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Macular Disease Foundation Australia

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Macular Disease Foundation Australia

MDFA is a charity committed to reducing the impact of macular disease in Australia.

MDFA is committed to reducing the impact of macular disease in Australia, including age-related macular degeneration, the leading cause of legal blindness in Australia.

24/09/2025

Feeling the warmer weather? UV exposure is rising – and even on cloudy days, UV rays can damage your eyes and increase the risk of macular disease.

Wearing sunglasses that block 100% of UVA and UVB rays is one of the easiest ways to protect your vision.

UV damage is cumulative, so daily protection matters - whether you're gardening, walking, or just enjoying the sunshine.

21/09/2025

From smart devices to cutting-edge tools, technology is helping people with low vision stay independent and connected.

Discover how in our free MDFA webinar: Seeing Possibilities - How Technology is Empowering People with Low Vision Today.

Watch the full webinar: https://youtu.be/3SNuJ42_rLA

18/09/2025

Meet Fay, who’s been navigating life with AMD and found real comfort and confidence thanks to our free Eye Connect support service.

Whether it’s understanding your diagnosis, learning practical tips, or simply having someone to talk to – Eye Connect is here to help.

Free. Friendly. Focused on you. Supporting Australians living with AMD, every step of the way.

If you or someone you love is living with AMD, this service could make all the difference.

Call us today on 1800 111 709 for more information or visit https://www.mdfoundation.com.au/support-me/support-services/eyeconnect/

16/09/2025

Have you heard of Charles Bonnet Syndrome (CBS)? It’s a little-known condition that causes people with vision loss - often due to age-related macular degeneration, to experience vivid, recurrent visions known as phantom images.

These phantom images can be detailed and surreal, but they’re not a sign of mental illness.

People living with CBS can feel confused or frightened, and sadly, some are dismissed when they seek help. That’s why education and talking to your eye health professional can make a real difference.

Read this ABC News article to learn more about the experiences of Australians living with CBS and why better guidelines are urgently needed: https://www.abc.net.au/news/2025-09-06/calls-for-charles-bonnet-syndrome-diagnostic-guidelines/105679368

15/09/2025

Great to see Susan Rau from MDFA’s Consumer Reference Group featured in this Channel 9 (TAG) story on macular disease supplements – and the surprising discovery that there may also be anti-cancer effects. It’s powerful to see our community voices helping raise awareness and drive important conversations around eye health and research.

Watch the full story here: https://www.9news.com.au/national/over-the-counter-supplement-revealed-to-have-anti-cancer-properties/0236cc04-5966-4bf7-abbb-767b68ed013b

13/09/2025

Do you enjoy reading, cooking, or watching your favourite shows? Macular disease can take all these simple pleasures away.

One quick free quiz could save your sight. Just 60 seconds could make all the difference.

Have you checked your macula? Take the quiz at www.CheckMyMacula.com.au.

11/09/2025

Living with vision loss can feel overwhelming – from losing independence to social isolation. That’s why R U OK? Day is such an important reminder.

If you or someone you love is struggling, you don’t have to face it alone. Our Helpline is here to listen, support, and connect you with services that can help.

Call 1800 111 709 to speak with someone who understands.

10/09/2025

How can imaging techniques improve macular disease diagnosis and management?

One of our 2025 MDFA research grant recipients, Dr Danuta Sampson from Eye Institute and The University of Western Australia, is using optical coherence tomography angiography (OCT-A) to accelerate the development of new imaging biomarkers for macular disease.

By standardising the software that analyses OCT-A images, her research will make it faster, easier and more accurate to diagnose, and detect changes in, conditions like age-related macular degeneration (AMD) and diabetic retinopathy.

This breakthrough will help doctors monitor disease progression more effectively and improve the care people living with macular conditions receive.

Learn more about Dr Sampson’s research: https://www.mdfoundation.com.au/news/2025-grant-family-fund-award-recipient-dr-danuta-sampson/

07/09/2025

This Father’s Day, protect the vision that connects generations. “My father had AMD and lost his central vision." - Ita Buttrose AC OBE, Patron of Macular Disease Foundation Australia, and Ita's uncle Gerald, who just turned 102 this year, is still receiving eye injections for wet age-related macular degeneration.

AMD runs in families. If you have a parent or sibling with AMD, you have a 50% risk of getting it, too.

This Father’s Day, take 6-second to check your risk for free and encourage your loved ones to do the same at www.CheckMyMacula.com.au

05/09/2025

It’s the final day of Include a Charity Week – help protect the sight of those you love.

Some forms of macular disease are hereditary.

A gift in your Will, whether large or small, has the power to change the lives of millions of Australians –including the ones you love.

Download our Gifts in Will brochure to learn how a gift in your Will can play a vital role in supporting MDFA’s work – from reducing the impact of macular disease through support services, to investing in sigh-saving research that brings hope to future generations: https://www.mdfoundation.com.au/get-involved/leave-gift-in-will-bequests/leave-gift/

Fight for the sight of the next generation. Leave a gift in your Will today.

04/09/2025

PBS listing of new treatment for geographic atrophy (dry AMD). Have your say. A new treatment for geographic atrophy (dry AMD) – brand name Syfovre®, active ingredient pegcetacoplan - was registered by the Australian Therapeutic Goods Administration (TGA) in January 2025, but it is not currently listed on the Pharmaceutical Benefits Scheme (PBS).

The advisory body that recommends the listing of medicines on the PBS, the Pharmaceutical Benefits Advisory Committee (PBAC), will consider the application for Syfovre® (pegcetacoplan) to be PBS listed at its meeting in November.

The manufacturer-proposed treatment listing is for people with geographic atrophy in both eyes, where one eye has an intact fovea (the centre of the macula) and vision is not yet affected but is threatened by the progression of the condition (the eye that can be treated), and the second eye does have central vision that is already affected by geographic atrophy progression (the eye that can’t be treated).

If you would like to have your say about the PBS listing of this treatment, you can participate in the public consultation. The PBAC welcomes input from patients, carers, health professionals, consumer groups or organisations and members of the public. The PBAC considers these public consultation inputs when making their decision about PBS-listing the treatment, in addition to the clinical and economic evidence presented by the manufacturer of the treatment.

The online survey can be accessed here: https://ohta-consultations.health.gov.au/ohta/pbac-nov-2025/consultation/subpage.2021-08-13.1345934449/

If you would like to send a letter via email sharing your views, the email address is: HTAconsumerengagement@health.gov.au.

The deadline for all submissions is 24 September 2025.

03/09/2025

“Use your Amsler grid regularly. My wet macular degeneration in one eye snuck up on me as my other eye was compensating so well. Luckily it wasn’t too far advanced when found and injections are making headway.” – MDFA community member.

An Amsler grid is a simple tool you can use at home to monitor your central vision. Changes on the grid may be an early sign of macular disease, a leading cause of blindness in Australia.

Here’s how to use it:

1. Wear the glasses or contact lenses you normally use for reading
2. Hold the Amsler grid at normal reading distance in a well-lit room
3. Fully cover one eye then use the uncovered eye to focus on the centre dot
4. Repeat the process with the other eye.

Order a free copy on our website at https://www.mdfoundation.com.au/resources/amsler-grid-pack/

Address

Mezzanine, 383 Kent Street
Sydney, NSW
2000

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+611800111709

Website

https://www.mdfoundation.com.au/

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