Frontier at Brain & Mind Centre

13/10/2025

Hi everyone, if you missed our FRONTIER Carer Day, our the presenters videos are now available on our YouTube channel!

A huge thank you to all our speakers for being part of this important event for spreading awareness and sharing your research with our community.

Share your videos with friends, family, and the world

08/10/2025

On 25 September, Speech Pathology Australia hosted a PPA Awareness Day webinar. If you missed it, the full recording is now available on Speech Pathology Australia’s YouTube channel.

The attached is a dedicated resource page that has been created from the webinar.

30/09/2025

Last week we held FRONTIER Carer’s Day as part of World FTD Awareness Week, and it was such a heart-warming success. Thank you to everyone who came along, shared their stories, and connected with others who truly understand.

It is so much more than raising awareness, it’s about reminding every person and family touched bvFTD that they are not alone. Whether you are a carer, family member, or living with FTD yourself, there is a community here to support you, walk beside you, and give strength on the tougher days.

Together, we shine a light on FTD, share hope, and build connection.

09/09/2025

Good news! The FTDToolkit is now open to international participants. Australians supporting someone living with FTD can now sign up and access this valuable resource. Visit their page for details on how to register.

https://www.facebook.com/ftdtoolkit

Are you caring for a family member or in-law with frontotemporal dementia? We're conducting a study to better understand your experiences — and we'd love to hear from you. Get involved and help shape future support.

04/09/2025

For Dementia Awareness Month, we’ve given the FRONTIER FTD website a fresh new look!

It’s now easier to access information and explore the research we’ve built over the years.

A big thank you to our participants, without your support, our work would not be possible.

We would also like to extend our thanks to those who have given their support creating and refining the updated website.

Check out the updated site here: frontierftd.org

27/08/2025

Professor Olivier Piguet speaks on ABC News article on how Frontotemporal dementia patients are missing out on timely diagnosis and treatment.

Read more here: https://www.abc.net.au/news/health/2025-08-28/diagnostic-criteria-for-younger-onset-dementia-needs-overhaul/105702886

The Association for Frontotemporal Degeneration

26/08/2025

Are you living with or supporting someone with Primary Progressive Aphasia (PPA)?

Join leading neuroscientists and speech pathologists for a FREE webinar exploring the latest research on PPA and how speech pathology can make a difference.

Date: Thursday 25 September 2025
Time: 12PM – 1:30PM AEST
Online Webinar (will be recorded)

Speakers include:
Dr Cathleen Taylor-Rubin, Prof Olivier Piguet, A/Prof Jade Cartwright and Prof Kirrie Ballard.

Register now by scanning the QR code in the flyer below or click here at https://www.speechpathologyaustralia.org.au/EventDetail?EventKey=25PEV2

30/07/2025

It's almost time for the FRONTIER 2025 Carer Information Day!

This year join us on Wednesday 24th September from 9AM - 2:45PM (AEST) to hear updates on some of the latest findings from FRONTIER’s research in FTD and Dementia Support Australia.

Whether you're a carer, family member, or healthcare professional, this is a fantastic opportunity to learn, connect, and ask questions.

Registration details on the flyer below or click this link to sign up: bit.ly/CarerInfo2025

01/07/2025

We’re helping to spread the word about an important research project being conducted by Patrick Golemo, a third-year medical student at The University of Sydney, in collaboration with AgHealth Australia.

The project is titled:
“Dementia and Cognitive Impairment in the Farming Community: A Preliminary Investigation of Carers' Perceptions of Risks and Barriers to Care.”

Under the supervision of Dr Carlos Mesa Castrillon, this study aims to better understand the unique challenges carers face when supporting someone with dementia in rural and farming settings.

Patrick is currently seeking participants who are carers of people with dementia living on farms or in rural areas, and would be willing to take part in a confidential interview to share their insights.

If you or someone you know fits this description and is open to contributing to this meaningful research, please get in touch with Dr Carlos via email [Carlos.mesacastrillon@sydney.edu.au].

19/06/2025

We are seeking volunteers to help evaluate a new web-based education program aimed at helping people respond in positive and helpful ways to changed behaviours in their family member or friend with dementia. The program includes modules aimed at helping you approach various changed behaviours: apathy, acting without thinking, social difficulties, anger or agitation, hallucinations and delusions, anxiety or shadowing and communication difficulties. It also includes modules on understanding dementia, and the importance of self-care.

If this program sounds like it might be useful for you, please visit this link to find out more: https://bit.ly/CarersWayAhead
or alternatively, please contact James at: james.carrick@sydney.edu.au

05/06/2025

Hi everyone, here's your friendly reminder to keep your calendar clear for FRONTIER's Carer Information Day on September 24th 2025.

This will be held both in person and via online for those who cannot attend in person.

The registration link has yet to be created so look out for future posts!

FRONTIER CARER INFORMATION DAY - SAVE THE DATE!

On Wednesday 24th September 2025, we will be holding the FRONTIER Carer Information Day. Join us to hear updates of the latest findings from FRONTIER's research in FTD and some key services in the space of carer wellbeing and dementia care.

Registration details and tickets will be out closer to the date!

23/05/2025

Cure MAPT FTD is a global patient advocacy organization focused on finding a cure for frontotemporal dementia (FTD) caused by a mutations in the MAPT gene.

With members in Canada, England, France, New Zealand, Australia, South America, Isreal and the U.S., Cure MAPT FTD unites families, researchers, and advocates worldwide to push for a disease modifying solution.

Cure MAPT FTD is currently seeking MAPT-mutation carriers around the world in an effort to count, record, and galvanize these positive carriers so that we can advocate for trials that would result in a cure. By demonstrating this disease is severely undercounted, Cure MAPT FTD hopes to convince researchers, pharmaceutical executives, and governmental bodies to fast track these potentially life-saving trials.

For more information go to www.curemaptftd.org. And please join their efforts by reaching out to at hello@curemaptftd.org.

Cure MAPT FTD raises awareness of the MAPT genetic mutation causing FTD, assists a global network of MAPT families, and advocates for trials that will lead to a cure.