Hidradenitis Suppurativa Australia

25/04/2026

"They shall grow not old, as we that are left grow old:
Age shall not weary them, nor the years condemn.
At the going down of the sun and in the morning,
We will remember them

Lest we forget

As we commemorate ANZAC day I would like to take a moment to pause and reflect on those who protect us. The poppy flower is a recognisable symbol of remembrance used on ANZAC and remembrance days.

The red poppy is the most well-known symbol of ANZAC Day and remembrance. They represent the soldiers who died in war, inspired by the flowers that grew on the battlefields of World War I.

The white poppy is an international symbol of peace. Some people wear white poppies as a reminder of the importance of peace alongside remembrance.

Purple poppies recognise the animals that have served and suffered in wars, such as horses, dogs, and carrier pigeons. These animals played vital roles in transport, communication, and support during conflicts

Forever grateful to every ANZAC who fought to protect our freedoms and way of life.

Remember them
Honour them
Lest we forget

25/04/2026

"They shall grow not old, as we that are left grow old:
Age shall not weary them, nor the years condemn.
At the going down of the sun and in the morning,
We will remember them

Lest we forget

As we commemorate ANZAC day I would like to take a moment to pause and reflect on those who gave the ultimate sacrifice to protect us. The poppy flower is a recognisable symbol of remembrance for ANZAC and remembrance days.

The red poppy is the most well-known symbol of ANZAC Day and remembrance. They represent the soldiers who died in war, inspired by the flowers that grew on the battlefields of World War I.

The white poppy is an international symbol of peace. Some people wear white poppies as a reminder of the importance of peace alongside remembrance.

Purple poppies recognise the animals that have served and suffered in wars, such as horses, dogs, and carrier pigeons. These animals played vital roles in transport, communication, and support during conflicts

Forever grateful to every ANZAC who fought to protect our freedoms and way of life.

Remember them
Honour them
Lest we forget

24/04/2026

HS Awareness Week is just around the corner, and we’ve been working behind the scenes to bring you something truly special.

We are so excited for community events, meaningful moments, powerful stories and a few surprises we cannot wait to share

From purple-lit landmarks to connection, support, and raising our voices together, this is going to be one to remember.

Stay tuned, spread the word, and get ready to stand with the HS community 💜

09/04/2026

Our 10th April meeting is being moved to 17th April
Register for free here:

https://us06web.zoom.us/meeting/register/tZIoce-rqD8uGdCtig46B-pbPhEqZRTyUtiC

HAPPY NEW YEAR!!!!

2026 is here!!

A new year doesn’t have to mean a new you. It can mean being more true to you. A time to focus on your needs, your boundaries, your health and your voice.
As we step into 2026, HS Australia is looking ahead with purpose, compassion, and commitment to the HS community.

💜 Monthly support meetings will recommence in February, held on the first Friday of every month at 5pm QLD time

💜 We have partnered with Global Healthy Living Foundation for a very exciting awareness project and ready to hit the ground running! Still time to participate so reach out if you want your voice heard

💜 We are working on a new website with heaps of cool features set to go live in February!

Here’s to a year of honesty, support, and standing together, raising our voices.
2026 is here, are you ready for it?!

Happy New Year from all of us at HS Australia 💜

05/04/2026

🔬𝗛𝗶𝗱𝗿𝗮𝗱𝗲𝗻𝗶𝘁𝗶𝘀 𝗦𝘂𝗽𝗽𝘂𝗿𝗮𝘁𝗶𝘃𝗮 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵

ℹ Some interesting (i.e., free to read) (HS) that appeared in the PubMed database during March 2026.

📖To view and read plain language summaries of some of this latest HS research, visit the 🔗in the comments.

30/03/2026

Advocacy in Action!

