28/02/2026
On , we are raising awareness of erythropoietic protoporphyria (EPP).
This rare disease impacts 5,000-10,000 people globally and is difficult to diagnose, with patients waiting an average of 13 years between onset of symptoms and a diagnosis.
CLINUVEL is committed to advancing the care of people living with EPP so they can receive the treatment they need and reduce time to diagnosis.