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Yours Sincerely, Lupus

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Yours Sincerely, Lupus

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I want to help educate the world about a disease that affects many but very few know about, Lupus is an incurable disease that causes many things to happen that people do not physically see.

23/11/2025

29 and learning to thrive. Life is hard with lupus but I celebrate my birthday every year with gratefulness and thankfulness. Because another year means another year of beating lupus and working towards a life where I can function with lupus 💜

15/11/2025

👋 if you are someone who is really really sick and your doctor has given you numerous blood tests without any clear result about what it could be, it might be time to ask them to have your antibodies measured. It’s something that isn’t done often but your body could be telling you that you have an autoimmune illness. Don’t suffer for ages, sometimes it can take many years to be diagnosed with an autoimmune and so many people just suffer in silence and deal with it because the doctors can’t work it out. It took me 6 months to get a diagnosis and apparently that’s a quick diagnosis, but it felt like ages. Don’t just accept it, become your own doctor and ask your GP for further test. You know your body best trust your instincts!!

11/11/2025

My album 6 months ago when I was first diagnosed with TB. Being immune suppressed is challenging and it’s never ending of uncertainty when it comes to your health! I have finally finished all medication treatment for TB, that’s a whole lot of medication intake done. Things I won’t miss from my treatment plan include: vomiting for the first four months every single day every single meal, constant bad taste in your mouth and 10+ tablets a day (depended on the time of my treatment)! Things I have learnt and gained from this experience: a new appreciation for lung capacity, the importance of stopping and resting, learnt who is there for the good and the bad no matter what, how you might be replaceable but your spark is still valued. Thank you to this of you who visited me, called me, supported me, reminded me how tough I am and stood by me every step of the way. Getting through tough things requires people to support you otherwise it is super lonely. I am not going to lie there were some lonely times because it wasn’t like you could call your friend and talk about having the same symptoms lol it’s TB it’s not normal for Australians to have it haha but every day I got up I tried my best and that’s all I could do. Here’s to better things and no more hospital visits due to illness 🫶

19/10/2025

This time last week, some of my support crew and biggest advocates ran/walked at the Melbourne Marathon - Dairy Farmers 5km race. They advocated for lupus to be seen and heard 💜 so thankful and forever grateful xx

10/10/2025

6 months ago, I was diagnosed with a rare respiratory illness called Tuberculosis. At the time I wasn’t willing to share as it was a complete shock that I had the illness because as a young child I was vaccinated against the illness and the illness rarely effects Australian-born people. Over time, I have slowly shared the diagnosis with my loved ones. Today, I got the all clear that I am fully cured and have made a full recovery! To put into perspective how rare this illness is, in Australia there is approximately 1300 cases reported each year with most cases reported being someone who was born overseas. The Royal Melbourne Hospital have put my diagnosis as a case of bad luck and being immunosuppressed didn’t help my case! Over the last six months, I have taken approximately 1500 tablets to treat the illness (this doesn’t include any changes to my lupus medication) - there has been a lot of frustration, crying, laughing, ups and downs but I got through it.
Thank you to everyone, you know who you are. To those that visited me when I was really sick in hospital and at home, who called me to chat, checked in on me, to those at work who supported my return, the RMH doctors and nurses and to those who took me to my monthly hospital appointments- it has taken a large army people to get me through this and I really appreciate it!
Lupus warriors, whenever it gets hard turn to the people who care for you, it helps you so much get through the tough time! Here to better things and to TB getting lost! 👌Have a celebratory juice for me 🧃

01/08/2025

Flex Friday’s 😂 1 year of hard work in one photo - the conversation with my hospital team and specialists was that my weight was not helping my joints and my lupus 🙃 so I made a change, stuff happened it inspired me to be better and one year down here I am. I was triple digits this time last year in weight and now I’m 20kg down 🫶 proud of me, always remember lupus warriors if you put your mind to something and keep pushing through you will achieve great things! You can all be great 💜💜 keep striving to beat lupus, I am not going to lie and say I am so much better, I am not, I still have pain and have symptoms but I at least feel better about my body which helps me push through the tough days 💜 you got this and I believe in you 🫶

16/07/2025

Travelling with Lupus ~ Chasing the sun to help with my joint pain but of course my red cheeks are also here with me 😂

18/05/2025

5 weeks into treatment for my respiratory illness and 24 weeks to go 😳 getting stronger and better everyday. Over the last few weeks there have been a lot of reality checks like not being able to exercise as much, not being able to work as much, not being able to freely do what I want and being told that I will not be able to compete for most likely the rest of the year was probably the worst feeling. I have had mixed emotions about it but have also tried looking at the positives of how I am getting better even though I still have to take 18 tablets a day (at least it ain’t 22 😂). Slowly returning to work, slowly returning to exercise, slowly return to life the way it should be. Trusting the process and actually letting people in to help me which isn’t something I usually do. Thank you to everyone who has message or called or visited, it means more that you will even know and understand. I feel so blessed to have so many amazing people in my life 💜💜💜

10/05/2025

💜 10 May 2015 - World Lupus Day 💜

15/04/2025

**TRUST YOUR INSTINCTS**
Last week, my GP told me I couldn’t compete at the National Championships. It felt like the world suddenly tilted — dramatic, yes, but that’s truly how it felt in the moment. I was told I was too unwell to compete, but not quite sick enough for hospital care.

Something didn’t sit right with me, so I trusted my gut and took myself to the hospital. It turns out my condition was significantly more serious than anyone expected. I was immediately placed in an isolation room with extremely limited contact with the outside world for nearly a week.

Right now, I’m not ready to share the specifics of my diagnosis — it’s come as a shock, and I’m still adjusting. But I want to share this with my fellow lupus warriors: trust your instincts.

My condition is serious — not just for me, but also potentially for those around me. The specialist team told me that the situation SHOULD have been much worse, but because I actively look after my health, it likely helped lessen the severity.

The road to recovery will be long and will take the rest of the year, but I’m staying hopeful and focused on healing.

So I leave you with two reminders:
1. Always trust your instincts — no one knows your body like you do.
2. Look after yourself ALWAYS,because the strength you build now can carry you through the battles you don’t yet see.
💜

16/03/2025

Wondering what I have been doing… hello lupus warriors and my supporter, 2025 has started out very busy with appointments to track my lupus and support my fitness. The year has started with a focus on fuelling my body to help minimise the risk of a lupus flare up. Some weeks it has worked other weeks there is something that has triggered it and has been added to the don’t eat list! Super challenging but I love a challenge! My goal is still to show lupus that it won’t stop me, are you up for my 2025 journey?!

13/10/2024

I have been told many times that lupus will stop you from doing stuff like running, I have always wanted to prove this statement wrong and it’s been a challenge. Today, I proved this statement to be wrong and I ran at the if you haven’t worked it out when I’m in my element nothing stops me and today was an example of no matter what I got this if I put my mind to it, and also lupus you can go in the bin 🚮 💪👏

Address

Melbourne, VIC

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm
Saturday	9am - 5pm
Sunday	9am - 5pm

Website

https://selinkasif0.wixsite.com/yourssincerelylupus

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