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Lillians Harris Heart Journey

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Lillians Harris Heart Journey

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Lillian was born with HLHS plus a lot of other medical conditions from Queensland,Australia
Lillian is under palliative care making every moment count
Welcome to our facebook family of 48k followers
Enjoy the rollercoaster ride with us all on our journey

31/01/2026

Hey everyone
I’m wanting to get a memorial plush for each of my kids for them to help cope with the passing of my father last week.
Is there anyone on here or know a company that makes these?
Please comment below or tag a business so I can look at the different ideas for the kids to choose from. I would also like the bottom of them to be able to open as I’m getting a recording speaker to put in the plush with my dad saying there names🩷🩷

29/01/2026

2 more days till we celebrate Lillian’s 8th birthday 🩷🩷🩷🩷

25/11/2025

Last week Lillian’s teacher contacted me and said Lillian will be receiving an award at parade the last parade for the year. So that morning for 20min I took Lillian upto the school she was so excited to see her friends and she didn’t know she was even getting an award she thought it was just a class visit.
This award she received is for care.
Throughout the year Lillian hasn’t been at school I think for the whole year she went maby 7 days in total. But while being at home or in hospital Lillian still communicated with her class via writing letters to everyone and giving them to her older sister to take to her class or myself and her teacher organising video calls with the class. Lillian may not have been there in person but Lillian was there in everyone’s hearts everyday💜💜 I’m so proud of you my warrior💜 you deserve it 💜💜

31/10/2025

Our Halloween costumes Lillian loved it💜💜 she was scared of my costume though she cried when she saw me🫣

23/10/2025

Lillian went back to school for the first time in a long time this week for one day she stayed for 4hrs and loved it so much. All her friends have missed her so much and she has missed them.
Hopefully now with the weather warming up we are at less risk of sickness. Lillian will be starting back on a regular basis of one day a week going back to school. She does home schooling but this will allow her to still see her friends and have that “normal” life💜💜💜
So proud of you my princess

20/09/2025

Ice cream will help with the bleeding mouth 🤣 💜💜

13/09/2025

Nail salon day for princess Lillian

12/09/2025

❤️1 month to go until our annual Two Feet & A Heartbeat fundraising walk!
Our favourite Lions mascot, Chester 🦁, will be there to cheer on our Brisbane HeartKids families on 12 October. A big thank you to Teneriffe Lions Club for once again serving us with a delicious sausage sizzle breakfast and drinks on event day
It is the perfect day to walk, connect, and support kids living with congenital heart disease. Bring your family and friends along — together we can make a difference!
👉 Register today: https://www.twofeetheartbeat.org.au

06/07/2025

All your prayers and wishes were heard 💜
Lillian has done it again proved doctors wrong again🙌🏼
When the doctor walked into resus pulled me aside and said if lillian has influenza she will die!
Well my warrior has proved them wrong again!!!!
Bringing my baby home yes we are coming home on oxygen and a few different things but my baby is smiling and coming home and time for mum to take over the nurse role and make my baby happy and comfortable at home with the family 💜💜💜
Yes we have the sneaking finger up 🖕🏻 that’s to say no Tata don’t ever think my warrior isn’t strong enough because she is! It was a tough few weeks of not being able to get accommodation so I’m back and forth everyday over a hr drive for me to and from the hospital big days late nights calls at midnight one night to rush is as Lillian went down hill bad anubgs didnt looks good but we did it!!! Time for mumma to put her feet up for a day enjoy family time this school holidays with my babies and family💜💜💜

29/06/2025

Lunchtime Thursday I brought lillian into hospital as she was coming down with a virus they put lillian straight into resus and within hours lillian deteriorated rapidly. They made lillian comfortable with sedation and high flow after talking with teams about my wish for lillian which is all I want is for her to be comfortable.

Lillian’s results come back that she has influenza💔
Lillian got transferred to the ward that night
We are doing everything to make sure she isn’t in pain she is comfortable and can try and fight this influenza 🙏
Lillian’s heart started playing up with not being able to keep up with the pacemaker as the influenza is taking a big toll on her body. She is fighting so hard but exhausted😞
They have had to up the high flow to support her and keep her comfortable. As she can’t even stay awake for 5min without deteriorating more. So at this point we are just keeping her asleep so she can try get enough fight to fight this virus. She is sound very wet on her lungs in the last 24hrs😞
Its all up to lillian and her body if she can pull through this or not 🙏💔
Please pray for lillian and have her in your thoughts to be able to get through this 🙏

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Springfield Lakes, QLD

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