Consumer and Community Involvement Program

23/09/2025

RESOLVE SHOCK: understanding why patients deteriorate or recover after shock

The RESOLVE-SHOCK research team is inviting people with lived experience of ICU care, especially those who have had shock (very low blood pressure) or sepsis as well as their family members and carers, to partner with us.

We want to better understand why some patients recover while others deteriorate. Your unique insights will help shape our research questions, inform the study’s design and ensure our findings are shared in ways that matter to patients, families, and the community.

Find out more and submit your application 👉 https://bit.ly/4gBC5CZ

09/09/2025

👩‍⚕️ Help Improve Pharmacy Care for CALD Communities 👨‍⚕️

Researchers are exploring ways community pharmacists can better support people from culturally and linguistically diverse (CALD) backgrounds.

We’re inviting:
✅ Individuals with low English proficiency
✅ Their caregivers (e.g., children, close family members)

To join us as a Research Buddy and share your lived experience to help shape this important project to make sure it is informed and guided by culturally and linguistically diverse communities.

Find out more & apply: 👉 https://bit.ly/4m4DzXq

08/09/2025

All.Can Australia seek people affected by cancer to tell them about their experiences to help inform understandings of areas of need and improvement so policies can be developed and services improved to help them live well with and beyond a cancer diagnosis.

This research will allow a better understanding of the changing unmet needs and inefficiencies to help inform desired service improvements in Australian cancer care.

Find out more and complete the survey: https://bit.ly/4m60IJ0 - Survey open until the 17 September 2025.

Send a message to learn more

05/09/2025

👩‍👧 Have you cared for a child with bladder or bowel issues?

Researchers from the Child and Adolescent Health Service want to hear from you!

They’re exploring the best ways to provide education about healthy bladder and bowel habits for children while they wait for specialist appointments at Perth Children's Hospital and Health Service.

As a Research Buddy, you’ll share your insights and help shape programs so they’re practical, relevant, and family-friendly.

Find out more & apply👉 https://bit.ly/3HoIp3C
Perth Children's Hospital Foundation

04/09/2025

🎉 We’ve just wrapped up the final Writing in Plain Language Masterclass for 2025! This interactive session supported researchers in crafting clear, accessible summaries for grant applications and communicating their work meaningfully with the community.

🙏 A heartfelt thank you to our guest speakers:
🔬 Dr Kelly Martinovich PhD – Research Fellow, Personalised Medicine Centre, Health Futures Institute, Murdoch University
🗣️ Maz Osborne – Consumer member of the CCIProgram
Your insights were invaluable!

📢 Semester 1, 2026 Masterclasses are now open for registration.
Spots fill quickly, so secure yours now: 🔗https://cciprogram.org/events-and-training/

29/08/2025

The Cancer Council Australia is inviting members of the public living in Perth who are over the age of 65, with a lived experience of cancer to participate in a co-design workshop. Whether you’re a person who has had a cancer diagnosis, a carer, family member, or loved one, your voice matters. Your experiences and perspectives will directly help us design a better service that truly reflects and meets the needs of all Australians.

SESSION DETAILS:

When: Wednesday 3 September 2025, 1:30pm – 4:30pm (AWST)
Location: Cancer Council WA, Level 1/420 Bagot Rd, Subiaco, WA
Group Size: Up to 8 participants in each session
Facilitation: Each session will be facilitated by our service delivery partner
Support Team: A community representative and Cancer Council staff will be present in the sessions to support and listen

Find out more information about these sessions and submit your EOI 👉 https://bit.ly/4n4PYvu

27/08/2025

🌟 An exciting day for all in health and medical research with the launch of the Draft National Health and Medical Research Strategy. We encourage you to provide feedback on the Draft Strategy, with consultation closing 8th October.

Read more and submit your response to the Draft National Strategy 👉 http://bit.ly/4n3DOmG

National Health and Medical Research Council - NHMRC Australian Government Department of Health, Disability and Ageing

26/08/2025

Has your child experienced frequent chesty coughs, asthma, or been hospitalised with a lung infection? We want to hear your story.

Share your lived experience and help shape better care for children with respiratory conditions by being a part of this Consumer Advisory Group!

Find out more about this research and submit your application 👉 https://bit.ly/4oBy3y1

22/08/2025

Researchers invite people living with type 2 diabetes to contribute their lived experience to shape a new predictive blood test, Promarker®D. Designed to identify people at risk of developing chronic kidney disease (CKD). We are looking for consumers to form a Consumer Advisory Group to work alongside the research team to help ensure the project is relevant, respectful, and meets the needs of people it is designed to help.

Consumer Advisory Group (CAG) members will work closely with the PromarkerD research team to ensure that lived experience remains central to the development and implementation of this predictive kidney test for people with diabetes.

What Skills or Experience Do I Need?

We welcome individuals with lived experience of type 2 diabetes, regardless of whether you have a research background. You should feel comfortable sharing your views in a group setting.

Find out more & apply 👉 https://bit.ly/45ab4Cz

15/08/2025

Researchers at St John of God Subiaco Hospital are seeking consumers with a lived experience of bowel cancer to join a Consumer Advisory Group to guide their research program. Using their lived experience, group members will advise on research priorities, project planning and dissemination of research findings from a consumer perspective.

Experience required:
You need to have a lived experience of bowel cancer. This can be either a personal diagnosis, or through caring for a close relative, and be comfortable sharing your insights and contributing to discussions in a group setting.

Find out more & apply 👉 https://bit.ly/3UnhSqb

14/08/2025

Do you experience chronic or episodic migraines?

Researchers at Murdoch University invite you to join a study exploring migraine related pain and sensory sensitivity. As a Research Buddy your input will shape the direction of this project and help researchers connect with migraine communities, ensuring that a lived experience perspective is provided throughout all phases of the research planning and implementation.

Find out more & apply 👉 https://bit.ly/3Ja7AHr