22q Minded

22/08/2025

22q-ouders, de tijd gaat snel! 💙 13 september as start de volgende Care4Parents training voor ouders met een kind met 22q tegen een fors gesubsidieerd bedrag: €80,- ipv €575,-!

⚠️ Belangrijk: We weten niet of deze geweldige subsidie volgend jaar opnieuw beschikbaar komt. Dit kan je laatste kans zijn voor dit bedrag!

Deze training heeft al tientallen ouders geholpen om van overweldigd naar rustig en zelfverzekerd te gaan. Jij verdient die rust ook!

👉 Meld je NU aan: https://www.22qminded.com/product/care4parents-22q-training-nl-sep25/

💬 Vragen? Mail Sasja: 22qminded@care4minds.org

🌸 PS: Binnenkort kondigen we ook onze nieuwe Care4Parents training voor ouders van jongvolwassenen (18+) aan. Stay tuned!

16/08/2025

“Why does my child go from calm to overwhelmed in seconds?”
If you’re raising or supporting a child with 22q, you might have noticed big emotions that seem to come out of nowhere. There’s a reason for that—and it’s not about being “naughty” or “too sensitive.”

In our latest 💡 Let’s Talk About 💡 blog, we explore emotion regulation in 22q: what it is, why it can be harder, and how parents, caregivers, and professionals can support this vital skill.

✨ Learn how brain development, anxiety, and life experiences shape emotional responses—and why connection and coaching matter more than ever.

🔍 Read now: Helping Children with 22q-related Conditions Learn to Regulate Their Emotions
🌐 www.22qminded.com/blog 👇

💛 Know someone supporting a child with 22q? Tag a parent, teacher, or therapist who might find this helpful.

On September 7, it is time for our next live and on-demand webinar: Emotion regulation & 22q - enrol now at www.22qminded.com/shop

And check out our live and on-demand emotion coaching program, Feelings in Focus and other learning opportunities

15/08/2025

🛒😤 When your child melts down in aisle 5 or your teen slams their bedroom door, your body reacts before your brain can catch up.
That’s where the 3-Minute Breathing Space comes in.
Just 180 seconds to pause, reset, and choose the kind of parent you want to be — instead of the one stress pulls out of you.

🎧 Now you can listen to our guided meditations on Spotify and start practising before the chaos hits. https://open.spotify.com/episode/1v2gETa8HasLbHUTRaKiw9?si=3d1710770b8b48c6

The more you do it when things are calm, the more ready you’ll be when emotions run high.

✨ Because you can’t stop the waves, but you can learn to surf.

13/08/2025

New to 22q13.3 deletion syndrome (Phelan-McDermid Syndrome)?
You’re not alone—and you’re not without support. 💜

Our latest blog explains what PMS is, how it can affect children and families, and why understanding it matters—whether challenges are subtle or more complex.

💡 Whether you’re navigating a new diagnosis or simply curious to learn more, this is a great place to start.

🔍 Read now: Understanding 22q13.3 Deletion Syndrome: What Families Need to Know
🌐 Find it at www.22qminded.com/blog 👇

✨ Knowledge opens doors to clarity, connection, and care.
If it resonates, share with a parent, educator, or health professional walking a similar path.

🌏Curious to explore more about chromosome 22? Check out our on-demand webinars or upcoming events: www.22qminded.com/resources.
📚 Check out our book Chromosome Magic: The Science of 22q and You by Dr Linda Campbell at www.22qminded.com/chromosome-magic/

08/08/2025

Are you Australian? Join us - Nicola and Linda - this Sunday at 4 PM (AEST) to talk about 22q and Education.

About the presenter: Nicola has three children - an 8-year-old and 5-year-old twins. Her eldest has 22q11.2 Deletion Syndrome. She is a Learning Support Teacher in Newcastle, NSW, supporting students with additional needs. She has 15+ years of teaching experience across public, Catholic and independent primary schools. She has supported kids with behavioural, academic, social, emotional, and physical needs - the list goes on! There's a Learning Support Teacher like her in each Australian school, but you need to know how the system works and what to ask for. That's what she joins us for - to help you navigate the system!

📢 Every child in Australia has the RIGHT to learn on the same basis as their peers.
If your child has 22q or a related condition, they are entitled to support, adjustments, and opportunities that help them thrive at school. 💛📚
Join our live webinar Sunday 10 August 2025 at 4 PM (AEST) to:
✅ Understand the Disability Discrimination Act & Disability Standards for Education
✅ Learn how to work with schools to get the support your child is entitled to
✅ Discover practical, neuroaffirming strategies that really work
🎟 Only $45 – Australia-wide, live online
👩‍🏫 Presented by Dr Linda Campbell & Nicola Matheson – 22q mum + Learning Support Teacher
💬 Empower yourself. Empower your child.
Register now 👉 www.22qminded.com/shop/

05/08/2025

✨ Parenting a child with a disability is a journey of deep love, strength… and yes, real moments of exhaustion.

