Pallister-Hall Syndrome /PHS/ Support Hub

Pallister-Hall Syndrome [PHS] is an extremely rare genetic disorder that may be apparent at birth; it is a multiple congenital anomaly syndrome, not a disease and it affects all races of people. Proudly Sponsored by MedicReady (R), the Pallister-Hall Syndrome Support Hub has been established to encourage, raise and advance the public awareness of Pallister-Hall Syndrome [PHS] throughout the world by: informing and educating the public, PHS seizure patients, their families, carers, attending specialists, medical practitioners, allied health professionals and other interested persons about this extremely rare multiple anomaly congenital syndrome, its causes, diagnostic features, clinical characteristics and treatment options. Quite contrary to much earlier medical literature, Pallister-Hall Syndrome [PHS] is no longer considered an early lethality disorder; in fact, patients - given the correct medical intervention as required - will more than likely live a long and fruitful life and would more than likely die from something other than the disorder itself! Disclaimer:

The content of this page has been compiled as a public service for the benefit of patients, their families, carers, treating specialists, medical practitioners, and other interested persons in the hope that Pallister-Hall Syndrome (PHS), its peculiarities, effects and diagnostic features can be more widely recognized, known about and better understood; the primary objective being to alleviate the fears, the stress, the frustration and the hopelessness that is often experienced by those desperately searching for information in their pursuit of knowledge and a diagnosis. That information contained herein has been researched, compiled and is based on independent information, materials and resources supplied by third parties; it is provided for awareness, educational, reference and research purposes only and is provided in good faith. In the compilation of the content for this page, the author/compiler has relied on the accuracy of that information, materials and resources available and deemed current at the time of writing. As technological, scientific, medical, diagnostic and treatment techniques and methods are changing and advancing at a rapid pace, that information contained in this page can be updated, or considered out-of-date at any time. Whilst every effort has been made to ensure and supply reliable, accurate and up-to-date information, facts and references to other materials and resources about Pallister-Hall Syndrome (PHS), it should be noted and understood that what is contained here should in no way be seen, taken, or used as a substitute for individual and/or specific advice relevant to the diagnosis, management of clinical symptoms, or treatments associated with Pallister-Hall Syndrome (PHS). As there can be discrepancies between some of that information, materials and resources contained and referred to in this page, and that elsewhere online, the author/compiler gives no guarantee as to the accuracy and conclusiveness of the said content, and accepts no responsibility whatsoever for any resultant errors contained here, or for any impairment, disability, death or loss, howsoever caused, that may be suffered by any individual, corporation, institution, or other body from any reliance on that information, materials and resources contained herein. Copyright:

ALL RIGHTS RESERVED © George William Helon: Australia; 2001-2021

That information that is contained here may be used for reference and research purposes only. Attending specialists, medical practitioners and/or allied health professionals, if you are going to quote my work, at least have the professional decency to acknowledge your source.