Jacqui Main Exercise Physiologist at Dizzy heds & Co.

01/12/2025

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30/11/2025

✨ Quick Facts About Ehlers-Danlos Syndromes (EDS) ✨
May is EDS Awareness Month, and here are 8 key facts about EDS and related conditions like HSD.

📌 Save and share to help raise awareness!

30/11/2025

29/11/2025

29/11/2025

23/11/2025

08/10/2025

Now the NDIS want to be rid of EP as an NDIS service! I feel the work I do is so important and I can’t imagine not being able to help people!!

So I am going to write a response to the NDIS but I need your help.

You can help me by:

1. Emailing me any existing research you have come across on the efficacy of exercise physiology for people living with disability

2. If you are willing to share your EP journey and how it has impacted your journey living with disabilities/ conditions by providing your: name, age, disability, location, length of time seeing EP, goals, outcomes, and risk of not accessing EP.

It is so frustrating that they think EP services are all the same. That it is just prescribing exercise. Well, it’s not!!!

You can also take the NDIS Evidence Advisory Committee survey: http://bit.ly/42xZmzT

If you wish to be involved in a response, please email me at jacqui@dizzyheds.com.au

21/05/2025

24/02/2025

It’s been a few weeks now since the The Ehlers-Danlos Society 2025 Global Learning Conference in Brisbane.

I was grateful to be asked to present across the 3 days on:

* Collaborative Approaches to Advocacy and Support - Presenting on my life and experience as a Caregiver to my 5yo child (cried all morning but held it together to present thanks to )

* Addressing the Unmet Needs for those living with EDS & HSD in Australasia

* And Leading the session on my favourite topic on the Sunday, 3 times over with amazing colleagues on “The Management of POTS in EDS & HSD” with , , Caelum from and an inspirational patient story.

I loved that we got a Global Learning Conference to Australia, and this enables me to meet the people I have seen across a Zoom Screen for the past 5 years in real life Dr Alan Hakim, Faye Moran who does an AMAZING job at bringing all this together with the wonderful team, Nagat Abduljalil, Stacey Simmonds and her BRILLIANT headbands and of course the person that makes all this happen .bloom .danlos

To finally also meet with the amazing Hypermobility “Inner Circle”, created by Juliet Hall 5 years ago. Not only have we supported, educated, and assisted each other through business, patients, through the hard times of COVID-19, I cannot thank this team of high quality EDS & HSD and Co. legends for all we have achieved!

From this network, we have presented to anyone and everyone that would have us and listen to us, including the APA, ESSA, Rheumatology and Pain Associations, and created a page “Hypermobility for Australian Allied Health”.

We have also now expanded our “Inner Circle” FB, to include many of the “Hypermobility Legends” across Australasia.

I had such an amazing time, met so many amazing people I’d never met before, and/or finally face to face. Took quite a few days to recover of course, but all worth it.

I am so proud to have majority of our CORE Network of Excellence https://www.edsaustralia.com/ all presenting at this conference , Dr Rebecca Ryan and Nicole Frost.