Myeloma Australia

Myeloma Australia Myeloma Australia is the only Australian myeloma specific not-for-profit organisation. They can all be found at: https://myeloma.org.au/resources/

We support, educate, inform, empower and bring hope to people who are living with myeloma, and their loved ones. Myeloma Australia publishes many online resources to guide you through myeloma. These resources include our booklets such as ‘Myeloma – A Comprehensive Guide’ and ‘Living Well with Myeloma’, information sheets and treatment fact sheets.

Myeloma didn't stop my game- by Lynne Hayhow, NT 'My husband, Wayne and I had moved to Darwin 14 years ago.  Living in r...
15/01/2026

Myeloma didn't stop my game- by Lynne Hayhow, NT

'My husband, Wayne and I had moved to Darwin 14 years ago. Living in remote Australia worked for me as I didn’t feel lost in the system. My team were happy with my progress regarding my RCC but through routine blood tests in January 2024 and scans a small lytic lesion was found on my lower spine, this confirmed myeloma and so my journey began.

I am an avid lawn bowler and the encouragement from my club, and the state, meant I was still able to compete regularly and try out to represent Northern Territory (NT) in a national lawn bowls event.'

To read the rest of Lynne's MyeStory visit our webpage https://myeloma.org.au/myestory

If you would like to share your MyeStory click here to read our submission guideline
https://myeloma.org.au/wp-content/uploads/2025/07/Guidelines-Myestory.pdf

Myeloma Australia would like to invite you to attend our Information and Support Groups being held this week from the 16...
15/01/2026

Myeloma Australia would like to invite you to attend our Information and Support Groups being held this week from the 16th to 22nd January. Please note that all group meeting times are in the local time zone unless specified. Some support groups maybe held via TEAMS. All links to online meetings can be found on our events calendar on our website buff.ly/ZtL5Jdq
For the most up to date information, please visit our events page on our website buff.ly/ZtL5Jdq.

We have a NEW tests infosheet ‘Understanding the bone marrow biopsy procedure in myeloma’. This infosheet is available t...
14/01/2026

We have a NEW tests infosheet ‘Understanding the bone marrow biopsy procedure in myeloma’. This infosheet is available to view, download or print from the Myeloma Australia website.

Click here to access this resource now:https://myeloma.org.au/wp-content/uploads/2025/11/Bone-marrow-biospy-procedure-in-myeloma-Tests-infosheet.pdf

To learn more about myeloma visit our resources page: https://myeloma.org.au/resources/

We have updated our tests infosheet ‘Understanding paraprotein in myeloma’. This infosheet is available to view, downloa...
06/01/2026

We have updated our tests infosheet ‘Understanding paraprotein in myeloma’. This infosheet is available to view, download or print from the Myeloma Australia website.

Click here to access this resource now:https://myeloma.org.au/wp-content/uploads/2021/02/Tests-infosheet_Understanding-Paraprotein.pdf

To learn more about myeloma visit our resources page: https://myeloma.org.au/resources/

Your voice could bring a life-changing myeloma treatment closer to approval.A promising new treatment for myeloma is und...
05/01/2026

Your voice could bring a life-changing myeloma treatment closer to approval.

A promising new treatment for myeloma is under review for funding through the Pharmaceutical Benefits Scheme (PBS) and your personal story can make a critical difference in their approval.

Teclistamab is a type of immunotherapy called a bispecific antibody. It works by recognising and binding to proteins on two different types of cells and then bringing the cells together. It is given as an injection into the skin (subcutaneously) once per week after the initial phase where the dose is gradually increased over a period.

The PBAC will be reviewing an application for funding for teclistamab in the treatment of people living with myeloma who have had three prior lines of therapy.

You can add your experience of living with or caring for someone with myeloma by completing the online form on the PBAC’s website [ https://ohta-consultations.health.gov.au/ohta/pbac-march-2026/ ] by Wednesday 21 January 2026

For information on what to write in your submission, please see our website https://myeloma.org.au/advocacy/

We have a NEW health condition infosheet ‘Smouldering myeloma’. This infosheet is available to view, download or print f...
28/12/2025

We have a NEW health condition infosheet ‘Smouldering myeloma’. This infosheet is available to view, download or print from the Myeloma Australia website.

Click here to access this resource now:https://myeloma.org.au/wp-content/uploads/2025/11/Smouldering-myeloma-Conditions-infosheet.pdf

To learn more about myeloma visit our resources page: https://myeloma.org.au/resources/

Our Tasmania Specialist Myeloma Nurse, Rachel Cooper, is grateful for the relationships she has built — relationships th...
23/12/2025

Our Tasmania Specialist Myeloma Nurse, Rachel Cooper, is grateful for the relationships she has built — relationships that have deepened her understanding of life with myeloma.

🎁 Give the gift of care this Christmas. Donate today https://myeloma.org.au/make-a-donation-2/

Community member Guy Arrowsmith is grateful for the dedicated medical professionals caring for him and for his wonderful...
22/12/2025

Community member Guy Arrowsmith is grateful for the dedicated medical professionals caring for him and for his wonderful family who stand by his side every step of the way.

His story reminds us that care comes from many places, and every part matters.

🎁 Give the gift of care this Christmas.

Donate to Myeloma Australia https://myeloma.org.au/make-a-donation-2/

Community member Joe Sullivan highlights how vital his family has been throughout his care experience. Because support a...
21/12/2025

Community member Joe Sullivan highlights how vital his family has been throughout his care experience.

Because support at home makes all the difference.

Make a difference by donating today https://myeloma.org.au/make-a-donation-2/

Ambassador Dr Denis Napthine shares his gratitude for the support Myeloma Australia provides to his sister as she lives ...
21/12/2025

Ambassador Dr Denis Napthine shares his gratitude for the support Myeloma Australia provides to his sister as she lives with myeloma.

Because no family should face myeloma alone.

🎁 Give the gift of care this Christmas. Donate today via this link https://myeloma.org.au/make-a-donation-2/

We have a NEW Health condition infosheet ‘Monoclonal gammopathy of undetermined significance (MGUS)’. This infosheet is ...
20/12/2025

We have a NEW Health condition infosheet ‘Monoclonal gammopathy of undetermined significance (MGUS)’. This infosheet is available to view, download or print from the Myeloma Australia website.

Click here to access this resource now:https://myeloma.org.au/wp-content/uploads/2025/11/MGUS-Conditions-infosheet.pdf

To learn more about myeloma visit our resources page: https://myeloma.org.au/resources/

Address

Melbourne, VIC

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+611800693566

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