05/01/2026
My personal story. I was born with cystic fibrosis, a degenerative lung disease that leaves you with chronic ongoing chest infections, a cough, and a tired body. There is currently no cure.
In 2019 I was on lung transplant list for 8 months, anxiously waiting for a lung match. My lung capacity was 22% and I was dying.
Yet, I was still working in my clinic with clients. Still showing up and putting my business first before my body. I am ok with that decision - it was one of the things that got me out of bed, kept me social, gave me a sense of purpose while waiting in this limbo state.
I recognise now that I felt very unsafe in my body. Holding medical trauma and the possibility of dying without a transplant.
The sense of feeling unsafe, I was chronically holding a brace / protective holding pattern. Tight face and jaw. Clenched and hunched shoulders, back pain, tight pelvic floor. Clenching and bracing from emotional or physical impact that will be coming my way. Very much in survival.
This is just part of my story, the part that offers such a deep sense of empathy and understanding when you tell me your story in the clinic.
The part that understands the will to live but with a failing body.
The part that carries anxiety, anger, depression and grief stored in my body.
