Frontier at Brain & Mind Centre

04/09/2025

For Dementia Awareness Month, we’ve given the FRONTIER FTD website a fresh new look!

It’s now easier to access information and explore the research we’ve built over the years.

A big thank you to our participants, without your support, our work would not be possible.

We would also like to extend our thanks to those who have given their support creating and refining the updated website.

Check out the updated site here: frontierftd.org

27/08/2025

Professor Olivier Piguet speaks on ABC News article on how Frontotemporal dementia patients are missing out on timely diagnosis and treatment.

Read more here: https://www.abc.net.au/news/health/2025-08-28/diagnostic-criteria-for-younger-onset-dementia-needs-overhaul/105702886

The Association for Frontotemporal Degeneration

26/08/2025

Are you living with or supporting someone with Primary Progressive Aphasia (PPA)?

Join leading neuroscientists and speech pathologists for a FREE webinar exploring the latest research on PPA and how speech pathology can make a difference.

Date: Thursday 25 September 2025
Time: 12PM – 1:30PM AEST
Online Webinar (will be recorded)

Speakers include:
Dr Cathleen Taylor-Rubin, Prof Olivier Piguet, A/Prof Jade Cartwright and Prof Kirrie Ballard.

Register now by scanning the QR code in the flyer below or click here at https://www.speechpathologyaustralia.org.au/EventDetail?EventKey=25PEV2

30/07/2025

It's almost time for the FRONTIER 2025 Carer Information Day!

This year join us on Wednesday 24th September from 9AM - 2:45PM (AEST) to hear updates on some of the latest findings from FRONTIER’s research in FTD and Dementia Support Australia.

Whether you're a carer, family member, or healthcare professional, this is a fantastic opportunity to learn, connect, and ask questions.

Registration details on the flyer below or click this link to sign up: bit.ly/CarerInfo2025

01/07/2025

We’re helping to spread the word about an important research project being conducted by Patrick Golemo, a third-year medical student at The University of Sydney, in collaboration with AgHealth Australia.

The project is titled:
“Dementia and Cognitive Impairment in the Farming Community: A Preliminary Investigation of Carers' Perceptions of Risks and Barriers to Care.”

Under the supervision of Dr Carlos Mesa Castrillon, this study aims to better understand the unique challenges carers face when supporting someone with dementia in rural and farming settings.

Patrick is currently seeking participants who are carers of people with dementia living on farms or in rural areas, and would be willing to take part in a confidential interview to share their insights.

If you or someone you know fits this description and is open to contributing to this meaningful research, please get in touch with Dr Carlos via email [Carlos.mesacastrillon@sydney.edu.au].

19/06/2025

We are seeking volunteers to help evaluate a new web-based education program aimed at helping people respond in positive and helpful ways to changed behaviours in their family member or friend with dementia. The program includes modules aimed at helping you approach various changed behaviours: apathy, acting without thinking, social difficulties, anger or agitation, hallucinations and delusions, anxiety or shadowing and communication difficulties. It also includes modules on understanding dementia, and the importance of self-care.

If this program sounds like it might be useful for you, please visit this link to find out more: https://bit.ly/CarersWayAhead
or alternatively, please contact James at: james.carrick@sydney.edu.au

05/06/2025

Hi everyone, here's your friendly reminder to keep your calendar clear for FRONTIER's Carer Information Day on September 24th 2025.

This will be held both in person and via online for those who cannot attend in person.

The registration link has yet to be created so look out for future posts!

FRONTIER CARER INFORMATION DAY - SAVE THE DATE!

On Wednesday 24th September 2025, we will be holding the FRONTIER Carer Information Day. Join us to hear updates of the latest findings from FRONTIER's research in FTD and some key services in the space of carer wellbeing and dementia care.

Registration details and tickets will be out closer to the date!

23/05/2025

Cure MAPT FTD is a global patient advocacy organization focused on finding a cure for frontotemporal dementia (FTD) caused by a mutations in the MAPT gene.

With members in Canada, England, France, New Zealand, Australia, South America, Isreal and the U.S., Cure MAPT FTD unites families, researchers, and advocates worldwide to push for a disease modifying solution.

Cure MAPT FTD is currently seeking MAPT-mutation carriers around the world in an effort to count, record, and galvanize these positive carriers so that we can advocate for trials that would result in a cure. By demonstrating this disease is severely undercounted, Cure MAPT FTD hopes to convince researchers, pharmaceutical executives, and governmental bodies to fast track these potentially life-saving trials.

For more information go to www.curemaptftd.org. And please join their efforts by reaching out to at hello@curemaptftd.org.

Cure MAPT FTD raises awareness of the MAPT genetic mutation causing FTD, assists a global network of MAPT families, and advocates for trials that will lead to a cure.

28/04/2025

Want to feel more confident about the future? Join Dementia Australia's free workshops all about decision-making, care planning, and more.

Check out the dates and details below!

Dates and Locations:

14th April 2025 | 10am – 11:30am | Mosman Seniors Centre

1st May 2025 | 10:30am – 12pm | Dementia Australia, North Ryde

29th May 2025 | 10am – 11:30am | Crows Nest Community Centre

10th June 2025 | 10:30am – 12pm | Dementia Australia, North Ryde

11/04/2025

In recognition of International Primary Progressive Aphasia Awareness Day, Speech Pathology Australia has partnered with our very own Dr Penelope Monroe and Scott Cooper to release a special podcast episode exploring Primary Progressive Aphasia and the vital role of speech pathology.

Have a listen here:

https://soundcloud.com/speechpathologyaustralia/primary-progressive-aphasia-and-speech-pathology-s7e09?utm_source=clipboard&utm_medium=text&utm_campaign=social_sharing

Let’s keep the conversation going and help raise awareness!

04/04/2025

We are pleased to promote the Museum of Contemporary Art's Artful: Art and Dementia Community Day on Wednesday, 9th April 2025.

Event Details
When:
Wednesday, 9th April 2025
Time: 11am–1pm (Drop-in)

Location:
Level 3, National Centre of Creative Learning
Museum of Contemporary Art, Australia
140 George St, The Rocks

About Artful Community Day
Held at the end of each seasonal program, Artful Community Days invite friends, family, and anyone interested in art therapy to celebrate current participants and raise awareness about dementia within the wider community.
Learn more about the MCA Australia's Art and Dementia programs.

Hear from special guests about living with dementia.
View an exhibit of artworks created by participants.
Enjoy refreshments and artmaking activities.
All are welcome! For more information, please visit: https://www.mca.com.au/events-programs/calendar/artful-community-day/

Our Connection with Artful
A few years ago, we connected with the Artful program to learn the benefits of art therapy firsthand. It was a wonderful experience. You can learn more about it through this video: https://www.youtube.com/watch?v=3Fk4k1vojRw

In this enlightening video, Michelle, the Artful producer, shares the profound impact of the Art and Dementia program at the Museum of Contemporary Art Austr...

06/03/2025

FRONTIER CARER INFORMATION DAY - SAVE THE DATE!

On Wednesday 24th September 2025, we will be holding the FRONTIER Carer Information Day. Join us to hear updates of the latest findings from FRONTIER's research in FTD and some key services in the space of carer wellbeing and dementia care.

Registration details and tickets will be out closer to the date!