Warrior Princess Luna

22/09/2025

Sorry it’s a long one, Luna makes an announcement right at the end!
😂😂

21/09/2025

For those who asked how they could donate to help us during this not so great time!

Below is the link, please know your love & support is more than enough but any $$ to help make this experince less stressful would be gratefully appreciated!

Thank you all so much for your kind words, they truely have helped lighten the blow of this speed bump in our journey!

Our goal is to stay in VIC until Luna is recovered & then slowly make our travels back home once she is back to her normal self.

Big love to you all

💜💜💜

20/09/2025

Everything is so up in the air atm & everything just sucks. 😪😪😪

15/09/2025

💜 KRUISIN4KLEEFSTRA DAY 8 💜

Taronga Zoo 8/10 for wheel chair accessibility

Shout out to Krystal at Valhalla Tattoo in Bondi Junction for doing such an incredible job of our family tattoos! Grateful to call you family!

Sydney has been real but we are excited to head off to our next location tomorrow!

11/09/2025

DAY 4 KRUISIN4KLEEFSTRA

My heart is so full! 🥺🥺💜💜

Such a special day meeting Natty & Beka, another Kleefstra family for the first time & of course 🌸 Medical Mama & Maeve, so grateful for this platform which has brought such inspirational women into my life!

Now time to adventure Sydney & get ready for the Kleefstra Syndrome Event! Ugh so excited!!

💜💜💜💜

07/09/2025

Dear Luna,

Tomorrow we embark on our biggest journey yet, as a family we have had 1 holiday that wasn’t a trip for appointments, specialists or medical tests.

And tomorrow we start our over 4,000km round trip.

If you told me back when you were first born we would be doing this I would have laughed & told you your crazy.

I thought our life of adventure was over the day you came along, not in a bad way but I way I wanted to always keep you safe, protected at home away from any illness or danger.

We have spent so long surviving & staying safe, but have we actually been living? It’s a thought I sit with regularly.

If there is one thing I’ve learnt in your almost 3 years of life it is that life is short & every second truely is a blessing.

This trip is to show life Kleefstra Syndrome doesn’t define us as a family, we still get to live & adventure.

This trip is to meet other Kleefstra Families who walk the same path we do.

This trip is to raise awareness for your condition & your rare little community.

This trip is to meet the online village we have made & hug the people who held space for us during our hard days.

This trip is to create memories that will last a lifetime.

I’m so excited to see where the road takes us & go on the most epic adventure of our lives.

Love always,
Mum
💜

01/09/2025

Dear Luna,

Today I made a quick trip down to Brisbane to celebrate the life of Aaron, an incredible little warrior who was one of our day ones.

It breaks my heart to say Aaron lost his battle to Cancer, Neuroblastoma.

We met Cass & Aaron a few weeks after checking into Ronald McDonald House, finding out we had checked in only days apart.

Cass was one of my biggest supports while you were chronically ill in ICU & Aaron supplied lots of laughs.

The bond built with these beautiful people, living a life only some people understand.

Although our journeys were different, sitting & talking about our days, venting, crying, laughing, was the most healing medicine.

To watch my incredible friend lose her child to such a horrible condition, to see cancer steal Aaron’s light & watch his sister Ella scream for her brother while he was taken away in a hearse is something no one should have to watch, let alone endure.

We live in a cruel world & most people don’t see these heart wrenching sides of it.

While most of you are celebrating birthdays, some of us are grieving anniversaries.

While most of you can’t wait for your children to grow up & move out, some of us wonder if we will get the chance to watch them grow.

This life is hard & it breaks you in ways you never even thought possible.

Aaron, sweet boy you are so missed. You have touched so many lives & today truely showed that. May you now rest in peace & no longer be in pain.

Cass, my beautiful friend, I’m so sorry cancer chose your sweet boy. I wish I could take all of your pain away.

F**k cancer.

Love always,
Mum
💜

Please leave yellow hearts to help us celebrate Aaron’s fight against Neuroblastoma & show this beautiful family some love
Aaron's Day
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Today always marks the start of childhood cancer awareness month

27/08/2025

Sorry for the 11 minute video but I could talk about her for hours tbh 😂😂

20/08/2025