Processing the life of my complex daughter by writing to her in diary entries.
19/11/2025
BRB BALLING! 😭😭
I really hope these new skills we keep & don’t lose them! 🙏🏻 Luna usually goes through a spurt of learning new things & will only keep a couple while she plateaus for another couple of months! Unfortunately Luna is no longer giggling in the car & I really hope that skill comes back soon!
17/11/2025
And would you believe both times she has done it out of sight 😂😂 the cheekiest girl!
31/10/2025
Daddy’s first time coming to our therapy day trip! Luna was so happy to have him there! 🥰
Also after seeing Luna on the car & how much she loved it I know what she’s getting for Christmas 😂
29/10/2025
What’s it like navigating the NDIS system? A headache. 😑
17/10/2025
Sometimes I forget just how different our life is..
15/10/2025
Luna is loving her new standing frame, she spent 30 minutes in it this morning & not once made signs of showing discomfort, I’m so proud of her! 🥺
13/10/2025
She’s fresh! 😍
Luna’s old pump is sounding very unwell so I thought it was time we brought out the new one!
Pump sticker from Staib Tribe Designs
08/10/2025
We got the best news today!
Luna has finally grown into her “big heart” and everything is looking good! While she is not discharged from cardiology we don’t have to see them for 2 years!! 🎉🎉
Luna is finding car trips so funny & I honestly can’t even deal with it! 😂🥺🥺
07/10/2025
Easily the coolest cafe we have ever been too! Even the coffee cups were Alice in wonderland themed!
🎩 🫖 🐈⬛ 🍄
07/10/2025
I have wanted to take the kids here since they have been born!
There is just a healing energy in Crystal Castle that you can’t explain.
Embracing elements of the earth & some of the worlds wonders just makes me feel so grounded, exactly what I needed after a big month on the road.
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