Invisible Illnesses Inc

Invisible Illnesses Inc Invisible Illnesses Inc. is a WA-based not-for-profit supporting those with invisible illnesses. You can compare notes, or just chat about anything.

We offer counselling, assessments, life skills, social support & more. You're not alone, explore our services & let us support your journey. Invisible Illnesses Inc

We are a registered Not-for-profit organisation based in the Western Australia. Our social events are an informal get-together for people with an invisble illness and their supporters . They are a great opportunity to meet people who really do understand. Our main support group is Invisible Illnesses Inc. https://www.facebook.com/groups/fibro.events/


If you want to receive our monthly email sign up here http://eepurl.com/cZ0daX

We are always looking for people to join our committee. If your interested please email us at hello@invisibleillnesses.org.au

Want to place an advert in our monthly newsletter? Please contact us at hello@invisibleillnesses.org.au

Hope to see you at an event or two

Michelle
President

๐Ÿ’œ Vote 1 for Lorna Buchan for MayorLorna has always been a strong voice for our community โ€” not just at election time, b...
10/09/2025

๐Ÿ’œ Vote 1 for Lorna Buchan for Mayor

Lorna has always been a strong voice for our community โ€” not just at election time, but all year round. She shows up, listens, and takes action.

๐ŸŒŸ Why Vote for Lorna?

She champions grassroots charities and understands the importance of supporting local organisations doing the hard yards without big budgets.

Lorna is highly visible and approachable โ€” youโ€™ll see her at events, fundraisers, and community activities, not just during campaigns.

She has a proven track record of advocacy for the vulnerable, giving a platform to voices that are often overlooked.

Lorna was proud to serve as an Ambassador for Invisible Illnesses Inc. before stepping into her role as Deputy Mayor, and she continues to support our work and our community.

She believes in keeping Rockingham inclusive, connected, and supportive for everyone.

๐Ÿ’™ If you want a Mayor who genuinely cares, who has walked alongside local groups, and who will keep putting people first โ€” Vote 1 for Lorna Buchan.

National Invisible Illnesses Awareness Day ๐ŸŒŸ๐ŸŽ‰ Weโ€™re turning 9 on 25th September โ€” and weโ€™re marking the milestone in a B...
10/09/2025

National Invisible Illnesses Awareness Day

๐ŸŒŸ๐ŸŽ‰ Weโ€™re turning 9 on 25th September โ€” and weโ€™re marking the milestone in a BIG way! ๐ŸŽ‰๐ŸŒŸ

Invisible Illnesses Inc. is proud to launch National Invisible Illnesses Awareness Day ๐Ÿ’œ๐Ÿ’š โ€” a day dedicated to making invisible illnesses visible, breaking stigma, and amplifying the voices of those too often unseen.

๐Ÿ’œ How You Can Celebrate & Support ๐Ÿ’š
๐Ÿ‘• Wear purple, teal or butterflies
๐Ÿ“ธ Take a photo & share it on our page
๐Ÿฆ‹ Help fundraise so our services stay affordable & advocacy continues!

Here are some fun ideas to get involved:
โœจ Decorate Your Letterbox/Front Yard โ€“ Purple, teal & butterflies for Awareness Day. Donate to join in, prize for the best display!
โœจ Dress-Up Day โ€“ Get your school, childcare or workplace dressed up for a gold coin donation.
โœจ High Tea for Hope โ€“ Host a purple & teal themed high tea with friends.
โœจ BBQ or Sausage Sizzle โ€“ Perfect for your driveway, local park, or community centre.
โœจ Butterfly Bake-Off โ€“ Bake purple/teal treats & vote with coins for the winner.
โœจ Soup & Stories Night โ€“ Share a meal and open conversations about invisible illness.

Every dollar raised goes right back into our community โ€” keeping services affordable, building programs, and fuelling advocacy. ๐Ÿ’œ

๐Ÿ’š From Struggle to Strength: Inspiring Hearts, Igniting Hope ๐Ÿ’œ

Come for a cuppa โ˜•, stay for the connection ๐Ÿ’œA safe, supportive space where everyone is welcome.
02/09/2025

Come for a cuppa โ˜•, stay for the connection ๐Ÿ’œ
A safe, supportive space where everyone is welcome.

