16/10/2025
Hi HHH Family and Friends
I can’t wait to post about how our kids and clients are progressing, a week of hospitals and I just want to be back there, but alas, we are still here.
So here’s how my little love is progressing:
We are still in QCH. Still in ICU, still on ventilation, and Another day for my little love to recover. He had a bit of yellow secretion on his lungs overnight requiring suctioning so they want to do some Physio and get more of it out before removing the tubes. It’s now about getting him to the point where he is not likely to require oxygen masks or any interventions outside of a quick cannula injection when the respiration stops.
He is breathing above the ventilation which is awesome. But when he moves he still requires a bit of oxygen - so we just need to get him so he doesn’t need that at all, or we will likely spiral back into this cycle.
The hospital staff and doctors are amazing, and they can recognise this.
And I can tell you all there is a LOT of work done to ensure his sensory needs are met. This place has been incredible and are well resourced for our kids.
Please reach out if you ever need a hospital plan for your little one - happy to give you some insight.
I just can’t wait to have my little cyclone back to his gale forces…. I miss his little voice terribly.