Damians journey and fight with MND

Damians journey and fight with MND Damians journey and fight with motor neurone disease
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We were asked my Motor Neurone Disease Association of QueenslandTo come down and help and support them with their mornin...
21/04/2026

We were asked my Motor Neurone Disease Association of Queensland

To come down and help and support them with their morning in Parliament day today
But also to go back to the MND QLD headquarters to have a meeting on how Damian’s journey and fight with MND can work together with MND QLD to help provide the best care and support for QLD MND patients and their families and to also meet there amazing and passionate team

As we share the same goals for fighting for a cure and research and support for people currently fighting MND now and in the future after a good solid meeting we have come up with some great ways to come together and concor

As together we feel by joining forces we can make things happen

But while we were there we had the privilege to take a tour and boy did we get to see this amazing team in action

Not only do the provide services to mnd patients but the equipment that they lend out to people is so impressive I’m talking a whole warehouse full

This is just one part of the amazing level of care this organisation offers

Other things is the support emotionally the whole team is trained to help provide you with the up most important services that is needed when suffering this cruel disease

And they do this purely by fundraising

We look forward to working closely with MND QLD
So we to can help provide and support all MND family’s

Together we will be unstoppable 💪

🧡💙





Such an amazing morning at the Parliament House this morning I got the opportunity to talk with the treasurer and shadow...
21/04/2026

Such an amazing morning at the Parliament House this morning
I got the opportunity to talk with the treasurer and shadow health minister about what is needed to help MND patients

And spoke about getting the state government to fund a promising MND trial that we have been working on the scientists and ceo who i finally got to meet today.

Spoke with some amazing and passionate MPs
Kerri-Anne Dooley David Lee MP Margie Nightingale MP that are moving heaven and earth to get funding from state government to provide better care a research for QLD MND patients.
There passion and dedication to MND is inspiring.

We look forward to building a strong relationship
With them to continue pushing for a better future for the people and familys with MND

A big thank you to the Amazing Motor Neurone Disease Association of Queensland for putting on this event

There passion and care they provide for MND queenslanders is truly remarkable

They are the first ones there to jump in and offer the highest level of care to patients and their family’s

We look forward to working with and joining forces with MND QLD

Cause together we will make a difference

🧡💙




20/04/2026

Omg he’s got me on the skydeck again
And this time he’s on it with his wheel chair
He’s not scared of anything
OMG 😳🤣


Omg he’s such a dare devil and I’m a wreck 🤣🤣Skydeck Brisbane
20/04/2026

Omg he’s such a dare devil and I’m a wreck 🤣🤣
Skydeck Brisbane

20/04/2026

Our room at the star Casio Brisbane

Staying at the star tonight and they upgraded us to the riverside view for free how lovely And damian’s rested all day s...
20/04/2026

Staying at the star tonight and they upgraded us to the riverside view for free how lovely
And damian’s rested all day so he’s even been ok enough to manage some pizza
Winning 🏆

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Good luck Jane and Damian down in Brisbane 💙🧡We are all behind you, cheering you on every step of the way.Share your sto...
19/04/2026

Good luck Jane and Damian down in Brisbane 💙🧡

We are all behind you, cheering you on every step of the way.
Share your story, speak your truth, and make some noise so those politicians truly hear you.

We will never stop fighting.
We will never stop pushing.

MND deserves to be seen.
MND deserves awareness.
MND deserves funding.

Keep going you have an army standing with you 💙🧡

Kimmy











19/04/2026

Tomorrow damian and I are off to attend parliament to fight for patients with MND its going to be a big couple of days full of meetings and parliament

But we are taking you all with us
We will stand with MND QLD
In support for wanting more care and research from our government we want money to go to trials so that one day this disease will not be a death sentence

We want to thank you for all your continuous support and together we will make a difference

Over the next few days we please ask that you help us by sharing our posts

So that we can get the message out loud far and wide

We cant wait to share our next few days adventures with you

🧡💙jane and damian




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19/04/2026

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17/04/2026

Good morning beautiful people

It’s damian’s birthday🥳 in a weeks time 🤔what do we get him ?

And NO to another bike 🤣

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16/04/2026

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15/04/2026

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Hervey Bay, QLD

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