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Down Syndrome NSW

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Parramatta, NSW
Down Syndrome NSW

Down Syndrome NSW works with passion to support people with Down Syndrome and their families
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Down Syndrome NSW champions the right of people with Down syndrome to have the same access to society as everyone else. This means the right to health, education, work, family and being part of the community.

23/09/2025

Transition to Kindergarten Workshop

Is your child starting Kindergarten in the next couple of years? Join us for an informative workshop designed to support families as they navigate this important milestone.

Led by Alison Maunder, DSNSW Education Manager, this session will cover:

✔ What to expect during the transition to Kindergarten
✔ Understanding your schooling options
✔ Your child’s rights and entitlements in the education system
✔ Tips for building positive relationships with your child’s school
✔ A chance to ask questions and connect with other parents

Whether you’re feeling confident or a little unsure, this is a safe space to share, learn, and feel empowered as you support your child’s start to school.

👉 Register here: https://events.humanitix.com/inclusive-education-for-parents-and-carers-transition-to-kindergarten-qg9ecc7k

23/09/2025

Guess who’s coming to UP! For Fun? 👀

🧜‍♀️ Everyone’s favourite mermaid
🦸 A superhero friend you won’t want to miss
🎶 Plus live music and entertainment!

Don’t miss this magical day out in the Royal Botanic Garden Sydney celebrating Down Syndrome Awareness Month.

💲 FREEto attend — just register through the link in the bio or click here: https://events.humanitix.com/up-for-fun

22/09/2025

School Holiday Fun! 🎉

Looking for something exciting to do these school holidays? Thanks to Belongside Families, we have a wonderful last-minute opportunity!

Down Syndrome NSW is teaming up with We Rock the Spectrum - Sydney West NSW for an afternoon packed with fun, energy and connection. This free event is for children aged 6–17 who have Down syndrome, their siblings and their parents/carers.

📅 Date: Saturday 27 September 2025
🕑 Time: 2:00 pm – 4:00 pm
📍 Venue: Unit 2/1345 The Horsley Dr, Wetherill Park
💲 Cost: Free

Enjoy two hours of inclusive activities designed to support strength, movement, sensory processing, communication, social skills and more, all in a safe and fun environment.

🍱 Bring along a packed lunch, water bottle, comfortable clothing and socks for play.

✨ Register here: https://events.humanitix.com/up-up-and-away-school-holiday-day-out-with-we-rock-the-spectrum

22/09/2025

Volunteer Opportunity with Down Syndrome NSW

We’ve received a generous donation of gifts for new parents and their babies and we’d love your team’s help packing them!
These gift packs are our first connection with families, delivered by our Congratulations Initiative Lead, Melissa, who shares her lived experience as a mum. Families often tell us this support makes them feel less alone at such a pivotal time.

Hear one family’s story: https://www.youtube.com/watch?v=hoKYMLe-NkE

- Volunteer dates available in October
- Small groups welcome
- Opportunity includes the chance to become a Bronze Champion of Change - www.downsyndromensw.org.au/get-involved/become-a-champion-for-change

Interested? Let’s chat! Send us a DM or email partnerships@downsyndromensw.org.au

22/09/2025

A huge thank you to McDonald's Pharmacy in St Ives for championing inclusion and supporting Down Syndrome NSW.

Your in store donation box helps fund our work across NSW: family support, information and referral, community inclusion, and adult life pathways such as employment and independent living.

If you are visiting the store, please ask about the box and consider contributing.

We are grateful to Chantelle and the whole team for being part of our community!

18/09/2025

Celebrating Hugo’s Achievements! 🎉

We are so proud to share some wonderful news about our member, Hugo Kato.

Hugo, 18, will be graduating from high school on the 22nd of September, and what a way to finish his school years!

This weekend, Hugo represented the Sydney East Trampolining Team at the NSW Championships, where he took out 1st place in trampoline 🥇👏

Hugo only began competing last year, when he placed 1st in trampoline and 3rd in Double Mini at his very first competition.

What an incredible journey, from starting trampolining in 2023 to becoming a NSW Champion in 2025!

Please join us in congratulating Hugo on these amazing achievements. We can’t wait to see what’s next for him!

17/09/2025

A big thank you to Source Legal one of our valued Silver Champions for Change!
Pictured here at our Donor Recognition Event at Government House, where we proudly celebrated the incredible supporters who make our work possible.
Your business has the power to create real change.