31/08/2025

See first comment for detail.

๐Ÿ’” A Desperate Grandmas Story: Why Weโ€™re Building Turning Point๐Ÿ’œ From Struggle to Strength โ€” Because Our Kids Deserve Bet...
07/08/2025

๐Ÿ’” A Desperate Grandmas Story: Why Weโ€™re Building Turning Point

๐Ÿ’œ From Struggle to Strength โ€” Because Our Kids Deserve Better

This isnโ€™t just another youth program.
This is personal.
This is my grandson.
This is years of begging for help and getting told, โ€œThereโ€™s nothing we can do.โ€

He started struggling around the age of 10 โ€” ADHD and ODD made school near impossible.
He wasnโ€™t a bad kid. He was a scared, misunderstood kid with no support.
He made the wrong friends and the wrong choices.
He started refusing to go to school. Suspension after suspension.
Heโ€™d sit at home angry, frustrated, and lost.
He was drinking and he was suspected of using drugs.
By the time he was 15, heโ€™d probably only attended school 200 days over 4 years.

We knew he was slipping. We could see it happening.
So we reached out to schools. Youth services. Doctors. Counsellors. Anyone.
Every time we asked for help, we were turned away.
"Thereโ€™s nothing we can do unless he gets charged."

Excuse me? You mean we have to wait for him to get a criminal record before anyone will help?

We were trying to stop him from going down that path.
But the system made it clear:
Prevention isnโ€™t their job!

Then, the week he turned 16, our world cracked open.

He got into a stolen car with some mates. Even though he wasn't part of the theft, he knew the car was stolen before he got in.
There were weapons in the vehicle โ€” not his, but he was there.
They did three petrol drive-offs.
There was a high-speed chase. Police helicopters. Stingers.
They hit two other cars during the chase but not hard enough to do damages, thankfully!
And then โ€” the phone call that gutted me.
โ€œYou need to come pick him up from Midland Police Station as he's being taken into custody. If not, heโ€™s spending the night in juvenile detention.โ€

It was 10:30 at night. I canโ€™t drive in the dark.
I had to find someone willing to take me.
I shouldโ€™ve let him stay there. Maybe it wouldโ€™ve woken him up.
But I couldnโ€™t. I was terrified of what that night in lockup might do to him.

They let him off with a warning.
No consequences. No accountability.
Justโ€ฆ a note on his record in case he does something else.

We begged Juvenile Justice for help again.
But because there were no formal charges, their hands were tied.

While I was driving him home the next day, he turned to me and said "Grandma by the time I turn 18, I will either be dead or in jail. I was heartbroken at his attitude. Thinking to myself it's not going to happen on my watch. Things needed to change.

Three days later, things exploded.
The police were back.
It had gotten so bad we had to take out a Restraining Order to protect family members.
And this time, he was charged:
Assault. Malicious Damage.
Finally โ€” finally โ€” services stepped in.

But it was too late for prevention.
Now we were in crisis mode.
Now the record that we tried so hard to avoid? It counted.

I still believe that underneath it all, he's a good kid and even though everyone else have wiped their hands off him, I will do my damnest to get him back on track because I love him to much to let his words "by the time I turn 18, I will either be dead or in jail" come true.

๐Ÿ’” It shouldnโ€™t take a criminal charge to get a kid help.
๐Ÿ’” Families shouldnโ€™t be abandoned while theyโ€™re pleading for support.
๐Ÿ’” No one should feel as helpless and heartbroken as I did watching my grandson spiral โ€” and being told to wait until it gets worse.

Thatโ€™s why weโ€™re building Turning Point.
Because what happened to my grandson is happening to too many others.
Because there needs to be somewhere kids can go before they hit rock bottom.
Because if the system wonโ€™t do it โ€” we will.

๐Ÿ›  We're Calling On You

If youโ€™ve been through it,
If your child or grandchild is struggling,
If youโ€™ve watched someone you love disappear into a system that only acts when itโ€™s too late.