As most everyone with HS knows, barriers to care are numerous and account for long delays of 10+ years from onset of symptom to diagnosis. Partnering up with Creaky Joints Australia, we have organised this amazing webinar: Hidradenitis Suppurativa (HS): From Early Recognition in Primary Care to Specialist Management

This webinar was designed to support early recognition and evidence-based management of HS in primary care settings. The presentation covered:

💜 How HS presents in general practice
💜 Core concepts in HS pathogenesis
💜 Diagnostic criteria and disease staging
💜 A holistic approach to management, including lifestyle measures, medical therapies, and emerging treatments
💜 Clear guidance on referral to dermatology

HS is more than a skin condition. It’s a complex, systemic disease and earlier recognition and intervention can make a life-changing difference. We shouldn’t be waiting 10+ years and conversation like these raise much needed awareness.

Thank you to everyone who attended and contributed to such an important conversation. Together, we are working to close the diagnosis gap and improve outcomes for the HS community in Australia and globally.

Presented by:
Dr Monica Narula – GP (MD DRANZCOG BSc (Hons) FRACGP)
Dr Helen Saunders – Dermatologist (B Med Sci MBBS FACD IFAAD)
Steph Friend- Director of Hidradenitis Suppurativa Australia, (BPSYSCI, BCCJ, GRADCERTFMH, MRC (Griffith))

Scan the QR code or copy the link to see the full video.


This video was made possible with support from UCB Australia

https://www.youtube.com/watch?v=bxKQsSeDtfo

25/03/2026

💜 💜 Advocacy in Action! 💜 💜

We had such an incredible time at our latest advocacy workshop.
From setting up powerful conversations to practical tools, this session was all about turning lived experience into real change

💜 Our biggest takeaways 💜

• Your voice truly matters
• People do want to help (they just need to hear from us!)
• Clear goals make advocacy stronger
• Connecting in a way that makes you comfortable is important
• You are never alone in this journey
• And every story shared brings us a step closer to change

Thank you to everyone who joined us. This is how change starts
Stay tuned because we will have more workshops soon.

23/03/2026

Tomorrow is the free advocacy workshop

16/03/2026

Next Monday!! Be sure to RSVP to join 💜

10/03/2026

HS Advocates Assemble!!

Our awesome Advocacy in Action workshop is on 24 March at 12:00pm VIC time.

If you’ve ever thought: “I want to help make change, but I don’t know where to start” this is the perfect place to start.

We’ll teach you how to advocate with confidence, purpose and power.
Let’s make noise. Let’s make change. Let's make our voices count.

Be there or be wishing that you were!

Message our socials, on our website or email us for your invite link!

This is completely free and we cannot wait to see you all.

09/03/2026

Second March Support Group Meeting. Make sure to re-register,

Slight time change for this one. It is for Friday March 13, 6pm QLD Time.

Due to the incredible interest in our March support groups, we’re holding a second meeting this month to make sure everyone has the opportunity to connect, share, and feel supported. 💜

Due to some changes, you will need to register again, even if you attended or registered previously. This helps us keep track of numbers and ensures everyone receives the correct meeting link and updates.

Our support groups are a safe space for people living with Hidradenitis Suppurativa (HS) to talk openly, ask questions, share experiences, and support one another.

💜 If you missed the first session, this is a great opportunity to join us.
💜 If you came along earlier in the month and would like to attend again, we’d love to see you!

🔗 Register here: https://us06web.zoom.us/.../register/Uo2NzaXZSPqErvJc-mF92w

Let’s keep building a community where no one feels alone with HS. 💜

05/03/2026

Hidradenitis Suppurativa Australia are proud to be partnering with GHLF Australia to amplify the visibility and impact of HS and strengthen treatment pathways for those living with the condition.

Hidradenitis suppurativa is a very under-resourced and often misunderstood skin condition. Our aims for this webinar are to increase awareness of HS among primary healthcare providers, provide practical information about diagnosis and treatment and elevate the standard of care for HS patients.

Please feel free to share with your GP, Dermatologist or someone you may know who lives with this condition. 11 March 2026 7pm AEDT

Register here:

https://ghlf.org.au/hsreg/