Ladies Night Out

15/09/2025

🎤 Speaker Announcement – 4th Sickle Cell Conference 2025🎤
🗓 Date: 24th October 2025
📍 Location:Perth Children's Hospital

We are thrilled to announce one of our esteemed speakers for the upcoming 4th Sickle Cell Conference, a pivotal event bringing together leading minds, healthcare professionals, researchers, and advocates committed to transforming the future of sickle cell care.

🌟 Prof. Joy Ho AM is Clinical Professor at the University of Sydney and a Senior Staff Specialist, Royal Prince Alfred Hospital.

She has had a long history of working in myeloma, with interests in the molecular pathophysiology, immunolopathology and clinical trials.

She was the President of the Haematology Society of Australia and New Zealand 2013-15, a member of the International Myeloma Working group (IMWG), and on the Scientific Advisory Board of the International Myeloma Foundation.

She was previously Oxford Nuffield Medical Fellow, University of Oxford where she undertook doctoral studies, Visiting Associate Professor at Cornell University, chair of the Laboratory sciences committee of the Australasian Leukaemia and Lymphoma Group (ALLG) and a member of the ALLG Scientific Advisory Committee.

She is currently the Principal Investigator of the ALLG MM16 myeloma clinical trial. She is author of multiple publications on myeloma, thalassaemia and iron pathophysiology.

Join us for a day of powerful discussions, shared experiences, and the latest advances in research, treatment, and advocacy.

🎟 Tickets are now available 👉🏾: https://events.humanitix.com/4th-australian-sickle-cell-conference

Let’s work together to elevate awareness, improve care, and support those living with sickle cell disease.

15/09/2025

❣️Join Us for the 4th Australian Sickle Cell Conference

📅 Date: 24 October 2025
📍 Location: Perth Children’s Hospital,
15 Hospital Ave, Nedlands WA 6009

Australian Sickle Cell Advocacy Inc. (ASCA), in collaboration with the Haematology Team at Perth Children’s Hospital, is proud to host the 4th Australian Sickle Cell Conference.

This year, the conference comes to Western Australia, thanks to the strength and dedication of local warriors, families, and advocates.

With past conferences held in NSW and VIC, we’re excited to spotlight the voices of WA’s sickle cell community, bringing together patients, carers, healthcare professionals, and supporters for a powerful day of learning, connection, and action.

With over 1,000 sickle cell warriors across Australia, primarily in VIC, NSW, QLD, WA, and SA, this event continues our shared mission:
🔬 To improve health outcomes and promote equity for all those living with sickle cell disease.

💡 Whether you're a healthcare provider, patient, caregiver, or advocate, this is a must-attend event.

👉 Register now: https://events.humanitix.com/4th-australian-sickle-cell-conference

📩 Questions? Contact us on info@aussicklecelladvocacy.org

15/09/2025

15/09/2025

15/09/2025

15/09/2025

🌟Exciting News!🌟

We’re proud to announce that Australian Sickle Cell Advocacy Inc has been named a Finalist in the 2025 Health Industry Hub Awards !🏆

This recognition highlights our commitment to advocacy, awareness, and support for individuals and families affected by sickle cell disease across Australia.

The awards ceremony will take place on 16th October 202, and we’re honoured to be standing alongside so many incredible organisations driving change in the health sector.

Thank you to our community, supporters, and collaborators, this achievement is a reflection of your continued belief in our mission.

Thank you Rozalina Sarkezians and the team at Health Industry Hub for this initiative and recognition.

Join the award ceremony by purchasing your tickets via this link: https://www.healthindustryhub.com.au/ticket-sales-health-industry-hub-awards-2025/

15/09/2025

4th Australian Sickle Cell Advocacy Inc. Conference🔊

In about two months, Australian Sickle Cell Advocacy Inc. (ASCA) will be hosting the 4th Sickle Cell Conference, taking place on 24th October 2025 at Perth Children's Hospital.

This year’s conference brings together leading clinicians, researchers, policymakers, and patient advocates to share insights and drive change in sickle cell care and advocacy across Australia.

From cutting-edge research to personal lived experiences, we will bring a unique perspective to our collective mission: improving outcomes and equity for those living with sickle cell disease.

💡 Whether you're a healthcare professional, patient, carer, or advocate, this conference is a must-attend!

📅 Save the Date: 24 October 2025
📍 Location: Perth Children's Hospital
15 Hospital Ave Nedlands WA 6009

Ensure to register via this link to join us: https://events.humanitix.com/4th-australian-sickle-cell-conference

For any inquiries contact us on info@aussicklecelladvocacy.org

Let's continue working together to raise awareness, push boundaries, and inspire hope.

15/09/2025

🔊 Speaker Announcement – 4th Australian Sickle Cell Advocacy (ASCA) Inc. Conference.

We are proud to unveil the distinguished speakers for the 4th Australian Sickle Cell Advocacy Inc. (ASCA) Conference, taking place on 24th October 2025 at Perth Children's Hospital.

