22/08/2025
We Stand With Participants — Fix the System, Not the People
At Coordinating Independence, our team has over 100 years of experience in disability and mental health (which sounds impressive, but really just means we’re not getting any younger!). That experience has taught us one thing above all: the strength and determination of the people we support.
This week, the Prime Minister claimed “40% of Australians” are on the NDIS. As Heidi La Paglia from Every Australian Counts has rightly called out [1], that’s simply not true. The real figure is less than 2.5% of Australians, including around 8–9% of children under 15 [2]. A far cry from 40%.
Yet this myth feeds a damaging narrative — one that blames Autistic children and families for budget pressures. At CIS, we cannot sit back and let participants be scapegoated. The people we support are not the problem.
The Real Cost Drivers
What’s really draining the scheme?
Endless reviews and admin churn
Billions wasted on consultants and bureaucracy
Ballooning legal costs as families are dragged through tribunals [3]
That’s where reform is needed — not in cutting kids’ supports.
Our Approach at CIS
We hire experienced coordinators, pay above award, and still deliver more than the NDIS price limits allow — because outcomes matter more than billable hours. And we know the vast majority of providers we work with are doing the same: going above and beyond for participants every day.
Why “Thriving Kids” Concerns Us
The government’s new Thriving Kids program [4] risks pushing children into block-funded programs like Inklings [5], which focus on “reducing” autistic traits rather than supporting neurodivergence. As Heidi La Paglia and Every Australian Counts have shown, this approach is not evidence-based, not co-designed, and not safe.
What Needs to Change
If the NDIS is to thrive, government must:
- Address the real cost drivers in its own systems
- Protect individualised supports for children with permanent disability (as required by the NDIS Act 2013)
- Commit to genuine co-design with participants and families
At CIS, our focus remains the same: supporting people in their communities to live the lives they choose, with dignity and independence.
Because sustainability won’t come from cutting children’s supports. It will come from fixing the system that too often fails them.
References
[1] La Paglia, H. (2025, Aug 21). NDIS Truth Matters: Autistic Children Aren’t Breaking the Scheme. Every Australian Counts.
[2] NDIA. (2025). Quarterly Report Q4 2024–25.
[3] NDIA (2025). FOI 24/25-1557; National Legal Aid. (2024). 2025–2026 Pre-Budget Submission.
[4] Australian Government. (2025, Aug 20). Speech from Minister Butler, National Press Club.
[5] Hippocratic Post. (2024, Feb 22). ANPA warn of ‘Inklings’ Program’s Risks to Babies.