Australian & New Zealand Fontan Registry

Home
Australia
Melbourne, VIC
Australian & New Zealand Fontan Registry

The Australian and New Zealand Fontan Registry page provides a community for children, youn Welcome to the Fontan Registry!

As a participant, parent or friend of the Registry, we invite you to join this community to share information and collaborate with other members. This page has been created by the Registry to build a forum where doctors and patients can ask questions, share their experiences and even guide future research. The Fontan Registry is the largest Fontan database in the world, providing the community with information to help improve the long-term health of patients and explore different treatment options. Despite being around for 40 years, there are still many things we do not know about the future of the Fontan procedure. By helping us ask important questions through research projects, you can be involved in providing the whole Fontan community with a better future.

09/10/2025

Hey there, we need you! Have you had the Fontan Operation?
We are currently recruiting ADULT participants and based in Sydney, Perth and Melbourne to get onboard the Congenital Heart Fitness Intervention Trial (CH-FIT). If you are interested in finding out more including eligibility criteria, please connect at
fmh.ch-fit@sydney.edu.au

03/10/2025

The 12th Annual Fontan Education Day proudly presented by the Australian & New Zealand Fontan Registry, in collaboration with the ANZ Fontan Community and HeartKids, is a unique opportunity for attendees to hear and learn from specialists in paediatric and adult cardiology and from people living with a Fontan circulation. Important topics about the health care journey will be explored, as well as the lived experience.
Please click on the following link
https://us02web.zoom.us/webinar/register/WN_vRdfS8sjRYKNCUUpoZOQTQ
After registering, you will receive a confirmation email containing information about joining the webinar.
Keep an eye on our page for more details of the program and guest speakers.
We can't wait to see you there!

01/10/2025

GET READY, GET SET.......
The 12th Annual Fontan Education Day is coming! We are busy finalising the well anticipated schedule for the day and we can't wait to share it with you!
Registrations open this Friday 3 October 2025 at 5pm AEST!

25/09/2025

This coming Monday, 29 September 2025 marks the 25th anniversary of World Heart Day! Every year on this day, we celebrate World Heart Day and it reminds us of the importance of having a balanced lifestyle to reduce risks and promote heart health. Together, let's raise awareness and 'Dont miss a beat' in encouraging heart health!

16/09/2025

Let's get to know our team... Say "Hello" to Dr Cameron Seaman! Dr Seaman is a Consultant Paediatric Cardiologist who specialises in Interventional Cardiology and also based in Perth WA.
What a perfect day to introduce Dr Seaman as TODAY is International Day for Interventional Cardiology!! We celebrate and thank our interventional cardiologists for their specialised care of our fontan community!
Welcome Dr Seaman to the Australian & New Zealand Fontan Registry Steering Committee.

11/09/2025

Today is our National Day of Action, R U OK? Day which reminds and encourages us to ask R U OK? on any day.
A conversation could change a life..
If you or someone you know is doing it tough, please reach out to someone you trust, a friend, family member or health professional today!
You are not alone on this journey.

04/09/2025

Let's get to know our Team... Say "Hello" to Dr Jelena Saundankar! Dr Saundankar is a Consultant Cardiologist in Perth WA and is member of the Australian & New Zealand Fontan Registry Steering Committee. Welcome Dr Saundankar..

01/09/2025

Announcement!! Save the Date.. The Annual Fontan Education Day is Coming! 9 November 2025, pencil it into your schedules, you will not want to miss it..!
In partnership with ANZ Fontan Community and HeartKids, the Australian & New Zealand Fontan Registry Annual Fontan Education Day will be held online via Zoom and at face-to-face education hubs around the country.
Registrations to secure tickets will open on 1 October 2025, keep an eye on our page and website for coming details, we can’t wait to see you there!

28/08/2025

Next week from 1-5 September is Australia’s Women’s Health Week. The largest event dedicated to the health and wellbeing of all women, girls and gender-diverse people. Let's start the conversation and raise awareness of things women's health, let's "Say yes to you." Stop by Jean Hailes for Women's Health to see how you or someone you know could improve or prioritise women's health.

15/08/2025

What a blast from the past! Lately, the team at The Fontan Registry have started our 'Spring Clean' early! Look what we have stumbled across.
The original works of The Fontan Registry's founder, Professor Yves d'Udekem!
Can anyone describe or explain what Yves was trying to teach here?
Not only a world class paediatric cardiac surgeon but Yves is an academic mentor, not only to those who work alongside him but also to his patients and families.
We want to take this opportunity to thank Yves for his ongoing contribution and care of patients with congenital heart disease.

07/08/2025

Hey there! Hope everyone is having a fabulous week! Just a friendly reminder to ensure we have your most up to date contact details..
If you have moved house or changed your phone number please stop by our website and click on the 'Update Contact Details' tab or alternatively click on the link provided https://redcap.mcri.edu.au/surveys/?s=FgnpPGcRG6

24/07/2025

DonateLife week is upon us starting this Sunday, July 27- August 3, 2025. Australia's national awareness week which reminds us to start the conversation about organ and tissue donation and get on board registering as an organ donor. You or someone you know could be the reason someone gets a second chance of life!
For more information about how you can get involved with raising awareness at your school, work or in your community or to register as an organ donor, please connect DonateLife

Address

50 Flemington Road
Melbourne, VIC
3052

Website

http://www.fontanregistry.com/

Alerts

Be the first to know and let us send you an email when Australian & New Zealand Fontan Registry posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Practice

Send a message to Australian & New Zealand Fontan Registry:

Shortcuts

Want your practice to be the top-listed Clinic in Melbourne?

Our Story: The Fontan Registry Australia and New Zealand

Welcome to the Fontan Registry! As a participant, parent, partner or friend of the Registry, we invite you to join this community to share information and collaborate with other members. This page has been created by the Registry to build a forum where doctors and patients can ask questions, share their experiences and even guide future research. The Fontan Registry is the largest Fontan database in the world, providing the community with information to help improve the long-term health of patients and explore different treatment options. Despite being around for 40 years, there are still many things we do not know about the future of the Fontan procedure. By helping us ask important questions through research projects, you can be involved in providing the whole Fontan community with a better future.

Please, don’t hesitate to share your journey, update your participant details, get involved in research, help us to raise awareness or simply get in touch if you would like to ask us a question. You can contact the Fontan registry via info@fontanregistry.com

Yves d’Udekem and Fontan Registry Team