We need you!

Come help us build Turning Point.
Weโ€™re developing a community-powered, peer-led youth prevention and diversion program โ€” and weโ€™re looking for people who get it.

๐Ÿ‘ฉโ€๐Ÿ’ผ Volunteers Needed:

Program Designers
Youth Engagement Officers
Workshop Developers
Tutors / Learning Support
Cultural Advisors / Lived Experience Mentors
Partnership Liaisons
Admin / Grant Writers
Peer Mentors
Evaluation & Outcomes Officers

No degree needed โ€” just heart, understanding, and lived experience.

๐Ÿค We want to work with:

Youth Justice, CAMHS, Headspace, schools, community orgs, NDIS providers, Legal Aid, SCALES, Moorditj Koort and others as well as families just like yours. We want to get it right.

๐Ÿ“ฃ Will you help us?

๐Ÿ“ง Email: hello@invisibleillnesses.com.au
๐Ÿ“ž Call: (08) 6140 3977

Letโ€™s build the program we wish existed when we needed it most.
Letโ€™s give these kids a real turning point โ€” before itโ€™s too late.

๐Ÿ’œ A Grandma whoโ€™s been there.

๐Ÿ› ๏ธ HELP US BUILD TURNING POINTโœจ From Struggle to Strength โ€“ Be Part of Something BigTurning Point is a grassroots, commu...
07/08/2025

๐Ÿ› ๏ธ HELP US BUILD TURNING POINT

โœจ From Struggle to Strength โ€“ Be Part of Something Big

Turning Point is a grassroots, community-powered youth program by Invisible Illnesses Inc.
Itโ€™s designed to support young people aged 12โ€“24 who are at risk of disengagement, reoffending, or falling through the cracks.

Through mentoring, life skills, tutoring, restorative volunteering, creative recovery, and peer support โ€” weโ€™re creating a space where youth can reset, rebuild, and rise.

But itโ€™s not something we can do alone โ€” and thatโ€™s where YOU come in. ๐Ÿ’œ

๐Ÿง  JOIN THE DREAM TEAM!

Weโ€™re currently seeking volunteers to help us co-create, shape, and launch the program. Whether youโ€™ve got lived experience, professional skills, or just a heart for youth โ€” weโ€™ve got a role for you.

๐Ÿ‘ฉโ€๐Ÿ’ผ Team Roles Weโ€™re Recruiting For:

Program Designer โ€“ Structure it all from scratch ๐Ÿงฉ
Youth Engagement Officer โ€“ Make sure young voices are heard ๐ŸŽค
Workshop Developer โ€“ Create sessions that actually resonate โœ๏ธ
Tutor / Education Support โ€“ Help young minds catch up ๐Ÿ“š
Cultural Advisor / Lived Experience Consultant โ€“ Ground us in truth & safety ๐Ÿ–ค
Partnership Liaison โ€“ Link arms with schools, services, and orgs ๐Ÿค
Grant Writer / Admin Support โ€“ Make the magic happen behind the scenes ๐Ÿ“‘
Peer Mentors โ€“ Show them it is possible ๐Ÿ’ซ
Evaluation & Outcomes Officer โ€“ Help us prove it works ๐Ÿ“Š

๐Ÿš‘ Our Dream Team Will Work With:

Rockingham Youth Justice Team
Headspace Rockingham
CAMHS
Alta-1 College & South Metro TAFE
Moorditj Koort & Aboriginal Elders
Youth Legal Services, Legal Aid & SCALES
City of Rockingham Youth Services
Local schools, NDIS providers, and more

โœ… What Youโ€™ll Get:

Real purpose, real impact, real warm fuzzies
Flexible roles around your life, capacity & experience
Volunteer recognition, training, and references
A front-row seat to something that actually changes lives

๐Ÿš€ Ready to help create a real Turning Point?

๐Ÿ“ง Email: hello@invisibleillnesses.com.au
๐Ÿ“ž Call: (08) 6140 3977

From Struggle to Strength.
Inspiring hearts. Igniting hope. Creating change โ€” together.

