Myeloma Australia

Myeloma Australia Myeloma Australia is the only Australian myeloma specific not-for-profit organisation. They can all be found at: https://myeloma.org.au/resources/

We support, educate, inform, empower and bring hope to people who are living with myeloma, and their loved ones. Myeloma Australia publishes many online resources to guide you through myeloma. These resources include our booklets such as ‘Myeloma – A Comprehensive Guide’ and ‘Living Well with Myeloma’, information sheets and treatment fact sheets.

This festive season, we are celebrating the power of caring. The simple acts of kindness, connection and compassion that...
01/12/2025

This festive season, we are celebrating the power of caring. The simple acts of kindness, connection and compassion that help us through.

Myeloma Australia is here for every person impacted by myeloma, but we can only continue this vital support with your help.

By giving to our Christmas Appeal, you’re helping ensure we can continue to care and support all our community members.

Give the gift of care.

To donate please click here; https://myeloma.org.au/make-a-donation-2/

Pedaling with hope- by Peter Aroney, NSW'Although my results from treatment have been good, unfortunately myeloma bone d...
01/12/2025

Pedaling with hope- by Peter Aroney, NSW

'Although my results from treatment have been good, unfortunately myeloma bone disease has done a lot of damage to my spine. Skeletal surveys revealed 5 compression fractured vertebrae. It is difficult for me to stand up straight, and I experience pain when walking. I have lost about 5cm in height. My damaged spine has been my biggest issue. Initially, I was unable to do the activities I loved most- bike riding and playing golf. This was a really tough time for me, thinking I may never be able to enjoy these activities again.'

To read the rest of Peter's MyeStory visit our webpage https://myeloma.org.au/myestory

If you would like to share your MyeStory click here to read our submission guidelinehttps://myeloma.org.au/.../2025/07/Guidelines-Myestory.pdf

Myeloma Australia would like to invite you to attend our Information and Support Groups being held this week from the 28...
27/11/2025

Myeloma Australia would like to invite you to attend our Information and Support Groups being held this week from the 28th November to 4th December. Please note that all group meeting times are in the local time zone unless specified. Some support groups maybe held via TEAMS. All links to online meetings can be found on our events calendar on our website buff.ly/ZtL5Jdq
For the most up to date information, please visit our events page on our website buff.ly/ZtL5Jdq.

Tickets on sale tomorrow Friday 28 November 2026 at 9.00am (AEDT) for the Gather Round Breakfast at the Adelaide Convent...
27/11/2025

Tickets on sale tomorrow Friday 28 November 2026 at 9.00am (AEDT) for the Gather Round Breakfast at the Adelaide Convention Centre, Friday 10 April 2026. Link to follow in tomorrow’s post.

⭐⭐Congratulations to Jacqui Jaggar ⭐⭐
27/11/2025

⭐⭐Congratulations to Jacqui Jaggar ⭐⭐

Join us for the National Autologous Stem Cell Transplant Information & Support GroupDecember 10, 2025 | 6.00pm (AEST), 7...
25/11/2025

Join us for the National Autologous Stem Cell Transplant Information & Support Group

December 10, 2025 | 6.00pm (AEST), 7.00pm (AEDT), 6.30pm (ACDT), 5.30pm (ACST), 4.00pm (AWST) | Live-streamed webinar

This event is aimed towards myeloma patients who are scheduled to have a stem cell transplant or may be heading towards a transplant in the near future.

For more info, email: nurses@myeloma.org.au

Tomorrow join Professor Miles Prince and Specialist Myeloma Nurse Lucy Murphy for a information education event on myelo...
21/11/2025

Tomorrow join Professor Miles Prince and Specialist Myeloma Nurse Lucy Murphy for a information education event on myeloma. An overview and update will be given along with an interactive Q and A session. This webinar will be live streamed through our website on Saturday 22 November at 10.00am AEDT.

For more information, contact: nurses@myeloma.org.au or if you require technical assistance on the day our Specialist Myeloma Nurses are available on 1800 693 566, the session will be recorded and available for playback on the same link above.

Link in our bio.

Myeloma Australia would like to invite you to attend our Information and Support Groups being held this week from the 21...
20/11/2025

Myeloma Australia would like to invite you to attend our Information and Support Groups being held this week from the 21st November to 27th November. Please note that all group meeting times are in the local time zone unless specified. Some support groups maybe held via TEAMS. All links to online meetings can be found on our events calendar on our website buff.ly/ZtL5Jdq
For the most up to date information, please visit our events page on our website buff.ly/ZtL5Jdq.

20/11/2025

You may have seen in the news last week that from 1 November 2025, people who are diagnosed with myeloma and deemed ineligible for a stem cell transplant will be able to access a new treatment combination – daratumumab, lenalidomide and dexamethasone. There are many people diagnosed with myeloma who are deemed ineligible for a stem cell transplant. This could be due to age or being unable to tolerate the large dose of chemotherapy required for a stem cell transplant. This is a great new treatment option for myeloma patients of the future.

Our CEO Mark Henderson and Medical and Scientific Advisory Group member Dr Angie Yong were in Adelaide with Health Minister, Mark Butler to participate in the national press release. Myeloma Australia and our community heavily contributed to the advocacy surrounding this PBAC application and we want to sincerely thank everyone who took the time to contribute their lived experience via the Department of Health’s consumer comments portal.

Did you know?People with myeloma will achieve greater benefits from supervised, individualised exercise that involves hi...
17/11/2025

Did you know?

People with myeloma will achieve greater benefits from supervised, individualised exercise that involves higher intensity aerobic (increased heart rate) and muscle strengthening exercises. Some hospitals also offer a prehab program. Speak to your treating team about what is best for you.

To find out more head to our Livingwell Info sheet on Exercise and myeloma via the link

https://myeloma.org.au/resources/

Address

Melbourne, VIC

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+611800693566

Website

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