17/10/2025
This National Carers Week, we recognise carers like Joshua Patrick. Josh, a Year 12 student, has been a carer for his beautiful sister, Charlotte Patterson, since he was six.
Charlotte, 11, was born with a rare and undiagnosed disease that puzzled doctors - and meant she needed round-the-clock care.
“From the age of six I learnt to change nappies, help with seizure management and give dozens of medications,” says Josh.
“Looking after Charlotte has definitely shaped me. It’s not only taught me about how to support someone with disabilities, but it’s also taught me how to face adversity.”
Josh now engages in advocacy work and is passionate about working with young carers, people with disability and their families.
“A lot of the advocacy work I do is talking to young carers and different organisations, teaching them how to support people with disabilities and undiagnosed syndromes, and young carers.”
He has given a TEDxYouth talk, been named Community Youth Citizen of the Year, Lions Youth of the Year State Winner, and volunteered at The Kids Research Institute Australia.
It was scientists at The Kids, together with Perth Children’s Hospital, who were finally able to pinpoint the cause of Charlotte’s undiagnosed disease – and give her a diagnosis.
“That was a very exciting night - a real celebration of Charlotte’s diagnosis. We have a bit of a guidebook now, and a community. It has really made a difference.”
Read more about the work of our researchers, which is giving hope to kids like Charlotte and providing answers to carers like Josh: https://shorturl.at/qFoAN
Perth Children's Hospital and Health Service | Telethon7 Perth