Welcome to the Turning Point Parent & Carer Survey!We know parenting isnโ€™t always easy โ€” especially when your young pers...
25/07/2025

Welcome to the Turning Point Parent & Carer Survey!

We know parenting isnโ€™t always easy โ€” especially when your young person is struggling and support feels out of reach. Youโ€™re not alone, and we want to help change that.

This survey is designed to hear directly from parents, carers, and guardians like you โ€” the ones in the thick of it. Your feedback will help us shape Turning Point, a new program by Invisible Illnesses Inc being created to support families navigating tough times with their teens.

There are no right or wrong answers โ€” just honest ones.

๐Ÿงฉ Why this matters:
Weโ€™re building a support program for parents, by people who get it. Your voice helps us:
Identify the real gaps in youth and family services
Understand what families actually need
Design programs that work before things hit crisis point

โฑ๏ธ How long does it take?
Roughly 5โ€“10 minutes.

๐Ÿ™Œ Who can fill it out?
Parents, carers, guardians โ€” anyone raising a young person (especially aged 10โ€“18) in the Rockingham, Kwinana, or surrounding areas.

๐Ÿ’› Your privacy:
You can remain anonymous, or leave your details if youโ€™d like to stay updated or be part of future focus groups. We wonโ€™t share your info with anyone without your permission.

Thank you for helping us create something that actually works โ€” because every family deserves a Turning Point.

https://forms.gle/4RpY9AV8BPEsWjsc6

๐ŸŽ‰ The Chronicโ€™ill Is Reborn! ๐Ÿง ๐Ÿ’ฅ๐Ÿ’›Yep โ€” this cheeky little newsletter is making its comeback.Youโ€™ll soon be holding The Ch...
24/07/2025

๐ŸŽ‰ The Chronicโ€™ill Is Reborn! ๐Ÿง ๐Ÿ’ฅ๐Ÿ’›

Yep โ€” this cheeky little newsletter is making its comeback.

Youโ€™ll soon be holding The Chronicโ€™ill in your hands (or scrolling it with stiff fingers โ€” we see you ๐Ÿ‘€). Expect all the heart, humour and hope you know and loveโ€ฆ plus a few badly timed pain jokes, because wellโ€ฆ ๐Ÿ’โ€โ™€๏ธ

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๐Ÿ’Œ Our Newsletter Just Got a Glow-Up!
Say hello to The Chronicโ€™ill โ€”
Delivering news with heart, humour & hope (and zero guilt-tripping).

Whatโ€™s inside? โœจ Raw updates from our chronically determined CEO
โœจ Real stories from real people fighting invisible battles
โœจ Behind-the-scenes chaos at Shop 4 A Cause
โœจ Tips, tools & truth bombs for the flare life
โœจ Advocacy, awareness, upcoming events & more!

๐Ÿ‘‰ Sign up now at:
๐ŸŒ www.invisibleillnesses.com.au

๐Ÿ“ฌ This is one inbox item youโ€™ll actually want to read.

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๐Ÿ’œ Discover the Support You Deserve At Invisible Illnesses Inc., we're here to help you thrive. Enquire now: https://www....
21/07/2025

๐Ÿ’œ Discover the Support You Deserve
At Invisible Illnesses Inc., we're here to help you thrive.
Enquire now: https://www.invisibleillnesses.org.au/services

Swipe through to explore the wide range of services we offer, including:
โœจ Counselling & Assessments
๐ŸŒฟ Lymphatic Massage, Cleaning & Gardening Support
๐Ÿ›’ Food Hampers & School Packs
๐Ÿค Support Groups for Autism, ADHD & Youth
๐Ÿ“š Employment Training & Life Skills Programs
๐ŸŒ Virtual Events, Social Activities & More

11/07/2025

๐ŸŒŸ Share Your Story โ€“ Be Seen. Be Heard. Be the Voice of Change. ๐ŸŒŸ

Have you been living with an invisible illness like Fibromyalgia, Autism, ADHD, CFS/ME, MS, FND, EDS, PTSD, Diabetes, or something else entirely?

