22q Minded

03/08/2025

🔍 Herken je dit als ouder van een kind met 22q?

Je voelt je vaak overweldigd... raakt sneller geïrriteerd... twijfelt aan je keuzes...
De meeste ouders denken dat dit er "gewoon bij hoort" en proberen het op te lossen door nog harder hun best te doen.
Maar hier is wat er werkelijk aan de hand is: Je hebt nooit geleerd hoe je als ouder van een kind met een chronische aandoening met stress omgaat. En dat is niet jouw schuld.

In september start een nieuwe 8-weekse Care4Parents 22q Training (NL) - speciaal voor Nederlandse 22q-ouders:
✅ Herken stress-signalen voordat je overweldigd raakt
✅ Begrijp waarom situaties je zo raken
✅ Reageer rustiger voor meer stabiliteit thuis

📅 Start: 13 september 2025
💰 Lid van Stichting Steun 22Q11: €80,- | Geen lid: €200,- | Partner: 50% korting!
📬 Info: www.22qminded.com/shop/

De Stichting betaalt deze training grotendeels met subsidies - gun jezelf deze rust!

01/08/2025

⏪ Throwback Friday
New to 22q11.2 duplication syndrome?
You’re not alone—and you’re not without support. 💙

Our latest blog explains what dup22q11.2 is, how it can affect children and families, and why understanding it is important, whether the symptoms are mild or more complex.

💡 Whether you’re navigating a new diagnosis or just curious to learn more, this is a great place to start.
🔍 Read now: Understanding 22q11.2 Duplication Syndrome: A Common but Under-Recognised Genetic Condition
🌐 Find it at www.22qminded.com/blog 👇

✨ Knowledge brings clarity and connection.
If it resonates, share with a parent, educator, or health professional walking a similar path.

Curious to explore more? Check out our on-demand webinars or join us live for upcoming events: www.22qminded.com/resources

27/07/2025

Last chance to enrol in the Care4Parents program with Linda. We are starting this coming Tuesday at 7 PM (Australian Eastern Standard Time). We have a couple of spaces available for parents wherever you are in the world. Visit our website at www.22qminded.com/shop/ to sign up.

22/07/2025

📣 Coming up for 22q Families in Australia & New Zealand! 💙
We're thrilled to share two empowering opportunities from 22qMinded – designed just for our community!
✨ Care4Parents Program (Starting July 29)
Thanks to support from the 22q Foundation ANZ, we’re offering subsidised places for this parent-focused program led by Dr Linda Campbell for Australian and New Zealand residents. The training is also available for parents outside of this region, check out our website. Learn mindful ways to support you to support your child’s behaviour and emotional wellbeing – and connect with other parents who get it.
💰 Only AU$80 (usually AU$290!)
📧 Email hello@22qminded.com to grab your promo code!
💡 Practical Tools for Learning & Behaviour (August 10)
This neuroaffirming webinar is perfect for both families and educators. Discover how 22q affects learning, and walk away with real tools to build confidence and success in the classroom.
💲 Just AU$45
🖥️ Online & accessible anywhere
👉 Register now: www.22qminded.com/events
Let’s walk this journey together 💪

11/07/2025

📣 Coming up for 22q Families in Australia & New Zealand! 💙

We're thrilled to share two empowering opportunities from 22qMinded – designed just for our community!

✨ Care4Parents Program (Starting July 29)
Thanks to support from the 22q Foundation ANZ, we’re offering subsidised places for this parent-focused program led by Dr Linda Campbell for Australian and New Zealand residents. The training is also available for parents outside of this region, check out our website. Learn mindful ways to support you to support your child’s behaviour and emotional wellbeing – and connect with other parents who get it.
💰 Only AU$80 (usually AU$290!)
📧 Email hello@22qminded.com to grab your promo code!

💡 Practical Tools for Learning & Behaviour (August 10)
This neuroaffirming webinar is perfect for both families and educators. Discover how 22q affects learning, and walk away with real tools to build confidence and success in the classroom.
💲 Just AU$45
🖥️ Online & accessible anywhere
👉 Register now: www.22qminded.com/events

Let’s walk this journey together 💪

04/07/2025

“Why is my usually cheerful child suddenly withdrawn?”
If you’re supporting someone with 22q, you may have seen these changes—but not known why.

In our latest 💡 Let’s Talk About 💡 blog, we explore depression in 22q: what it can look like, why it sometimes emerges in adolescence or early adulthood, and how we can support healing with compassion and understanding.

✨ Learn how emotional changes, social isolation, and life transitions affect mental health—and what actually helps.

🔍 Read now: Understanding Depression in 22q: What Families Need to Know
🌐 www.22qminded.com/blog 👇

💛 Know someone navigating this? Tag a friend, teacher, or support worker who might benefit.

