Summit!

The 2024 Lysosomal Disease Summit to be held in Melbourne, 18-20 October will be a wonderful opportunity to connect with researchers and clinicians from around our region. The summit covers clinical management, emerging therapies and fundamental research.

View the program and register here: https://lysosomaldiseasesummit.org/agenda/

01/03/2024
17th International Symposium on MPS and Related Diseases German version below // deutsche Version siehe untenDear intere...
01/03/2024

17th International Symposium on MPS and Related Diseases
German version below // deutsche Version siehe unten

Dear interested parties!
Today we would like to share some good news with you!
The MPS Congress 2024 has not only been certified by the Bavarian Medical Association, but also by the European Accreditation Council for Continuing Medical Education (EACCME)!
The Bavarian Medical Association has certified the event with 12 CME points in category B.
And EACCME has even awarded a total of 16.5 CME points!
You can register here if you are not yet registered: https://www.mps2024.com/registration-en
Here you can find the current programme of the event: https://www.mps2024.com/programm-en
We are looking forward to the event with you!

Your MPS organisation team
________________________________________________________________
Liebe Interessentinnen und Interessenten,
heute möchten wir eine frohe Botschaft mit Ihnen teilen!
Der MPS Kongress 2024 ist nicht nur von der Landesärztekammer Bayern, sondern auch von der European Accreditation Council for Continuing Medical Education (EACCME) zertifiziert worden!
Die Landesärztekammer Bayern hat die Veranstaltung mit 12 CME-Punkten in der Kategorie B zertifiziert.
Und von EACCME gibt es sogar insgesamt 16,5 CME-Punkte!
Hier können Sie sich registrieren, falls Sie noch nicht angemeldet sind: https://www.mps2024.com/registration
Hier finden Sie das aktuelle Programm der Veranstaltung: https://www.mps2024.com/programm
Wir freuen uns auf die gemeinsame Veranstaltung!

Ihr MPS Organisations-Team
Contact: info@mps2024.de

MPS Awareness day is May 15th. This year we have a beautiful poem about strength and resilience. We all know we need an ...
10/05/2023

MPS Awareness day is May 15th.
This year we have a beautiful poem about strength and resilience. We all know we need an abundance of these.
“The boy in the blue is just like you,
And every other child and grown up too”.
It has a message of hope and touches on Mental health, disability, acceptance and inclusion. Please take a moment to listen.

The Boy in the Blue is our MPS & Mental Health Awareness campaign, created in honour of our son Ethan, and is aimed at supporting children and young people t...

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Melbourne, VIC
3000

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