Sunflower Heroes

28/02/2023

Individuals living with disabilities often require extra support for day-to-day tasks, but if their disability isn't visible, it can be difficult to spot.

Thankfully, there exists a fantastic initiative – the Hidden Disabilities Sunflower – designed to help highlight visible disabilities, increasing visibility and making it easier for those affected to access the help they need!

Read the full blog: -https://sclerodermavictoria.com.au/hidden-disabilities-sunflower-shining-the-light-on-non-visible-disabilities/

27/02/2023

📷 FRIDAY FRAME TIME 📷

🙌 A great way of raising awareness and showing your support for is to use a profile frame for your social media!

✨ With many different frames for Facebook, Instagram, LinkedIn and TikTok, show off your best angles in an easy and fun way!

(🤞 Remember first to save your current profile picture to use it after !)

👉 Check out the tutorial on how to create your profile frames and add them to your profile pics NOW: https://cutt.ly/w9tI5Pb

22/02/2023

Fatigue is a common issue for people living with scleroderma. It’s one of the top three symptoms that bother people living with scleroderma.

Read on for some suggestions to help you manage your fatigue:

https://sclerodermavictoria.com.au/4-useful-tips-to-help-you-manage-your-scleroderma-fatigue-symptoms/

22/02/2023

There are over 300 million people worldwide living with a rare disease.

Together across borders, and across the 6000+ rare diseases, we work towards more equitable access to diagnosis, treatment, care, and social opportunity.

Let's all join in spreading the word about Rare Disease Day 2023!

Find their resources here: https://www.rarediseaseday.org/what-is-rare-disease-day/

20/02/2023

Raynaud’s (sounds like “RAY-nose”) phenomenon is a circulation condition that often affects people with scleroderma. As you may already know, it makes your
fingers and toes feel numb and cold.

It's the most common early symptom of scleroderma, and is present at one time or another in about
90% of people with scleroderma.

Remember - it's important to seek medical advice if you have any concerns regarding Raynaud’s! Early treatment may lead to better outcomes.

Learn more about Raynaud's Phenomenon and scleroderma in our FREE brochure:

Click here to accesshttps://www.sclerodermaaustralia.com.au/wp-content/uploads/2020/10/Scleroderma-Aus-Raynauds-Brochure-web.pdf

20/02/2023

MEMBERSHIP is the LIFEBLOOD of Scleroderma Victoria and Australia, and we would not exist without our extraordinary community
of supporters!

Join us in finding promoting awareness and finding a cure for this rare condition.

Become a member today!🌻
➡https://sclerodermavictoria.com.au/join-us/

20/02/2023

On Rare Disease Day 2023, people with scleroderma and their families can raise awareness about scleroderma by sharing their stories and experiences, and by educating others about the challenges they face.

07/06/2022

As part of World Scleroderma Month 2022, we're asking you to show your support through our Snuggle Up for Scleroderma fundraising appeal.

Join our Snuggle Up event and keeping warm this June.

Your donation will go directly towards helping fund a specialist scleroderma nurse, improving access to medical care for people living with scleroderma.

https://www.justgiving.com/campaign/Snuggleup2022

Will you Snuggle Up for Scleroderma Australia and help raise funds for a specialist scleroderma nurse?

31/12/2021

Scleroderma Victoria wishes you you a joyous holiday season and a happy and peaceful New Year. 🌻🎇

16/12/2021

30/11/2021

Scleroderma Australia will be challenging supporters to participate in the Icy Hands Challenge™ to replicate the feeling of Raynaud’s Phenomenon. A condition that causes reduced blood flow to the hands and feet causing coldness, pain and restricted mobility. 90% of people with Scleroderma have Raynaud’s.

The launch is on Saturday December 4 2021, at 2 pm, via Zoom. You can attend this event by registering on Eventbrite.

Scleroderma Australia and the Scleroderma Foundation, Southern California Chapter will be co-hosting a launch event for the Icy Hands Challenge™

https://www.eventbrite.com.au/e/icy-hands-challenge-tickets-218901659757

Icy Hands Challenge™

05/11/2021