If you’re supporting someone with 22q, you may have seen these changes, but not known why. Curious to learn more? Explore our upcoming workshops and free resources: www.22qminded.com/resources/

27/06/2025

✨ Sneak Peek: Chromosome Magic – The Science of 22q and You

🧬Discover the magic behind chromosomes and how the 22q-related conditions influence health, development, and identity. This vibrant, kid-friendly guide is designed for children aged 6–12 and the adults who support them. It transforms complex science into empowering, accessible knowledge, making it easier to talk about genetic differences with confidence.

Check out our little Sneek Peek here - https://heyzine.com/flip-book/d71250da24.html

📚Now available as eBook, Kindle, paperback, and hardcover formats on Amazon, Barnes & Noble, Booktopia, Lulu Bookstore, and more. Perfect for parents, educators, and healthcare professionals seeking to support children with 22q-related diagnoses.

📘 Available now in paperback, hardcover, and Kindle.
Follow along for sneak peeks and science surprises, and sign up for the newsletter at www.22qminded.com
- Linda at 22qMinded

22qMinded offers expert resources, coaching, and support for families and professionals dealing with 22q11.2 deletion and duplication syndrome.

25/06/2025

🌟 Get the Support You Need for Your 22q Journey – Sign Up Now! 🌟

Our exclusive webinars and programs are designed to give you practical tools and valuable strategies for supporting individuals with 22q. Don’t wait – spaces are filling up fast!

🎥 Upcoming & On-Demand Webinars:

Gain important insights into the social and emotional challenges of 22q.

Learn effective strategies for managing behaviour, stress, and anxiety.

Discover how to strengthen resilience and executive function.

📚 Chromosome Magic: The Science of 22q and You – A must-read book offering you a unique perspective on how to talk to your child about the 22q experience.

💡 Care4Parents Program
Sign up now for the 8-week Care4Parents program starting in July, only $80 for Australian and New Zealand residents. This special offer is available for a limited time, so act quickly!

💡 Feelings in Focus Program
Launching in September! Spaces are limited, so be sure to secure your spot for this new program focused on helping parents support their children developing emotional regulation skills.

👉 Don’t miss out! Visit www.22qminded.com now to sign up and get started!

21/06/2025

💛 The Impact of Caregiver Burden in 22q11.2 Deletion Syndrome 🧠

Caring for a child with 22q11.2 Deletion Syndrome (22q11.2DS) comes with both rewards and significant challenges. In our new post in the 'What's New About 22q' series, we explore the emotional, physical, and financial burdens that caregivers often face.

✨ What factors affect caregiver well-being?
✨ How do financial pressures and emotional strain affect caregivers?
✨ Why is it vital to build better support systems for families?

Learn about the hidden challenges caregivers experience and how it impact their quality of life (QoL), mental health, and ability to manage daily responsibilities.

Swipe through to explore more about the study and how we can advocate for stronger support for caregivers.

Read more on our blog https://www.22qminded.com/blog/
or go straight to the source - a recent article by Walkowiak and Domaradski from Poznan University of Medical Sciences ➡️ https://ojrd.biomedcentral.com/articles/10.1186/s13023-025-03790-5

20/06/2025

💛 Our latest post in our 🦋Parenting Journey🦋 blog series dives into the power of joy and curiosity in parenting children with 22q-related conditions.

Discover how being present, responding instead of reacting, and embracing all emotions can strengthen your connection with your child, while helping you navigate the challenges with more resilience and love. 🌿

Parenting isn’t about perfection—it’s about embracing the full spectrum of emotions and celebrating the moments of joy along the way.

Read the full blog now at www.22qminded.com/blog/ and explore ways to bring more curiosity and joy into your parenting journey.

✨ Stay connected for more supportive resources, including tips, stories, and updates on our Care4Parents program starting with Linda in late July (with special offers for Australian and New Zealand residents thanks to 22q Foundation Australia and New Zealand - 22q Deletion and Duplication and with Sasja in October (with special offers from the MindMore Foundation).

18/06/2025

There are many resources available to learn more about 22q-related conditions online. This morning I (Linda) listened to 22q11 Europe’s podcast New in 22q, produced by Prof Stephan Eliez, about the relationship of Parkinson’s Disease and 22q11.2 deletion syndrome and I thought I should share this podcast with you in case you have not yet come across it.

"What's New in 22q" explores the many facets of 22q11 syndrome based on the latest scientific research. Whether you're a parent, healthcare professional, res...

17/06/2025

Linda spent last night tinkering with her website for the new book Chromosome Magic: The Science of 22q and You. See what you think!

Unlock the magic of genetics with Chromosome Magic: The Science of 22q and You — a vibrant, child-friendly guide for ages 6–12 that helps families understand chromosome 22q, celebrate uniqueness, and explore health and development with hope and clarity.