Your story matters. ๐Ÿ’™

At Invisible Illnesses Inc., weโ€™re building a library of real voices โ€” stories of strength, struggle, and hope โ€” to raise awareness, smash stigma, and show the world what it really means to live with an invisible illness.

๐Ÿ’ฌ Whether it's a few words or a full journeyโ€ฆ ๐Ÿ“ธ With or without a photoโ€ฆ ๐ŸŽญ Anonymous or proud and loudโ€ฆ

We want to hear from you.

Your story could:
Help others feel less alone
Educate the broader community
Advocate for better support and understanding

๐Ÿงฉ Because lived experience is powerful. And we believe every voice has value.

๐Ÿ‘‰ Ready to share?
๐Ÿ“ฉ email me directly at: hello@invisibleillnesses.com.au

๐Ÿ›‘ No judgment. No filters. Just real people, real stories.

Letโ€™s make invisible illnesses impossible to ignore.
From Struggle to Strength: Inspiring Hearts, Igniting Hope ๐Ÿ’™

11/07/2025

๐Ÿ’ฌ โ€œIt is never too late to give up your prejudices.โ€ โ€“ Henry David Thoreau

๐ŸŒ What Is Disability?

Disability isnโ€™t always what people think it is. Itโ€™s not a single condition, a visible difference, or a fixed state. It's a broad, evolving experience โ€” one that can affect any of us, at any stage of life.

In fact, 83% of disabilities are acquired after birth. And the impacts? They can be:
๐ŸŒ€ Mild, moderate or severe
๐Ÿ•’ Temporary, permanent or episodic
๐Ÿ’ฅ Visible or invisible

Yet society often struggles to understand the complex and diverse reality of disability.

๐Ÿ”Ž Seven Types of Disability

(Described by UK disability consultant Graeme Whippy)

Disability is grouped into seven broad categories, based on how a person may experience the world differently:

1. Sensory Impairments ๐Ÿ‘‚๐Ÿ‘

Includes full or partial hearing loss and vision impairment

Also covers conditions like tinnitus (ringing in the ears)

2. Mobility & Dexterity Impairments ๐Ÿฆฝโœ‹

Involves limited or no use of legs, arms, or hands

Common causes: paralysis, arthritis, tremors, repetitive strain injuries

3. Communication & Social Conditions ๐Ÿ—ฃ๏ธ๐Ÿค

Includes Autism, Aspergerโ€™s, speech impairments, and facial disfigurement

These may affect communication, sensory processing, or social interaction

4. Cognitive Impairment ๐Ÿง ๐Ÿ’ญ

Affects how people process, perceive, and understand information

Includes ADHD, dyslexia, dementia, intellectual disabilities, and learning differences

5. Physical Health Conditions ๐Ÿ’‰๐Ÿฉบ

May be chronic, progressive, or episodic

Includes diabetes, MS, cancer, HIV, and autoimmune disorders

6. Mental Health Conditions ๐Ÿง˜โ€โ™€๏ธ๐Ÿซ‚

Often invisible, but hugely impactful

Includes depression, anxiety, PTSD, bipolar disorder, and more

7. Multiple or Overlapping Conditions ๐Ÿ”—

Many people live with co-occurring conditions

For example:

70% of autistic adults experience mental health conditions

MS can involve vision, mobility, cognitive, and emotional symptoms

๐Ÿ’ก A Global Perspective

๐ŸŒ 1 in 4 people worldwide will experience a neurological or mental health condition in their lifetime.

This makes mental health one of the leading causes of disability globally.

Disability touches:
๐Ÿง‘โ€๐Ÿคโ€๐Ÿง‘ Employees and co-workers
๐Ÿ‘จโ€๐Ÿ‘ฉโ€๐Ÿ‘ง Families and caregivers
๐Ÿ›’ Customers, suppliers, and clients

๐Ÿ’ฌ Final Thought

Disability doesnโ€™t discriminate โ€”
So why should society?

By understanding the wide spectrum of disability, we can remove stigma, increase inclusion, and support real change.

