Paralysed with love

Paralysed with love A 20-something year old girl navigating life with chronic illness.

09/04/2026

I’m almost there 😂

09/04/2026

Thank you so much 🥹 best day ever after a rough few weeks ###

05/04/2026

I hope you’re proud of yourself today 💛

31/03/2026

Finally living laughing and loving a bit more 🥰

30/03/2026

Life is tough, but so are we xx

30/03/2026

Live laugh love chronic illness ✌🏻😂

28/03/2026

Live laugh love chronic illness 🤪

25/03/2026

The nurses hear it all 🤭

24/03/2026

It’s a lot of emotions needing a medical device to stay alive. I feel shame that I can’t just make my body work how it should. I feel frustration when my feeding tube ends me up in hospital over and over. I feel exhausted from constant feeding. I feel pain from the feeds and flushes. 😞

But even through all of it I have learnt to love Tubeus Hagrid for giving me more of a life than I could have dreamed of three years ago. I’m grateful every day for what it has given back to me.💛

I’m writing this from hospital after ANOTHER flip into my throat and a looming surgical replacement tomorrow and I can still honestly say I’m grateful for my feeding tube. I’m mad at it right now but I’m still grateful. Two things can be true at once 💛

It’s ok to feel frustration and anger and sadness and every negative emotion in the book. It doesn’t make you a party pooper and it doesn’t mean you aren’t capable of positive emotions too 💛

Life is tough, but so are we xx

22/03/2026

Live laugh love chronic illness 😂

19/03/2026

Live laugh love chronic illness ✌🏻

18/03/2026

I have a gripe.

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Hobart, TAS

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