Damians journey and fight with MND

Damians journey and fight with MND Damians journey and fight with motor neurone disease

A fantastic meeting with MP David Lee he had agreed to team upWith damian’s journey and fight with MND We sat a discusse...
27/02/2026

A fantastic meeting with MP David Lee he had agreed to team up
With damian’s journey and fight with MND
We sat a discussed what MND paitiants need and is planning on fighting for us in palimant

MP david Lee is definitely a voice for MND

Thank you David Lee we look forward to working with you and your team
David Lee MP




27/02/2026

Thank you MND QLD we are stronger together
And we will fight for MND past present and future

We look forward to working with you and smashing our goals till one day MND is no more 💪🧡💙

Let’s do this together



You are strong you can do this 💪look how far you have come keep fighting and never give up 🧡💙
26/02/2026

You are strong you can do this 💪look how far you have come keep fighting and never give up 🧡💙

26/02/2026

Damian’s journey and fight with MND is feeling pumped
I have just had a 1.5 hour meeting with the CEO of MND QLD

And well she is as excited and we are
MND QLD backs and advocates for all people with MND and there familys they fight endlessly for the care and supports that familys need to help fight this disease

And Now MND QLD is joining forces with
Damian’s journey and fight with MND we have decided to help each other on our common goals

We are teaming up to help fight for what we need for a cure and research after our lenghty meeting we found we are fighting for the same goals

And with our MND army and there knowledge we are gonna be an unstoppable team

I have been asked to join them in the brisbane Parliament House to help fight and support them in april as they continue to help raise much awareness and fight this cruel disease

Together we will make a difference

So join us and let’s fight this

Join us on our journey follow our page
Damians journey and fight with MND

And lets fight this beast together 💪🧡💙

We have MPs and Motor Neurone Disease Association of Queensland in our corner and we are ready to go




This is how you roll to your appointments when u sign up with Collis care disability support services lolDamian’s pretty...
26/02/2026

This is how you roll to your appointments when u sign up with Collis care disability support services lol

Damian’s pretty excited that he’s heading to his medical appointments in style 🤣

Thank you Collis care for joining our team
And helping out with damian’s medical needs
Collis Care


25/02/2026

💙🧡💙🧡💙🧡

I love this 😍 for all who need to hear this today Never give up
25/02/2026

I love this 😍 for all who need to hear this today
Never give up

25/02/2026

So proud of our Ethan he just did his documentary on MND through his eyes and what it’s like to be a child whos life’been touched my MND

Wow he’s well beyond his years
His answers and how he sees life through his eyes
And how he puts things in place to protect hos mental heath is truly inspiring

Such proud parents

🧡💙


24/02/2026

Great news I have another meeting with our MP David Lee to discuss some important things I want to get moving for MND patients this Friday

He asked me for this follow up meeting which just shows how dedicated he is to helping people with MND

We couldn’t get things moving with out u all
Damians journey and fight with MND consists of nearly 13000 people ready to fight for MND

And BOY we are a strong 💪 team when we fight together

Please share this post and let’s see how big we can grow to make things happen

🧡💙💪





24/02/2026

Update on damian

Well we are one week post peg
And we are slowly getting used to our new normal

This happens with MND u get used to something and then something else happens and u find yourself adjusting to another new normal

But he’s going well only asperated once this week which was a little one cause most of his feeds and fluids are going through the peg now

He just eats and drinks purely for taste and enjoyment

He’s been out the front tinkering with his motor bike
Of course a new exhaust had to go on the bike lol

So that’s been keeping him busy

Pain is up and down but now only needing Panadol and nurofen which is great

5 feeds a day at the moment to help him gain some much needed weight

Thank u again for all your support
We truly appreciate u all and love that u all have become like family to us all xo

Chat soon guys

Damian’s friend popped around with a surprise he made for damian check this out How awesome is this thank u Kye u made d...
23/02/2026

Damian’s friend popped around with a surprise he made for damian check this out

How awesome is this thank u Kye u made damian’s day

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Hervey Bay, QLD

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