27/02/2025
Music Therapy story #16
While we wait to hear the outcome of the NDIS independent review I'm feeling so validated to continue to hear these stories of music therapy making a difference in people's lives, while also feeling immense sadness that these outcomes don't seem to be valued by our government or healthcare decision-makers.
Music therapy has, in my opinion, been one of the most vital supports that Charles has received through the NDIS. His brain cancer is destroying his ability to continue functioning as he used to: he's no longer able to work and this was an important part of his identity; he can no longer communicate easily with his family and friends as he can no longer draw from his memory, or follow a conversation thread; and he's no longer able to undertake the standard household tasks that are part of being a parent to teenage kids like driving them to activities, cooking dinner, doing household chores, or working in the garden. The only element that remains unharmed is his love and appreciation of music.
Though Charles's memory is failing him, he is often aware of the fact that his memory no longer works. This causes him significant distress because he is worried about being a burden on me and our daughters and not being able to share the mental and physical load of running a household. Since starting music therapy, I often spot him sitting and singing quietly to himself. When I approach and listen, I realise he's singing about his difficulties and his sadness and stress at the current situation. He's essentially voicing his worries in the form of songs he's making up on the spot. I'm so grateful that - through singing - he's able to get some of the stress and worries out of his body. This response is entirely due to music therapy, as it's not something he ever did beforehand. Though the reflections he's singing about are often weighed with sadness, he's not distressed when he's singing them. Rather, he seems to be finding a way to articulate his sadness and process it.
(Sarah, Charles’s wife).
*Story shared with consent
*Stock photo used