Chromosome deletion Support

27/05/2024

Treat Anxiety in Children: There are more serious forms of anxiety that, left unchecked, can have lasting effects, both emotionally and biologically.

27/05/2024

27/05/2024

Today marks the start of National Reconciliation Week, a time to learn about our shared histories, cultures, and achievements and explore how all Australians can contribute to achieving reconciliation.

This year's theme, 'Now more than ever' acknowledges the challenges faced by First Nations people and encourages everyone to come together to tackle discrimination and create change.

Asking someone, 'are you OK?', can improve your understanding of their challenges and increase their sense of connection and belonging.

Check in with your mob this week, and every week.

27/05/2024

02/05/2024

Project UnDiagnosed - Children with Diagnosed and Undiagnosed Medical Conditions – Unique challenges towards wellbeing for children and their parents

This study aims to better understand factors that influence parent wellbeing for parents who have children with undiagnosed medical conditions. It also begins to explore how professional support and parent factors are associated with the wellbeing of the child.

Now recruiting parents/caregivers of children with undiagnosed medical condition/s to participate in an anonymous online survey that takes approximately 20 to 30 minutes to complete.

Please access the survey: https://bit.ly/3xrCUeW

02/05/2024

🌟 Did you know? A disease is considered rare when it affects less than 1 in 2000 people.

Rare Individually but not Rare, Together. 💡💙

🧬🔍

02/05/2024

🧬🧬 Regardless of diagnosis; Has your child had genetic testing since January 2017? 🧬🧬

Take this short 20 minute survey looking at your experiences with genetics services, receiving your child’s genomic results and any subsequent follow-up care provided by genetics services.

This project aims to understand how families of children with rare conditions are supported by genetics services during the diagnostic process.

If you are interested in participating, please complete this survey: https://bit.ly/3tQrNqr

11/04/2024

Why not get out and about in the fresh and explore Victoria's accessible national parks with the family this month? 👨‍👩‍👧‍👦

Our friends have an amazing range of all abilities facilities and information to help you plan a fun day out that the whole family can enjoy. There are all-abilities walks, social scripts, group walks for blind visitors, beach wheelchairs, and more.

Find out what's available near you 👉https://www.parks.vic.gov.au/get-into-nature/all-abilities-access

11/04/2024

Do you want to learn more about International Day of People with Disability (IDPwD)?

The website has fact sheets that can help you learn about IDPwD, its history and how to get involved.

These fact sheets are available in Easy Read, Auslan and 12 community languages other than English.

Find them at

Fact sheets What is IDPwD Easy read Auslan Translated fact sheets How to get involved in IDPwD Easy read Auslan Translated fact sheets Our fact sheets are designed to help you learn more about International Day of People with Disability including its history and how to get involved. We encourage you...