22q Minded

22q Minded Supporting 22q families worldwide 💙
Clinical psychologists specialising in 22q-related syndromes and related conditions. Dr Linda Campbell & Dr Sasja Duijff

Coaching, training & resources for families & professionals. Local services in Australia & the Netherlands
www.22qminded.com

Some behaviour in 22q doesn't come from 22q alone.There's a lens that many parents find changes something, not in their ...
29/05/2026

Some behaviour in 22q doesn't come from 22q alone.

There's a lens that many parents find changes something, not in their child's behaviour straight away, but in how they understand what they're seeing. And when things make sense, how you respond changes, too.

We've put together a free guide on this. It's called 'What if you looked at it differently?'. It's a trauma-sensitive lens for parents of children and adults with 22q. It covers what this can look like, how to ask different questions, and where to go if you want to understand it more deeply.

Free. Four pages. Written for parents, useful for professionals too.

Find the link in the comments.

28/05/2026

It is midweek. Time to take a breath. A pause.

Sasja has recorded a short sensory practice about looking, and actually seeing.

A few minutes to come back into your body, before everything starts up again.

Press play when you have a moment to yourself.

Small things that actually help for parents who are running on less than they'd like.Not a self-care plan. Just a few th...
26/05/2026

Small things that actually help for parents who are running on less than they'd like.

Not a self-care plan. Just a few things grounded in how the nervous system actually works. Swipe through.

Parenting a child with 22q carries a specific weight. Some feel it more than others. Most recognise it when someone fina...
24/05/2026

Parenting a child with 22q carries a specific weight. Some feel it more than others. Most recognise it when someone finally puts it into words.

It's the anticipatory anxiety before every appointment. The mental load of being the only one who holds the full picture. The grief that arrives in unexpected moments and has nowhere to go. The gap between what people around you understand and what you are actually managing.

On good days, it hums quietly in the background. On harder ones, it sits very close.
This kind of sustained stress leaves a mark. Not on how well you're parenting. On your nervous system.

If this resonates, our on-demand webinar Beat Parent Burnout goes deeper into what this load actually does, and what helps. Check our website at www.22qMinded.com/shop/

Some behaviour in 22q doesn't respond to the things that usually work. Not because you're doing it wrong. Because it's c...
23/05/2026

Some behaviour in 22q doesn't respond to the things that usually work. Not because you're doing it wrong. Because it's coming from somewhere the usual approaches don't reach.

The dental panic that won't shift no matter how much you prepare them. The teenager who goes quiet whenever anything medical comes up. The meltdown that arrives from nowhere and takes a long time to settle.

These aren't random. They're often a nervous system communicating something it doesn't have words for yet.

When you understand what's underneath, the question changes. And that changes how you respond.

If this resonates, our on-demand webinar, Decode the Behaviour, goes deeper into reading behaviour as communication in 22q.

22/05/2026

What if some of what you see — the fear, the resistance, the meltdowns around medical care — isn’t just 22q?

I worked with a young woman with 22q. Blood draws terrified her. Had done her whole life.
We did trauma therapy together. Shortly afterwards she had a blood draw. Her mum couldn’t make it. She went alone.

She was fine.

A few weeks later she got ill — blood draws twice, in quick succession. Her mum came along this time and told her afterwards: ”I almost didn’t recognise you. You just sat there. Calm.”
Her smartwatch agreed. Heart rate steady throughout.

This story is not unusual. In 22q, with everything many of these children go through in those first months and years, it is more common than most people realise.
It may be trauma — early experiences the body remembers before there were words for them.

We made a whole webinar on it: what it looks like, why it happens, and what can sometimes be done. Go to our website www.22qMinded.com/shop/

Some of the hardest behaviour to sit with is the kind that makes no sense.Not defiance. Not a phase. Something that seem...
22/05/2026

Some of the hardest behaviour to sit with is the kind that makes no sense.

Not defiance. Not a phase. Something that seems to come from somewhere much further back. That no amount of consequences or explanations reaches.

There's often more to the story.

A big month for 22qMinded.We released a free resource on the neurobiology of motivation in early adulthood with 22q, dra...
19/05/2026

A big month for 22qMinded.

We released a free resource on the neurobiology of motivation in early adulthood with 22q, drawn from Esther van Duin's research, and launched a three-part webinar series, closing with a live community Q&A on Sunday. The engagement this month was the highest we've seen and the questions people brought were specific, honest, and exactly what this work is for.

Our subtitles now reach 13 languages. And the community keeps growing with more than 2,200 on Facebook, 700 on Instagram, 760 on LinkedIn, and 800 on the newsletter.

If anything we've shared this month has been useful, we'd love you to pass it on — to a parent, a teacher, or anyone supporting a family with 22q.

Thank you to everyone who showed up this month.

Over the coming months, we'll be turning our attention to preverbal trauma, parent wellbeing, emotion regulation, co-regulation, and what teachers need to understand about 22q. If there's something you'd like us to address, drop it in the comments.

Check out our website for resources and webinars: www.22qminded.com/shop/

Thank you The 22q Family Foundation for sharing our event.
16/05/2026

Thank you The 22q Family Foundation for sharing our event.

Tomorrow, Sunday 17 May.Our live community gathering for everyone who's been following the early adulthood series.You do...
16/05/2026

Tomorrow, Sunday 17 May.

Our live community gathering for everyone who's been following the early adulthood series.

You don't need to have watched the three parts to join. But if you have, bring your questions. It's live, with Q&A, and the recording stays available on demand afterwards. Subtitles in 14 languages.

Recording only: €32 / USD $37 / AUD $56
Recording + live Q&A: €39 / USD $45 / AUD $68

We'd love to see you there.

Something Part 3 of the webinar keeps coming back to is belonging.Not belonging in the broad sense. The specific experie...
14/05/2026

Something Part 3 of the webinar keeps coming back to is belonging.

Not belonging in the broad sense. The specific experience of being around people who don't require you to translate yourself. Where the social cost is lower. Where you don't leave more tired than when you arrived.

In early adulthood with 22q, that experience is harder to find. And the gap it leaves adds up over time — in ways that are easy to miss if you're only looking at the obvious things.

This Sunday is our live Q&A. It's an open space, and this conversation is part of it. Come having watched the parts, or come without. You're welcome either way. All are welcome - adults with 22q, their partners, their parents, their careteam.

Address

Maitland, NSW

Website

http://www.22qminded.nl/, http://www.22qminded.com/

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