Some days feel like a steady marathon. Others? Like a sprint you didn’t see coming. 🏃‍♀️💨

In our latest blog, we share:
💛 How to spot the early signs of stress in your body
💛 Simple ways to respond instead of react
💛 Why slowing down can transform hard moments
💛 Practical tips for protecting your energy and resilience

You don’t have to do this alone. 🌿
Read the full post here ➡️ www.22qminded.com/blog/

✨ Stay connected for more supportive resources, including tips, stories, and updates on our Care4Parents program. Join Sasja for the Care4Parents starting in September (in Dutch, subsidised by Stichting Steun 22q11) and in October (in English), subsidised by the MindMore Foundation. ➡️ www.22qminded.com/shop/

05/08/2025

📢 Every child in Australia has the RIGHT to learn on the same basis as their peers.
If your child has 22q or a related condition, they are entitled to support, adjustments, and opportunities that help them thrive at school. 💛📚

Join our live webinar Sunday 10 August 2025 at 4 PM (AEST) to:
✅ Understand the Disability Discrimination Act & Disability Standards for Education
✅ Learn how to work with schools to get the support your child is entitled to
✅ Discover practical, neuroaffirming strategies that really work

🎟 Only $45 – Australia-wide, live online
👩‍🏫 Presented by Dr Linda Campbell & Nicola Matheson – 22q mum + Learning Support Teacher

💬 Empower yourself. Empower your child.
Register now 👉 www.22qminded.com/events

Find help from expert psychologists in 22q11.2 deletion or duplication syndrome. 22qMinded provides leading care for individuals and families.

03/08/2025

🔍 Herken je dit als ouder van een kind met 22q?

Je voelt je vaak overweldigd... raakt sneller geïrriteerd... twijfelt aan je keuzes...
De meeste ouders denken dat dit er "gewoon bij hoort" en proberen het op te lossen door nog harder hun best te doen.
Maar hier is wat er werkelijk aan de hand is: Je hebt nooit geleerd hoe je als ouder van een kind met een chronische aandoening met stress omgaat. En dat is niet jouw schuld.

In september start een nieuwe 8-weekse Care4Parents 22q Training (NL) - speciaal voor Nederlandse 22q-ouders:
✅ Herken stress-signalen voordat je overweldigd raakt
✅ Begrijp waarom situaties je zo raken
✅ Reageer rustiger voor meer stabiliteit thuis

📅 Start: 13 september 2025
💰 Lid van Stichting Steun 22Q11: €80,- | Geen lid: €200,- | Partner: 50% korting!
📬 Info: www.22qminded.com/shop/

De Stichting betaalt deze training grotendeels met subsidies - gun jezelf deze rust!

01/08/2025

⏪ Throwback Friday
New to 22q11.2 duplication syndrome?
You’re not alone—and you’re not without support. 💙

Our latest blog explains what dup22q11.2 is, how it can affect children and families, and why understanding it is important, whether the symptoms are mild or more complex.

💡 Whether you’re navigating a new diagnosis or just curious to learn more, this is a great place to start.
🔍 Read now: Understanding 22q11.2 Duplication Syndrome: A Common but Under-Recognised Genetic Condition
🌐 Find it at www.22qminded.com/blog 👇

✨ Knowledge brings clarity and connection.
If it resonates, share with a parent, educator, or health professional walking a similar path.

Curious to explore more? Check out our on-demand webinars or join us live for upcoming events: www.22qminded.com/resources

27/07/2025

Last chance to enrol in the Care4Parents program with Linda. We are starting this coming Tuesday at 7 PM (Australian Eastern Standard Time). We have a couple of spaces available for parents wherever you are in the world. Visit our website at www.22qminded.com/shop/ to sign up.

22/07/2025

📣 Coming up for 22q Families in Australia & New Zealand! 💙
We're thrilled to share two empowering opportunities from 22qMinded – designed just for our community!
✨ Care4Parents Program (Starting July 29)
Thanks to support from the 22q Foundation ANZ, we’re offering subsidised places for this parent-focused program led by Dr Linda Campbell for Australian and New Zealand residents. The training is also available for parents outside of this region, check out our website. Learn mindful ways to support you to support your child’s behaviour and emotional wellbeing – and connect with other parents who get it.
💰 Only AU$80 (usually AU$290!)
📧 Email hello@22qminded.com to grab your promo code!
💡 Practical Tools for Learning & Behaviour (August 10)
This neuroaffirming webinar is perfect for both families and educators. Discover how 22q affects learning, and walk away with real tools to build confidence and success in the classroom.
💲 Just AU$45
🖥️ Online & accessible anywhere
👉 Register now: www.22qminded.com/events
Let’s walk this journey together 💪