Hypermobility for Paediatric OTs

24/09/2025

The reality and lived experience of kids in pain.....

And there is so much more. The effects are often profound and pervasive, impacting all areas of life for these young people and their families / carers.

We need to talk about it more. Kids experience both acute and chronic or persistent pain. It's real. It's hard. It can be devastating for families. But with the right help and support, kids can learn to thrive.

24/09/2025

🌟 New Resource for Parents & Carers 🌟

School can be tough when your child lives with chronic pain. Learning With Pain: A Parent’s Guide to Managing School for Kids in Pain is designed to support you every step of the way.

💡 Inside you’ll find:
✔️ Practical strategies to support learning and wellbeing
✔️ How to advocate for your child at a school level
✔️ Guidance on flexible options like distance or home education
✔️ Tips to nurture social connections

This resource empowers families to work with schools and create an environment where children in pain can thrive.

👉 Download all Kids in Pain resources at: https://chronicpainaustralia.org.au/kids-in-pain/

23/09/2025

My webinar for Week 2025.

Thank you so much Chronic Pain Australia for the invitation to be part of such an important week for kids and their families, living with pain.

This webinar was just a drop in the ocean of what OTs can do to support young people in pain.

23/09/2025

Thank you so much for sharing your stories and bringing Kids in Pain Week into the spotlight.

Thank you to Chronic Pain Australia for raising awareness and turning up the volume on the voices of kids & families. Sharing of stories is so important, and leads to:
- connection 🔗
- validation ❤️‍🩹
- decreased sense of isolation 👥
- hope 💜

Well done to all involved 🙌

22/09/2025

For kids living with pain, every part of daily life is impacted….

Kids need and deserve healthcare that meets their needs, hears their voices and works to improve their quality of life.

See some of the stats in the Kids in Pain Report 2025 on the images below.

21/09/2025

Exciting research is happening in the hEDS space.

We are pleased to announce that our Genome-Wide Association Study (GWAS) manuscript is now available as a preprint. You can access it at https://www.medrxiv.org/content/10.1101/2025.09.19.25336146v1 or via the link in our bio 🦓🧬💙

14/09/2025

Kids in Pain Week is September 22-28. I am delighted to be involved this year, giving a webinar on Practical OT Strategies for Kids in Pain: Thriving at Home, School & Beyond.

This is more generally about kids in pain, not hypermobility specific, however I hope you might gain something from the session to suppot families and kids in pain.

01/09/2025

FYI: not to be controversial, or to downplay the significance of the need, and the distress this sudden decision has caused….

But this is an important read.

As an online retailer pauses melatonin supplement sales in Australia, it prompts an expert to call for a rethink on how children’s sleep issues are...

18/06/2025

I’ve signed. No OTs, No NDIS. stop cuts to services.

23/05/2025

🌈What a stunner (double) rainbow reaching across Sydney this afternoon 🌈

18/05/2025

One kiddo could see all of the following (and more) in a 6 month period.

Key things to remember
😩 Appointment fatigue is real
🤯 Burnout happens to kids & parents
🥺 Seeing new doctors or health professionals can be scary and emotionally overwhelming- for kids and parents.
⛓️‍💥Breaks or mini-holidays from appointments can be helpful
🚑 Medical / Health trauma happens more than health professionals realise.

10/05/2025

I love hearing people say this!

"Some of my best health care appointments have been with occupational therapists. I have truly felt seen with them. We talk and they have me do tests and different things as they observe me.

✍️It is truly amazing to realize all the things they see and then suggest based on the observations. They have advised me on so many things and given good tips. I have received assistive products and braces and they've helped me get my splints.

They have helped me to understand how my body works and why it is good for me to do some things a certain way." 💡
- Anne

What is Occupational Therapy and how can it help? Read https://www.ehlers-danlos.com/occupational-therapy/

What are ring splints and how can they help? Read https://www.ehlers-danlos.com/community-resources/ring-splints-for-ehlers-danlos-syndrome-hypermobility-spectrum-disorders/

Follow Anne's journey with HSD at
https://www.instagram.com/annelatto