GeneEQUAL

17/08/2025

🏆✨ WE WON! People's Choice Award winners at the CPIR Awards!
So grateful to our incredible partners who make inclusive research possible 💙
Thank you to everyone with intellectual disability and the amazing organisations who've supported this journey:

Advocacy Sydney
for Intellectual Disability
Topics Queensland
Victoria

Julie said it perfectly: "This award shows that when researchers really listen to people with intellectual disability and work together, we can make health care better."

The future of research is inclusive, and we couldn't be more excited! 🚀

22/04/2025

Have you heard about the evaluation of our Toolkit to help improve healthcare for people with intellectual disability? Read about the GeneEQUAL successful model here:

Targeted clinician education is making genetic care more inclusive, says a new study.

09/03/2025

Exciting accessibility update! 🎉 Our team member Bronwyn recently visited the recording studio to create professional voice overs for our GeneEQUAL website. We're committed to making our inclusive, person-centered, and respectful work accessible for everyone - one recording at a time.

05/03/2025

📢 NEW STUDY ALERT 📢 We're seeking siblings of young people with intellectual disability to participate in research about their brother or sister's experiences with health and genetics during high school.

Your perspective matters and will help improve health and healthcare for people with intellectual disability. See the image for complete details about this important study.

Please share with anyone who might be interested in contributing to this research.

28/02/2025

Proud of our team member Emma representing GeneEQUAL on International Rare Disease Day 2025! She presented our inclusive research that directly involves people with intellectual disability to improve genetic and healthcare. Making healthcare equitable, one collaboration at a time!

25/02/2025

📣 RESEARCH PARTICIPANTS NEEDED 📣

We are speaking with parents & carers of young people with intellectual disability about their child's experiences of & in high school.

Your insights can help improve education and healthcare!

Visit our website for more information about this important study and how to participate:

https://geneequal.com/stories/parent-carer-of-a-student-or-young-person-with-intellectual-disability/

This project is about improving the education students with intellectual disability learn about genetic health care in schools.

21/08/2024

GeneEQUAL attended & shared their recent studies about health & genetic education for students with intellectual disabilities from teachers’ & students’ experiences & perspectives.

11/05/2024

Have you visited our website, seen our Easy Read resources or watched our Best Practice videos? Join the rest of the world checking out our Educational Toolkit for Health Care Professionals https://www.genetics.edu.au/SitePages/Intellectual-disability-patient-communication.aspx?web=1

NSW Health HETI - Health Education and Training Institute

30/04/2024

Are you a parent or carer of a young person with intellectual disability? GeneEQUAL would like to talk to you about your experiences with health education in our new study! Scan the QR code or go to our website for more information:
https://geneequal.com/current-news/new-study-parents-and-carers-of-children-and-young-people-with-intellectual-disability/

15/03/2024

We had a great time at our coproduction workshop at Self Advocacy Sydney Inc. We looked at making a Decision Tool to support genetic health care decisions! Find out more on our website!

01/03/2024

Have you read our co-produced Easy Read health booklets? Join the 1000 visitors from 49 countries to learn more about for people with intellectual disability.

Click here to see them
https://geneequal.com/genetic-resources/our-easy-read-health-booklets/

28/02/2024

[Easy Read is on our website]
Editorial alert! We are honoured to be mentioned by Ding et al. BMJ Quality & Safety who supports our article about improving informed consent in for people with intellectual disability.

Read about it here: https://qualitysafety.bmj.com/content/early/2024/01/29/bmjqs-2023-016830