Australian & New Zealand Fontan Registry

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Australian & New Zealand Fontan Registry

The Australian and New Zealand Fontan Registry page provides a community for children, youn Welcome to the Fontan Registry!

As a participant, parent or friend of the Registry, we invite you to join this community to share information and collaborate with other members. This page has been created by the Registry to build a forum where doctors and patients can ask questions, share their experiences and even guide future research. The Fontan Registry is the largest Fontan database in the world, providing the community with information to help improve the long-term health of patients and explore different treatment options. Despite being around for 40 years, there are still many things we do not know about the future of the Fontan procedure. By helping us ask important questions through research projects, you can be involved in providing the whole Fontan community with a better future.

01/09/2025

Announcement!! Save the Date.. The Annual Fontan Education Day is Coming! 9 November 2025, pencil it into your schedules, you will not want to miss it..!
In partnership with ANZ Fontan Community and HeartKids, the Australian & New Zealand Fontan Registry Annual Fontan Education Day will be held online via Zoom and at face-to-face education hubs around the country.
Registrations to secure tickets will open on 1 October 2025, keep an eye on our page and website for coming details, we can’t wait to see you there!

28/08/2025

Next week from 1-5 September is Australia’s Women’s Health Week. The largest event dedicated to the health and wellbeing of all women, girls and gender-diverse people. Let's start the conversation and raise awareness of things women's health, let's "Say yes to you." Stop by Jean Hailes for Women's Health to see how you or someone you know could improve or prioritise women's health.

15/08/2025

What a blast from the past! Lately, the team at The Fontan Registry have started our 'Spring Clean' early! Look what we have stumbled across.
The original works of The Fontan Registry's founder, Professor Yves d'Udekem!
Can anyone describe or explain what Yves was trying to teach here?
Not only a world class paediatric cardiac surgeon but Yves is an academic mentor, not only to those who work alongside him but also to his patients and families.
We want to take this opportunity to thank Yves for his ongoing contribution and care of patients with congenital heart disease.

07/08/2025

Hey there! Hope everyone is having a fabulous week! Just a friendly reminder to ensure we have your most up to date contact details..
If you have moved house or changed your phone number please stop by our website and click on the 'Update Contact Details' tab or alternatively click on the link provided https://redcap.mcri.edu.au/surveys/?s=FgnpPGcRG6

24/07/2025

DonateLife week is upon us starting this Sunday, July 27- August 3, 2025. Australia's national awareness week which reminds us to start the conversation about organ and tissue donation and get on board registering as an organ donor. You or someone you know could be the reason someone gets a second chance of life!
For more information about how you can get involved with raising awareness at your school, work or in your community or to register as an organ donor, please connect DonateLife

18/07/2025

Introducing Jane Campbell, Chairperson of ANZ Fontan Community.
Jane shares her own inspiring story, her experience of having a Fontan circulation and how she strives to support the Fontan community. Thank you Jane for sharing.
Please reach out and connect with ANZ Fontan Community

04/07/2025

Next week marks the start of NAIDOC Week, Australia's national celebration of the history, culture and achievements of First Nations Peoples. Taking place from 6-13 July 2025, we want to take the opportunity to recognise, celebrate and promote a respectful understanding of Australia's rich cultural history. Check out your local community events to get involved in the celebrations.
Image credit National NAIDOC

13/06/2025

Repost HeartKids! Next Friday on June 20, 2025, is the national Hero for HeartKids Day where we are encouraged to dress up as our favourite superheroes and raise funds for children with congenital or child-onset heart disease.
Whether you choose to dress up yourself or challenge your school or workplace to put on their capes, together we can raise awareness and vital funds to support the real HeartKids heroes. Please connect with HeartKids for more information.

06/06/2025

Next week from 9-15 June, 2025 we at Australian & New Zealand Fontan Registry, recognise and celebrate Australia’s incredible blood donors who make a difference to our community through generous life-saving blood donations.
Thank you for rolling up your sleeves for those that need it the most!
To check eligibility and to sign up to donate, please connect with Australian Red Cross Lifeblood

23/05/2025

Not long ago we farewelled Rebecca (Bec) Peters from the Australian & New Zealand Fontan Registry, and we want to Thank Bec for her dedication and support over the years to our Fontan Community. Bec is currently thriving in her nursing career and we wish her every success for the future.
Photo credit Murdoch Children's Research Institute - MCRI

15/05/2025

Hey there, we need you! Have you or your child had the Fontan Operation? We are currently recruiting participants aged 10-55 years and based in Victoria to get onboard the Congenital Heart Fitness Intervention Trial (CH-FIT). If you are interested in finding out more including eligibility criteria, please connect at
fmh.ch-fit@sydney.edu.au

24/04/2025

Tomorrow, 25th April 2025 marks 110 years since the Gallipoli landings and we at Australian & New Zealand Fontan Registry want to take the opportunity to reflect and commemorate the courage and bravery of those men and women who have served Australia and New Zealand.

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50 Flemington Road
Melbourne, VIC
3052

Website

http://www.fontanregistry.com/

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Our Story: The Fontan Registry Australia and New Zealand

Welcome to the Fontan Registry! As a participant, parent, partner or friend of the Registry, we invite you to join this community to share information and collaborate with other members. This page has been created by the Registry to build a forum where doctors and patients can ask questions, share their experiences and even guide future research. The Fontan Registry is the largest Fontan database in the world, providing the community with information to help improve the long-term health of patients and explore different treatment options. Despite being around for 40 years, there are still many things we do not know about the future of the Fontan procedure. By helping us ask important questions through research projects, you can be involved in providing the whole Fontan community with a better future.

Please, don’t hesitate to share your journey, update your participant details, get involved in research, help us to raise awareness or simply get in touch if you would like to ask us a question. You can contact the Fontan registry via info@fontanregistry.com

Yves d’Udekem and Fontan Registry Team