Fibrous Dysplasia/McCune Albright Syndrome Australia

27/02/2025

Today, we join the world in celebrating and supporting those with Rare Diseases! 💙

Fibrous Dysplasia/McCune-Albright Syndrome is just one of over 300 million people worldwide living with a rare disease. 🌏

Rare Disease day is the globally coordinated movement on rare disease working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.

Because EVERY voice matters to make rare diseases visible!

26/02/2025

Meet Deputy Mayor Councillor Laura Cowell who shares their journey of resilience and strength while living with FD/MAS. 🌟 https://fdmasaustralia.com.au/fd%2Fmas-stories-1

💭 “Every day, we have a choice—to be defined by our challenges or to rise beyond them. I choose to lead with purpose, focus on the possibilities, and serve others with kindness. Our struggles may shape us, but they will never limit who we can become.” – Laura Cowell

Each person with FD/MAS has a unique experience, but together, we amplify our voices for awareness, research, and better care.

💬 Drop a 💙 in the comments if you support those living with FD/MAS!

26/02/2025

Want to support the FD/MAS community? Here’s how YOU can help

🤗 Share this post to spread awareness
🤗 Join our community – follow us & engage
🤗 Donate to support FDMAS Australia's mission
🤗 Advocate for better care & policies

Awareness leads to action. Action leads to change. Be a part of it!

https://fdmasaustralia.com.au/

Rare Voices Australia Genetic Alliance Australia FDMAS Alliance

25/02/2025

Did you know that ongoing research is bringing hope to those living with FD/MAS?

Scientists are working to
✅ Understand the genetic causes of FD/MAS
✅ Improve treatment options
✅ Develop potential therapies for better quality of life

💙 Every voice and every donation brings us closer to breakthroughs.

www.fdmasaustralia.com.au

24/02/2025

What is Fibrous Dysplasia/McCune-Albright Syndrome?
FD/MAS is a rare, complex genetic disorder affecting the bones, skin, and endocrine system. It can cause fractures, hormonal imbalances, and chronic pain, with no current cure.

🔍 Raising awareness is the first step towards better treatments and support for those living with FD/MAS.

💙 Help us spread the word! Share this post and tag someone who should know about FD/MAS.

13/05/2024

Grateful to Eddie Idik JP, AVM for supporting us as there conference Charity partner for 2024 https://vsxconference.com/partners-and-sponsors/ Councillor Laura Cowell is looking forward to attending this event.

VSX 2024 would not be possible without the support of our Sponsors and Partners and we appreciate all of your contributions to make the event a memorable one.

30/03/2024

Happy Easter, everyone! It's a special time for hope and happiness. You can make someone's day better with a smile, a nice message, or helping someone in need. Small acts of kindness really matter.

Be kind and make the world a happier place this Easter.Wishing you a wonderful Easter! 💖