Down Syndrome NSW

28/05/2026

Every donation helps create more inclusive futures for children with Down syndrome and their families 💙

From advocacy and parent support packs, to inclusive programs, educator resources, and early intervention support, your end of tax time donation helps fund practical support that changes lives.

$50 could help fund inclusive social and community programs that build confidence, friendships, and connection.

No matter the amount, every donation helps families feel more supported and less alone.

Make your tax-deductible donation before June 30 --> https://loom.ly/mxeO730

27/05/2026

Expressions of Interest – Your Outdoor Adventure Awaits!

We’re exploring an exciting new inclusive outdoor adventure opportunity for our community and we’d love to know who’s interested!

In partnership with Blue Mountains Climbing School, this Accessible Adventure will be a 3–4 hour guided experience, designed to support people of all abilities to get outdoors, try something new, and build confidence in a safe and supportive environment. There’s also the potential for a social catch-up afterwards to relax and connect with others.

Whether you’re local or happy to travel in, we’d love to hear from you!

To express your interest, email partnerships@downsyndromensw.org.au

27/05/2026

Share your story to support the advocacy of Down Syndrome organisations across the country.

How do you use social, economic and community participation funding in everyday life?

We want to hear from people with Down syndrome, families and support people.

Your answers will help DSA speak up to Government about the proposed NDIS changes.

It’s simple to take part. Just add a comment below.

Tell us how this funding helps in everyday life. For example, does it help you to:

– work in open employment
– work in supported employment or an ADE
– attend a day program
– catch up with friends or socialise
– volunteer in the community
– play sport or exercise
– get to medical or other appointments
– attend groups, programs or clubs
– take part in hobbies or activities you enjoy
– stay independent through things like shopping and errands

You can share one example or as many as you like.

26/05/2026

💙 We warmly invite families to join us for “Growing Connected: Move & Play” a FREE inclusive gymnastics experience for children and teens aged 6–17 with Down syndrome.

📅 Sunday 14 June 2026
⏰ 10:00am – 12:00pm
📍 Inner West Gymnastics Centre, Strathfield South
A morning filled with movement, fun, connection, and confidence-building in a supportive and inclusive environment.

🎟️ Limited to 20 participants
⏳ Registrations close 7 June unless filled earlier

Register at the link in our bio!

We can’t wait to welcome you! 🌟

25/05/2026

Come join us for a Sunday catch up live from UP! Club Camp - Golden Leaves Getaway.

UP! Club Facilitator and Camp Leader, Nikki, will bring the UP! Club campers and online participants together for a friendly chat over your morning coffee!

The campers will show you around the Rydges Resort Hunter Valley and share what they've done over the weekend. Online participants can share what they have been up to over the weekend!

This event is free to members, if you'd like to join please register. We hope to see you there!

Link: https://events.humanitix.com/camp_coffee_club

25/05/2026

We were sincerely grateful to the Gregorius Trust, recognised as a Silver Champion for Change at this year's Donor and Supporter Event held at Government House.

Their generous support of the Congratulations Initiative has helped us provide early, compassionate support to families following a diagnosis of Down syndrome.

Thank you for making a meaningful difference from the very beginning.

25/05/2026

This National Volunteer Week, we extended our heartfelt thanks to all the incredible community and corporate volunteers who dedicate their time, kindness, and passion to the Down Syndrome NSW community.

Our volunteers are a significant part of our community. Through their generosity, diverse experiences, and commitment, they help create meaningful connections, provide social support, and strengthen opportunities for people with Down syndrome and their families across NSW.

The 2026 National Volunteer Week theme, “Your Year to Volunteer”, is a reminder that volunteering is more than giving your time, it’s about creating impact, building community, and enriching lives, including your own. The benefits of volunteering extend far beyond yourself, fostering belonging, connection, and positive change for everyone involved.

We welcome you to volunteer with this year and become part of a supportive and passionate community.

If you are interested in community volunteer work with Down Syndrome NSW, please email your interest to volunteer@downsyndromensw.org.au.

If your organisation is interested in corporate volunteering for Down Syndrome NSW, please email partnerships@downsyndromensw.org.au.

25/05/2026

“The support we received from Down Syndrome NSW in Coco’s early years shaped not only her development, but the strength and confidence of our entire family.” 💙

For many families, the early years can feel overwhelming and uncertain. Access to support, connection, and trusted guidance during this time can make a lifelong difference.

This end of tax time, your donation helps more families like Coco’s access advocacy, education, community connection, and early intervention support when they need it most.

As Coco’s family shared:
“They were our reassurance, our guidance, and a source of hope.”

Donate before June 30 --> https://loom.ly/8E0GxZg

23/05/2026

We continue to advocate for people with down syndrome and their families in NSW, and alongside Down syndrome organisations across the country to ensure better outcomes for people with Down syndrome.

We know many people in our community are worried about the proposed NDIS changes and what they could mean for people with disability and families. We share those concerns.

Following more detail about the NDIS Bill introduced to Parliament last week, the DSA Consortium has now shared our initial thoughts on the proposed changes.

We outline some of the key areas we are concerned about and will be opposing in our submission to the Senate Committee, including:

• proposed cuts to social and community participation supports
• possible caps on supports
• changes that could place more responsibility on families

Read our initial thoughts: https://www.downsyndrome.org.au/blog/2026/05/22/ndis-bill-our-initial-thoughts-and-how-to-have-your-say/

22/05/2026

We were proud to recognise Eleah as a Silver Champion for Change at this year's Donor and Supporter Event held at Government House.

Eleah’s support has helped bring our end-of-year celebration and social disco to life, creating joyful and inclusive spaces for our community to connect, celebrate, and belong.

Thank you for helping us celebrate inclusion.

21/05/2026

The toddler years are some of the most important years in a child’s development 💙

For children with Down syndrome, early intervention can help build the foundations for communication, confidence, learning, and independence, while also supporting families through the journey ahead.

Your end of tax time donation can help more families across NSW access advocacy, resources, education, and connection when they need it most.

Donate before June 30 --> https://loom.ly/8E0GxZg