11/03/2026
Are you a parent or caregiver living in Australia? Researchers at Macquarie University want to hear from you to help understand how to better support families navigating PANS/PANDAS.
This study is being led by Sam Cuming, a Registered Psychologist and PhD Candidate, alongside Professor Maria Kangas and Professor Naomi Sweller. Their goal is to use your insights to improve professional training, resources, and services.
Who can help? We are looking for primary or joint caregivers (18+) living in Australia who can read/write English comfortably:
PANS/PANDAS Group: Parents of children (aged 4–18) diagnosed or strongly suspected of PANS/PANDAS, with symptoms starting at least a year ago.
Comparison Group: Parents of children (aged 4–18) with no medical, mental health, or neurodevelopmental conditions.
What’s involved?
An anonymous online survey (15–30 minutes).
A chance to win 1 of 5 $50 e-gift vouchers.
Optional follow-up interview.
Ready to participate? Scan the QR code in the image or visit the link below to get started: tinyurl.com/ParentSupportNeeds
This study has been approved by the Macquarie University Human Research Ethics Committee (Ref: 520251806763690).