21/01/2026
Lewis’ story is a powerful reminder that your voice matters.
Advocacy is about recognising subtle changes, understanding what to look for and having the confidence to trust your instincts when something doesn’t feel right.
Our medical system under immense pressure and the reality that parents often see the earliest signs of deterioration long before they show up clinically. And when those signs are missed, the consequences can be devastating.
I have seen over and over that it is parents who save lives. They notice the subtle changes and they sense when something is not right. But intuition alone is not always enough. Parents need education, clarity and confidence to speak up and act early.
Thank you to Lewis’ parents for sharing his story and the strength they showed when advocating for their sweet boy 🤍