13/03/2026
💚 Supporting one of our brave little clients, Edie! 💚
One of the families in our community is facing a journey no parent ever expects.
Their beautiful daughter is living with an ultra-rare genetic condition caused by a mutation in the CRELD1 gene. This condition can cause severe neurological issues and relentless seizures and right now there are no established treatments. This isn't because treatment isn't possible, it's because research hasn't been funded yet.
Edie’s mum Demi has started a fundraiser to help change that.
Families around the world affected by this condition are coming together to raise funds for critical research that could help scientists better understand CRELD1 and work towards treatments that could improve the lives of these children.
We are putting the call out to our community to help make a difference!
Every share, donation, and every bit of support helps move this research one step closer to giving children like Edie a brighter future.
If you are able, please consider donating or sharing the fundraiser below. Even the smallest contribution helps.
🔗 Donate or learn more in the link below!
- AHTS 💚
Across countries and continents, families affected by the CRELD1 gene mutation are c… Demi Mulry needs your support for Help Our CRELD1 Warriors Find a Future