This year’s conference brings together leading clinicians, researchers, policymakers, and patient advocates to share insights and drive change in sickle cell care and advocacy across Australia.

We are thrilled to have Hon Matt Swinbourn MLC and Hon Ayor Makur Chuot MLC as Guests of Honour representing the WA State Government.

We are also grateful to have clinicians from different parts of Australia each contributing their knowledge and commitment to improving outcomes for individuals and families affected by sickle cell disease.

From cutting-edge research to personal lived experiences, each speaker brings a unique perspective to our collective mission: improving outcomes and equity for those living with sickle cell disease.

💡 Whether you're a healthcare professional, patient, carer, or advocate, this conference is a must-attend!

Thank you to the Haematology Team at the Perth Children's Hospital and Health Service for supporting this event.

📅 Save the Date: 24 October 2025
📍 Location: Perth Children's Hospital
15 Hospital Ave Nedlands WA 6009

Ensure to register via this link to join us: https://events.humanitix.com/4th-australian-sickle-cell-conference

For any inquiries contact us on info@aussicklecelladvocacy.org

Let's continue working together to raise awareness, push boundaries, and inspire hope.

19/06/2025

🌍 World Sickle Cell Day | June 19 🔴
💡 on Sickle Cell Disease

Today, on World Sickle Cell Day, we stand in solidarity with millions of individuals and families affected by Sickle Cell Disease (SCD), a genetic blood disorder that still lacks widespread awareness and equitable access to care.

As part of the global movement, landmarks and buildings around the world will glow red to on SCD.

In Australia, the buildings below will in tonight.

This powerful symbol serves as a reminder that awareness can drive action and action can change lives.

🔴 SCD affects over 20 million people globally
🔴 Many face chronic pain, organ damage, and limited treatment options
🔴 Early diagnosis and access to comprehensive care are critical

💬 Let’s keep the conversation going. Share, post, and educate. Advocacy begins with awareness.

To everyone living with SCD — your strength inspires us.
To healthcare providers, caregivers, researchers, and advocates, thank you for your tireless work.

Together, we can push for better treatment, equitable care, and a brighter future.

If you are near any of these buildings, please take a photo and post on social media tagging Australian Sickle Cell Advocacy Inc. Together, we will break the stigma attached to discussing Sickle Cell Disease.

18/06/2025

📻 New Community Radio Program Launches to Promote Sickle Cell Awareness and Mental Health – A First for South Australia

We are proud to announce the launch of a groundbreaking community radio program led by the Australian Sickle Cell Advocacy Inc (ASCA) – South Australia Chapter, dedicated to raising awareness about sickle cell disease and promoting mental health well-being across multicultural communities.

The initiative is hosted by passionate advocates Mwewa Chisenga MBA CA and Musonda Chisenga, both of whom bring lived experience, community insight, and a powerful vision for change.

🎙️ Why This Program Matters

Sickle cell disease (SCD) is an inherited blood disorder that disproportionately affects people from African, Middle Eastern, Indian, and Mediterranean backgrounds. Despite this, awareness of the condition remains low in Australia, particularly in culturally and linguistically diverse communities.

Many individuals and families affected by SCD face not only medical challenges but also emotional, social, and mental health hurdles – often in silence. This new radio platform aims to change that.

🌍 What Listeners Can Expect

The radio show is more than just a source of information – it's a safe space. Each episode will explore:

* Real-life experiences of people living with sickle cell disease
* Conversations around mental health stigma
* Culturally tailored health education
* Expert interviews with clinicians, advocates, and counsellors

🤝 Community-Led & Focused

This initiative exemplifies the power of community-led advocacy. Mwewa and Musonda Chisenga have long been voices for equitable healthcare access and mental health support. Their commitment ensures the program remains inclusive, educational, and inspiring.

📡 How to Tune In

Follow via link here https://open.spotify.com/show/6IZ3MIcbm3mjDxC25FiWEA?si=oZVzF4J1R9KToDLn20DWFQ

Whether you’re a patient, carer, healthcare professional, or community ally, your voice and engagement are welcome.For the first episode, listen in as John Mannion discusses the psychosocial impacts of living with SCD.

09/06/2025

World Sickle Cell Day Event in

World Sickle Cell Day is recognised globally on 19 June each year to raise awareness and support for individuals living with sickle cell disease.

As part of these efforts, Australian Sickle cell Advocacy Inc Queensland will host a Family Education Day in Brisbane, focusing on the unique challenges faced by sickle cell warriors and their families.

Brisbane Event – 26th June 2025 ‼️‼️

Join us for an informative and supportive gathering to discuss key issues impacting the sickle cell community.

📍 The Mater - Dome Room Salmon Building
⏰️ From 4:00 PM

We are grateful for the sponsorship of the Mater Foundation ‼️‼️❤️

Save the date – we can’t wait to welcome you!

Register for free via this link:https://events.humanitix.com/copy-of-world-sickle-cell-day-2025-brisbane