Chris has got cancer

Chris has got cancer Chris' Lymphoma Journey etc moving forward. Battle Stations!

06/11/2025

Another infusion finished. We've both found the 8 week break a bit disorienting, it's enough time to get out of the rhythm of it and forget small details. However, it went fine. The next one will be next year!

15/10/2025

Some very good news- Chris had a review with his Oncologist last night, and he was very happy! Chris's neutrophil count was over 3 (normal is 2 +), so Chris was able to begin his chemotherapy tablets again. He will take them for 2 weeks, have 2 weeks off and another review. If his immune system looks ok after that he will continue this pattern for probably a year.

Very happy!

29/09/2025

Fairly good news on the treatment front- post chemo blood tests show only a mild decrease in neutrophils (1.7 on Thursday last week, normal is 2 and above.) We anticipate they will increase over the next little while, and return to safe levels fairly soon. Chris is due to have another lot of blood tests next week and then a review with the Oncologist, with a view to restarting treatment on a more long term basis.

02/09/2025

Hi Friends, we haven't posted in a while so it's time for an update.

We had a wonderful trip to Bali! It was a beautiful time of much needed relaxation.

Chris did get 'Bali belly' over the last 3 days though, which was a bit concerning as his temperature remained quite high for quite a while, reaching up to 38.9 at the highest. Thankfully he was able to receive care from a good home visiting Doctor service (who came to the hotel room within 20 minutes of being contacted!) and was put on antibiotics straight away. He was Ok to fly home, and is now mostly better.

He had an appointment with the Oncologist today which was very encouraging. The bone marrow DNA tests came back showing absolutely no signs of lymphoma or any other damage. His immune system has also largely recovered from it's previous low level. He will be able to restart his chemotherapy tablets on Monday for 14 days, with another review by the Dr after that to see how he has responded. If things are OK he will be able to continue on that. He will have a Rituximab infusion on Thursday, and then it is projected that he will be on maintenance infusions every 2nd month for perhaps about 2 years.

29/07/2025

Chris saw the Oncologist again today for another review and it went well. His neutrophil count is holding after an injection on Thursday last week, and the Oncologist wished him a happy holiday. Next thing on the To Do list is to pack for Bali!

15/07/2025

We had quite an encouraging appointment with the Oncologist this afternoon when we got the bone marrow biopsy results. The Doctor is basically happy with things as they are, and he will continue to monitor things. Chris's Rituximab infusion is going ahead on Thursday.

Chris will need to have an immune system stimulating injection tonight (Filgrastim), and more blood tests to find out how it is working. He will continue to stay off his tablets, and the Dr will continue to monitor his neutrophil count. We will get some more complete results of the bone marrow biopsy in 2 weeks.

Chris's blood cells are still low (green is normal range).
06/07/2025

Chris's blood cells are still low (green is normal range).

17/06/2025

Complete metabolic response (remission)!

Neutrophils are low. Need to understand if it's the chemo that's done that or something else. So will have a bone marrow biopsy next week to do understanding. Still having rutuximab on Thursday.

Options are always ahead eg bio specific treatments or CAR-T. But that may be a later plan.

12/06/2025

Fairly big day today. Chris is having a PET scan this afternoon so we can find out if the treatment he has had so far has been effective. We get the results on Tuesday- that's also going to be a big day!

Chris's neutrophil count is still low (0.9 was the result we got yesterday- for context it should be at least 2). He has had to stay off his chemotherapy tablets, and had to give himself an immunostimulating injection yesterday. On Tuesday we will also find out what this means for his treatment options- whether he can restart the chemo he was having, or we have to switch to something else.

31/05/2025

We just wanted to update you on the latest blood test results- Chris's neutrophils are 3.8! They should be at least 2, so this is very comforting. We will contact the Lymphoma Nurse on Monday to get an idea of what to do next, but for now we are just enjoying the knowledge that Chris is safe.

Thanks everyone for your support and well wishes.

28/05/2025

We're having a bit of stress at the moment- Chris is really immunocompromised. Neutrophils are a type of white blood cell important in the immune system. We got some blood test results back during his last infusion on Thursday last week showing his neutrophil count was 0.6 (it should be at least 2). He halved his chemotherapy tablet dose and had an immunostimulating injection on Thursday, and got some more blood tests on Monday. We got the results back today and his neutrophils are 0.2. He has had to stop his chemotherapy tablets and begin immunostimulating injections at home. He will have some more blood tests on Friday, and he will begin his chemotherapy tablets again once his neutrophil count is above 1.0.

This is quite stressful, as it is unusual to have such a low count outside of hospital. Last time it was this low was a few days after his stem cell transplant, and there was a team of Nurses at the other end of the call bell, and a crash cart outside his door! Chris has to take his temperature four times a day, and if it goes above 38 he has to go to an Emergency Department.

This is quite challenging to deal with, especially with Emily working in Geelong for the rest of the week. We would really appreciate all thoughts, good wishes, prayers, etc that Chris's immunity would increase really quickly, and he would not have to go to hospital.

24/05/2025

Round 5 went ok.

feeling a bit nauseous and tired.

Neutrophils are down at 0.6, so definitely immunocompromised.

Got injected with some Filgrastim to bring those up and also halving the chemo tablets for now.

PET scan will be on Friday 13th!

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