Partner with Down Syndrome NSW to build inclusive opportunities and brighter futures.

Let’s chat – send us a DM or head to the link in our bio to learn more.

16/09/2025

This week marks Dementia Action Week – an important opportunity to learn, share and stand alongside those living with dementia.

For people with Down syndrome, the risk of developing dementia is higher, it can begin earlier than in the wider community, and the signs may look a little different. Many families start to see changes in memory, thinking or behaviour from around the age of 50, which can be confronting and difficult.

The 2025 theme, “Nobody can do it alone,” is a reminder that connection, awareness and support are vital. A few ways we can all make a difference include:

- Encouraging healthy routines such as good nutrition, quality sleep, and social and mental stimulation.
- Paying attention to changes in mood, behaviour or memory, and seeking advice promptly.
- Getting involved in research and advocacy to build knowledge and improve treatments.

Providing everyday support and respect, which is key to wellbeing and quality of life.

📚 Find tailored resources for people with Down syndrome and their families through Down Syndrome Australia's resource hub: https://buff.ly/vrmg00n

For more about dementia and Down syndrome, visit Dementia Australia: https://www.dementia.org.au/about-dementia/down-syndrome-and-alzheimers-disease

16/09/2025

Join Us for UP! For Fun: Celebrating Down Syndrome Awareness Month.

We’re excited to invite you to UP! For Fun our annual community celebration held in the beautiful Royal Botanic Garden Sydney this October, as part of Down Syndrome Awareness Month.

This inclusive and heartwarming day brings together families, friends, and supporters to celebrate people with Down syndrome through joy, connection, and fun.

✨ Enjoy games and activities for all ages and abilities
✨ Live performances and entertainment
✨ Special visits from a magical mermaid 🧜‍♀️ and a superhero 🦸
✨ Delicious food and drinks available, or bring your own picnic hamper

💲 FREE event – everyone is welcome!

📅 Date: Sunday 19 October 2025
📍 Royal Botanic Garden Sydney

REGISTER: https://events.humanitix.com/up-for-fun

16/09/2025

Bring the whole family for a day of joy at UP! For Fun!

- Games for all ages and abilities
- Food and drinks available (or BYO picnic)
- Live entertainment and kids’ activities

It’s a day to celebrate inclusion, community, and the amazing achievements of people with Down syndrome. 💜

📅 Sunday 20 October
📍 Royal Botanic Garden Sydney
💲 Free event

Register through the link in the bio or click here: https://events.humanitix.com/up-for-fun

15/09/2025

New Babies Day – November 2025 👶

Our next New Babies Day is just around the corner, and we can’t wait to welcome our newest families!

This relaxed and supportive gathering is designed for parents and carers of babies aged 0–3 years, as well as prenatal families preparing to welcome a baby with Down syndrome.

We’re excited to be hosting a Key Sign Workshop – details coming soon!

📅 Date & Time: Saturday, 15 November, 11am – 3pm AEDT
📍 Location: Australian National Maritime Museum, Sydney NSW
Free for Down Syndrome NSW Members

Why come along?
✔ Meet other families and share experiences
✔ Connect with our supportive DSNSW team
✔ Access helpful resources in a welcoming setting
✔ Supervised sibling activities so parents can relax
✔ Grandparents and extended family warmly welcomed

Register: https://events.humanitix.com/down-syndrome-nsw-presents-congratulations-initiative-2025-november-new-babies-day

14/09/2025

Last weekend, Down Syndrome NSW enjoyed a visit to Ivy Alley in Annandale, to soak up the sunshine with Rachel, a wonderfully supportive and inclusive employer.

Rachel is excited to welcome a person with Down syndrome to her team. She'll provide all the training, is flexible with hours, and is happy to shape this role around the person's schedule, skills, and talents.

At Ivy Alley, the successful candidate will not only care for plants and work with people in a busy, thriving nursery, but will also have the chance to learn about horticulture and be part of the vibrant community of Merchant's Warehouse - a bustling antique warehouse right next door.

This is truly a role with room to grow, offering opportunities that will flourish with the right person.

If you or someone you know is interested, get in touch with us at admin@downsyndromensw.org.au to find out more!

Address

Parramatta, NSW

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Website

https://www.downsyndromensw.org.au/

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