Australian Rare Cancer Portal

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Australian Rare Cancer Portal

An online service for Australian oncologists caring for individuals with .

Provides access to rare cancer specialists, genomics, guidelines and research.

24/07/2024

MOGA will be hosting its 2024 Annual Scientific Meeting 🗓️ August 14th – 16th 2024 📍 International Convention Centre, Sydney. Find out more - arcportal.org.au/news/moga-2024

22/07/2024

The ARC Portal is pleased to support Rare Cancers Australia (RCA) at CanForum 2024, the largest patient-focused cancer forum in the Asia-Pacific region. 🗓️ Tuesday 20th August 2024 📍In person and online
Find out more - arcportal.org.au/news/canforum-2024

25/01/2024

The Pharmaceutical Benefits Advisory Board (PBAC) survey submissions are closing soon. If you have experience with ATEZOLIZUMAB, CABOZANTINIB or CETUXIMAB, you may wish to consider completing the survey. Find out more - https://loom.ly/TyImaKQ

24/01/2024

The ARC Portal is thrilled to announce that we have a new Fellow Dr Cassie Turner with us to help assist with all your rare cancer requests.

Dr Cassie Turner is a medical oncologist currently practicing at the Sunshine Coast University Hospital in Queensland. Her clinical interests include breast, gynaecological, thoracic and brain cancers. She earned her medical degree from the University of Queensland and complementing her medical qualifications, she holds a Masters in Clinical Epidemiology from the University of Sydney.

Learn more about Dr Turner - https://loom.ly/imUlSZw

17/01/2024

ANZGOG will be hosting its 2024 Annual Scientific Meeting in Wellington New Zealand from April 22nd – 24th 2024. The 2024 theme is “Breaking down the barriers in gynaecological cancer care”

🗓️Key dates include:
Abstract & Concept Submissions Close – Monday, 28 February 2024
Early Bird Registration Deadline – Monday 5 February 2024
Accommodation Deadline – Monday 18 March 2024

Find out more - https://loom.ly/BRHhkbg

15/01/2024

The Pharmaceutical Benefits Advisory Board (PBAC) is seeking input from patients, carers, health professionals, consumer groups or organisations and members of the public on medicines submitted for PBAC consideration ahead of their March 2024 Meeting.

If you have experience with the treatments below, you may wish to consider completing the survey and providing a submission. Submissions close 31st January 2024 - https://loom.ly/TyImaKQ

⚪ATEZOLIZUMAB (Tecentriq®)
⚪CABOZANTINIB (Cabometyx®)
⚪CETUXIMAB (Erbitux®)

20/12/2023

The ARC Portal would like to wish all its patients, referrers, experts and collaborators a wonderful and safe holiday period and a Happy New Year.

For those of you working through the holiday period, the ARC Portal will remain open for referrals throughout this time, so don’t hesitate to send those referrals in.
See you in 2024!

Regards,
ARC Portal team
Professor Clare Scott, Professor David Goldstein, Dr Damien Kee, Dr Chloe Georgiou, Dr Betty Zhang, Dr Cassie Turner

12/12/2023

As the year draws to an end, the ARC Portal, would like to acknowledge and thank all the people that have contributed to making 2023 another amazing year.

Since we started in 2019, the Portal has been able to help over 1500 rare cancer patients referred to the Portal from across Australia.

Read more on the projects that were made possible from these referrals - https://loom.ly/FSofSd4

07/12/2023

The ARC Portal is encouraging all health-decision makers in Australia to read the newest report “Rarefication: Personalised medicine in the genomic revolution” from Rare Cancers Australia.

This insightful document outlines the ways in which cancer diagnosis and treatment has changed over the past 2 decades with the ongoing advancement of precision oncology that targets the specific genomic pathways that have been damaged.

Find out more - https://loom.ly/Rw2NfW8

23/11/2023

The responses to the Senate Inquiry into equitable access to diagnosis and treatment for individuals with rare and less common cancers are now available to read on the Parliament of Australia website.

Find out more - https://loom.ly/pwPSB-I

16/11/2023

Rare Cancers Australia and Canteen have launched their follow up report on rare cancers, Counting the cost: How we can assess the true value of investing in cancer treatment.

Read more on the report - https://loom.ly/Y_YJfag

06/11/2023

Australians with leiomyosarcoma or liposarcoma will now be able to access the novel anti-tumour agent Yondelis (trabectedin) at a cost of approximately $30 per script following its PBS listing in August 2023.

Find out more – https://loom.ly/zWe2YOQ

Address

Level 8, CMR Building Royal Melbourne Hospital 300 Grattan Street
Melbourne, VIC
3052

Telephone

+61393422690

Website

https://www.arcportal.org.au/

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