24/07/2025
🧠💔 Chronic pain doesn’t treat everyone the same — and that’s a problem we need to fix.
At Grow Kids Collective, we work closely with children and families impacted by lifelong conditions like Hypermobility Spectrum Disorder (HSD), Ehlers-Danlos syndrome (EDS) and other Heritable Connective Tissue Disorders (HCTDs). Too often, we see the emotional and physical toll of being dismissed, misdiagnosed, or left waiting years for answers.
✨ What’s heartbreaking is how often I see mothers—coming in for help with their child’s hypermobility—quietly struggling with their own pain. Many have lived with symptoms for years, unheard and unsupported. Sometimes, I’m the first health professional to truly listen, validate their experience, and gently guide them toward starting their own diagnostic journey with trusted, well-informed therapists.
According to the 2025 National Pain Report by :
🔴 Women, non-binary and LGBTIQA+ people are more likely to:
– Wait years for a diagnosis
– Be dismissed or judged by healthcare providers
– Struggle with stigma and mental health challenges
🔴 People with HCTDs like EDS face even greater barriers to care, often mislabelled or excluded from treatment pathways altogether.
💡 Everyone in pain deserves to be:
✅ Believed
✅ Respected
✅ Heard
✅ Supported with timely, evidence-based care
This National Pain Week, let’s raise our voices and shine a light on the inequities in pain care—especially for the women, mothers, and carers who carry so much for others while waiting to be seen themselves.
📖 Read the full National Pain Report here:
https://chronicpainaustralia.org.au/wp-content/uploads/2025/07/2025_07_21_NPW2025_National-Pain-Report_digital.pdf