Hidradenitis Suppurativa Australia

16/03/2026

Next Monday!! Be sure to RSVP to join 💜

10/03/2026

HS Advocates Assemble!!

Our awesome Advocacy in Action workshop is on 24 March at 12:00pm VIC time.

If you’ve ever thought: “I want to help make change, but I don’t know where to start” this is the perfect place to start.

We’ll teach you how to advocate with confidence, purpose and power.
Let’s make noise. Let’s make change. Let's make our voices count.

Be there or be wishing that you were!

Message our socials, on our website or email us for your invite link!

This is completely free and we cannot wait to see you all.

09/03/2026

Second March Support Group Meeting. Make sure to re-register,

Slight time change for this one. It is for Friday March 13, 6pm QLD Time.

Due to the incredible interest in our March support groups, we’re holding a second meeting this month to make sure everyone has the opportunity to connect, share, and feel supported. 💜

Due to some changes, you will need to register again, even if you attended or registered previously. This helps us keep track of numbers and ensures everyone receives the correct meeting link and updates.

Our support groups are a safe space for people living with Hidradenitis Suppurativa (HS) to talk openly, ask questions, share experiences, and support one another.

💜 If you missed the first session, this is a great opportunity to join us.
💜 If you came along earlier in the month and would like to attend again, we’d love to see you!

🔗 Register here: https://us06web.zoom.us/.../register/Uo2NzaXZSPqErvJc-mF92w

Let’s keep building a community where no one feels alone with HS. 💜

05/03/2026

Hidradenitis Suppurativa Australia are proud to be partnering with GHLF Australia to amplify the visibility and impact of HS and strengthen treatment pathways for those living with the condition.

Hidradenitis suppurativa is a very under-resourced and often misunderstood skin condition. Our aims for this webinar are to increase awareness of HS among primary healthcare providers, provide practical information about diagnosis and treatment and elevate the standard of care for HS patients.

Please feel free to share with your GP, Dermatologist or someone you may know who lives with this condition. 11 March 2026 7pm AEDT

Register here:

https://ghlf.org.au/hsreg/

25/02/2026

We are still looking for people to come on board and share their HS story. Quotes, pictures, videos. You decide how you want to share for this awareness campaign. Your voice is valuable and there is some financial reimbursement available for this campaign. Please message for more info and let's bring HS out of the dark 💜 💜 💜 💜

We want and need your help to get the word out about HS. HS Australia has partnered with Global Health living Foundation to create an awesome Aussie awareness campaign and we want you to be part of it!!

Be creative, share your story and get in touch if you want to take part. Sharing photos, your words, in any way that makes you comfortable. You can remain anonymous/use a pen name or share your name. It's up to you but let's connect and make every year the best because HS is out of the darkness.

Feel free to email, contact us on socials or our website for more info or to share.

20/02/2026

Amazing meeting this week with federal member Kara Cook to discuss HS in Australia.
We are advocating hard for our HS community for:

💜 better wound care access
💜 more treatment options
💜 changes to MBS codes
💜 improved education and understanding among health professionals
💜 greater recognition of the daily impact of HS in Australia

You can help by sharing your story, joining us in awareness events, and know that every single step forward is a big leap for the HS community

16/02/2026

Advocacy in Action!! It was great meeting with Federal Member for Griffith, Renee today to chat all things HS. Want to advocate for HS? Share your story, write letters and chat with your local members about what you live with.

07/02/2026

You are invited to participate in a research survey exploring the relationship between nutrition and hidradenitis suppurativa (HS).

The purpose of this study is to better understand the food and nutrition habits of adults living with HS and how dietary changes may relate to HS symptoms. Participation involves completing an anonymous online survey that takes approximately 15 minutes.

Eligibility requirements:
Age 18 years or older
A diagnosis of hidradenitis suppurativa (HS)

Participation is voluntary. All responses are anonymous and will be used for research purposes only. Please review the information sheet before completing the survey.
>> https://docs.google.com/forms/d/e/1FAIpQLScIksoOfohzfcWvQJAvgICm5IGsJomTdqpDs11yLdtNeaqFAQ/viewform

If you have questions about the study, you may contact Margaret Kabakova at (845) 625-3643 or send an encrypted (secure) email to Margaret.kabakova@downstate.edu.

04/01/2026

Welcome to 2026.
Always a fun game to play to kick off a new year is where are you from? HS Australia is a national organisation, and we are based in the beautiful sunshine state, Queensland.

Summers get hot and humid which can make HS challenging and anything under 20 degrees celcius is considered winter.

So where are you from? How is your HS? What are your new year goals?

02/01/2026

HAPPY NEW YEAR!!!!

2026 is here!!

A new year doesn’t have to mean a new you. It can mean being more true to you. A time to focus on your needs, your boundaries, your health and your voice.
As we step into 2026, HS Australia is looking ahead with purpose, compassion, and commitment to the HS community.

💜 Monthly support meetings will recommence in February, held on the first Friday of every month at 5pm QLD time

💜 We have partnered with Global Healthy Living Foundation for a very exciting awareness project and ready to hit the ground running! Still time to participate so reach out if you want your voice heard

💜 We are working on a new website with heaps of cool features set to go live in February!

Here’s to a year of honesty, support, and standing together, raising our voices.
2026 is here, are you ready for it?!

Happy New Year from all of us at HS Australia 💜

01/01/2026

HS Australia 2025 Highlights

You will probably see a lot of very cool yearly wrap up posts and if you are getting through this year a little worse for wear, we understand because HS is tough

2025 has been a year of courage, momentum, and voices refusing to be ignored.

💜 We launched the HS Australia newsletter, creating a direct line of connection, education, and empowerment for our community

💜 HS Awareness Week was celebrated all across the country from WA to QLD with walks, in person meetings and real connection. Landmarks across Australia illuminated purple as a visual point for HS warriors

💜 We showed up, in communities, online, through advisory boards and meetings in Parliament, advocating for better care, improved access to treatment, and recognition of the very real challenges people with HS face, including wound care, stigma, and barriers within the health system

💜 International clinical trials day saw us chatting about HS with Sanofi

💜 Australasian College of Dermatologists 57th Annual Scientific meeting connecting with medical professionals about HS

💜 In December there was a new HS treatment listed on PBS for HS is a great step forward to more treatments and one day, a cure

💜 Met some amazing people who were interested in raising awareness of HS

💜In November the amazing supporters at UCB helped us get all the way to Parliament to talk wound care, barriers and changes to HS support. This would not have happened without their support so thank you to Penny, Rupert and the whole team! Shout out to the awesome Dr Ryan for showing up in Parliament for the HS community

💜HS Australia founder Steph publicly shared some of her HS journey with That’s Life! Magazine who reached an international audience. It’s very scary putting yourself out there but Steph is a warrior with her own lived experience and that empowers her to keep up the advocacy for changes we all need in the community

Thank you for an incredbile 2025!

05/12/2025

Some new news in the HS Space. Health Minister Mark Butler has announced new medicines on the PBS December 4th, 2025.

https://www.health.gov.au/ministers/the-hon-mark-butler-mp/media/cheaper-multiple-sclerosis-and-rare-cancer-medicines-now-on-pbs?language=en #:~:text=Bimekizumab%20(Bimzelx%C2%AE)%20will%20be,ongoing%20discomfort%20and%20emotional%20distress.

BIMZELX® (bimekizumab) is now listed on the Pharmaceutical Benefits Scheme (PBS) for adults with moderate to severe hidradenitis suppurativa (HS) who have not responded well to conventional treatments.

This is important news for the HS Community in Australia to have access to new treatments and accessible on the PBS