> Itโ€™s time to build a world where differences are embraced, not judged.
Where support is proactive, not reactive.
And where everyone is seen, heard, and supported โ€” regardless of ability.

From Struggle to Strength: Inspiring Hearts, Igniting HopeFrom Struggle to Strength: Inspiring Hearts, Igniting Hope

๐Ÿ“š๐Ÿฆธโ€โ™€๏ธ Not All Heroes Wear Capesโ€ฆ Some Fill Out NDIS Forms!Volunteer as an NDIS Assistant and Make a Real Difference๐Ÿ“ Loc...
07/06/2025

๐Ÿ“š๐Ÿฆธโ€โ™€๏ธ Not All Heroes Wear Capesโ€ฆ Some Fill Out NDIS Forms!

Volunteer as an NDIS Assistant and Make a Real Difference

๐Ÿ“ Location: Warnbro, WA | ๐Ÿ•˜ 2 Days/Week | โฐ 9:00am โ€“ 3:00pm | ๐Ÿ’™ Flexible Days

Are you organised, compassionate, and passionate about helping others navigate the NDIS maze? Join Invisible Illnesses Inc as a Volunteer NDIS Assistant and make a real impact in the lives of those living with invisible illnesses.

๐Ÿ’ผ About the Role:

As an NDIS Assistant, you'll walk alongside our clients as they go through the often confusing and overwhelming process of applying for NDIS. From filling in forms to attending GP appointments, youโ€™ll provide practical support and clear guidance every step of the way.

๐Ÿ”‘ Key Responsibilities:

โœ… Assist clients with completing NDIS access request forms
โœ… Attend GP or specialist appointments to ensure accurate, supportive documentation
โœ… Ensure correct terminology and required detail is used for eligibility
โœ… Submit NDIS applications and track progress
โœ… Support clients through reviews or appeals if needed
โœ… Liaise with clients, family members, and support staff with sensitivity and confidentiality

๐Ÿ‘ค Ideal Volunteer:

โœ” Clear communicator with excellent attention to detail
โœ” Confident in reading and interpreting forms and medical documentation
โœ” Patient, respectful, and able to advocate gently for others
โœ” Previous experience with NDIS, support coordination, or admin is a bonus โ€“ but not essential
โœ” Willing to learn and work collaboratively

๐Ÿ’™ Why Volunteer With Us?

๐ŸŒŸ Be part of a supportive, inclusive team
๐ŸŒŸ Make a real difference to someoneโ€™s independence and access to support
๐ŸŒŸ Learn valuable skills and gain community experience
๐ŸŒŸ Certificate of service and references provided
๐ŸŒŸ Flexible and family-friendly environment

๐Ÿ“ฌ How to Apply:

Apply now via our online form:
๐Ÿ”— https://forms.wix.com/r/7108637956725801812

Or get in touch hello@invisibleillnesses.com.au
๐Ÿ“ž 08 6140 3977

Invisible Illnesses Inc โ€“ Invisible, but not alone.
Join us and help others find the support they deserve. ๐Ÿ’™

Address

Rockingham, WA
6168

Opening Hours

Monday 9am - 3pm
Tuesday 9am - 3pm
Wednesday 9am - 3pm
Thursday 9am - 3pm
Friday 9am - 3pm

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About Us

Invisible Illnesses Inc. We are a registered Not-for-profit organisation based in the Western Australia. We are currently growing and starting to spread into other areas. Our social events are an informal get-together for people with an invisible illness and their supporters . They are a great opportunity to meet people who really do understand. You can compare notes, or just chat about anything. Our main support group is Invisible Illnesses Inc. https://www.facebook.com/groups/fibro.events/ We are currently setting up a website with more information & tips www.invisibleillnesses.org.au If you want to receive our monthly email sign up here http://eepurl.com/cZ0daX We are always looking for people to join our committee. If your interested please email us at hello@invisibleillnesses.org.au Want to place an advert in our monthly newsletter? Please contact us at hello@invisibleillnesses.org.au Hope to see you at an event or two Michelle CEO