Jacqui Main Exercise Physiologist at Dizzy heds & Co.

Jacqui Main Exercise Physiologist at Dizzy heds & Co. I advocate & educate those living with EDS, HSD, Dysautonomia, POTS, ME/CFS, & Chronic Pain

28/02/2026
27/02/2026

LATEST RESEARCH OPPORTUNITIES FOR KIDS IN PAIN πŸ”¬

Attention parents and carers, there are three opportunities to help improve care and support for children and young people living with pain, and we need your voice:

πŸ’œ UTS Healthcare Co-Design Study (Australia-wide)

For children aged 10–14 with chronic pain and their parents
β€’ 3 x 2-hour online Zoom workshops
β€’ Work alongside other families and health professionals to design better care together
β€’ $150 gift voucher per child/parent pair (attend at least 2 of 3 sessions)
β€’ Applications close 31 May 2026
β€’ APPLY NOW: https://utsau.au1.qualtrics.com/jfe/form/SV_3E0yGBtqECQM8aa
πŸ“§ jennifer.norton@student.uts.edu.au

πŸ’œ Monash University Growing Pains Study (Australia-wide)
For children aged 6–12 with growing pains and their caregivers
β€’ 30–60 minute interview (Zoom or in person)
β€’ Share your child’s experience and what matters in healthcare
β€’ $50 AUD thank you payment
β€’ Applications close 31 March 2026
β€’ APPLY NOW: https://monash.syd1.qualtrics.com/jfe/form/SV_3F4B57bzlI7vBOK

πŸ“§ mitchell.smith@monash.edu

πŸ’œ SA Parent Advisory Group – INTEGRATE Study (Adelaide University)
For parents of young people aged 10–18 living with chronic pain in South Australia
β€’ 3–4 meetings per year
β€’ Safe and respectful space to share your insights
β€’ Gift vouchers provided for your time
β€’ APPLY NOW: https://redcap.link/38g4jtlr

By sharing your experience, you can help shape better healthcare for children living with pain, now and into the future.

For all the latest Research Opportunities visit:
πŸ‘‰ www.chronicpainaustralia.org.au/research

19/02/2026
16/02/2026

Don’t know where my little one would be without this amazing clinic 🫢 He has been attending since he was 18 months old and he is now 6.5yo πŸ™ŒπŸ’™

11/02/2026

After much heart, hard work, and collaboration, the Dysautonomia New Zealand Foundation has officially launched. This foundation was created by myself and some truly wonderful colleagues (Greer Pugh Scott Peirce, Brooke peirce Anita Crawshaw, Dr Jenny Butler) who saw a gap and need within our clinic...

24/01/2026

πŸ”₯ Just published: A new paper by Dr. Blitshteyn and Dr. Grubb in the Journal of Psychosomatic Research where the authors emphasized, based on their experience and expertise, that distress in patients with POTS are driven predominantly by ineffective healthcare and not patients' attitude. This paper was in response to a UK study that suggested that patients with POTS need to be treated with cognitive-behavioral therapy because they were distressed. As a counterpoint to the study's conclusion, Dr. Blitshteyn and Dr. Grubb argued that there is a great need to treat patients with POTS with medications targeted to reduce autonomic symptoms, which then results in reduced disability and distress.

Read full paper here: πŸ‘‡
https://t.co/xFnY0QGhPr

08/01/2026
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01/12/2025

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30/11/2025

✨ Quick Facts About Ehlers-Danlos Syndromes (EDS) ✨
May is EDS Awareness Month, and here are 8 key facts about EDS and related conditions like HSD.

πŸ“Œ Save and share to help raise awareness!

Address

Melbourne, VIC
3192

Opening Hours

Tuesday 10am - 2:30pm
Wednesday 10am - 3:30pm
Friday 9:30am - 1:30pm

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