08/03/2026
Happy Endometriosis Awareness Month đ¸
Hereâs me 2016 - Surgery no. 5⌠for Endometriosis⌠Grade 4⌠it wasnt my last either.
Luckily today I live well and mostly pain free. But that wasnt always the caseâŚ
Every year this month I am reminded of how many women quietly carry pain in their bodies for years before anyone truly listens.
Endometriosis affects around 1 in 10 women of reproductive age worldwide and the average time to diagnosis is 7â10 years (Zondervan, Becker, & Missmer, 2020).
Many women spend that decade being told their pain is normal, hormonal, stress-related, or simply something they must live with.
But what we are learning more and more is that endometriosis rarely exists in isolation. It often sits within a much wider landscape of nervous system, immune, and hormonal patterns.
Iâm endlessly curious about everything related to endometriosis.
Truly. I will happily fall down any research rabbit hole about it.
From the genuinely promising developments â like the non-surgical blood tests researchers are currently trying to develop â to some of the⌠shall we say⌠more creative directions the research world has occasionally taken.
For decades the only definitive way to diagnose endometriosis has been laparoscopic surgery with histological confirmation (Zondervan, Becker, & Missmer, 2020).
Yes. Surgery. As the diagnostic tool.
Which means many women have had to live for years â often 7â10 years on average â with significant pain before anyone can actually confirm what is happening in their body.
Because of this, scientists have been trying to develop less invasive ways to diagnose it. One of the most exciting developments being explored is a blood-based diagnostic test looking at microRNA and inflammatory biomarkers, with early studies showing encouraging accuracy (Bendifallah et al., 2022).
Imagine that. A blood test.
(Which many women with endometriosis have been politely suggesting might be useful for⌠oh⌠several decades.)
Researchers are also beginning to explore whether medications used for metabolic conditions might influence endometriosis. Drugs in the GLP-1 receptor agonist family â the group that includes semaglutide, widely known as Ozempic â are being investigated for their anti-inflammatory and metabolic effects, which could potentially influence inflammatory diseases such as endometriosis.
The research is early, but it reflects something many clinicians are beginning to recognise: endometriosis is not simply a reproductive condition. Itâs a complex inflammatory disease affecting immune, hormonal, and nervous system pathways throughout the body.
And then⌠occasionally⌠when reading the research literature⌠you stumble upon studies that make you pause mid-sentence.
For example, some papers have examined whether women with endometriosis might display differences in physical attractiveness or secondary sexual characteristics based on theories about estrogen exposure (Vercellini et al., 2014).
Yes.
Attractiveness.
As inâŚ
âAre women with endometriosis⌠prettier?â
Erm⌠what????
Meanwhile millions of women are curled up on bathroom floors with pain severe enough to cause fainting â but yes, by all means, letâs investigate their facial symmetry.
Other studies have examined the psychological impact of endometriosis on male partners and relationship satisfaction (Facchin et al., 2016).
Which, of course, relationships matter and chronic illness affects everyone involved.
But one cannot help reading these papers and thinking:
Women: âHello yes I am in severe pain and cannot function three weeks out of four.â
Research community:
âBut how is this affecting the boyfriend?â
Ah yes. The subtle fragrance of patriarchy in the academic air.
To be fair, relationship research absolutely has value. Chronic illness touches families and partnerships.
But historically, women with endometriosis have long felt that research attention has not always been directed at the most urgent questions:
How do we diagnose this sooner?
How do we treat it effectively?
And how do we stop women being dismissed for years while the disease progresses?
The good news is that things are slowly beginning to shift.
More researchers are now recognising endometriosis for what it actually is:
A complex, systemic inflammatory condition involving immune dysfunction, hormonal signalling, nervous system sensitisation, and whole-body effects.
And that shift â even if slow â really matters.
Because when the science finally begins to listen to what womenâs bodies have been saying for decadesâŚ
Everything starts to change.
Though perhaps more purposeful ⌠we are beginning to see meaningful overlaps between endometriosis and other conditions.
Women with endometriosis show higher rates of neurodevelopmental conditions such as ADHD. One large population study found that individuals with endometriosis had significantly increased odds of ADHD and other co-occurring neurodivergences (Chen et al., 2022).
There is also growing recognition of overlap with conditions such as POTS, hypermobile Ehlers-Danlos syndrome (hEDS), and Mast Cell Activation Syndrome (MCAS).
These conditions all involve dysregulation of connective tissue, immune signalling, or the autonomic nervous system. Researchers have noted that mast cells â immune cells involved in allergic and inflammatory responses â are present in high numbers in endometriosis lesions and may contribute to pain and disease progression (Theoharides et al., 2018).
Trauma research adds another important layer. Large epidemiological studies have found that women with endometriosis report higher rates of traumatic and stressful life events compared with those without the condition (LaganĂ et al., 2017). This does not mean trauma causes endometriosis â but it does highlight the intimate relationship between the nervous system, inflammation, hormones, and the bodyâs stress response.
As Bessel van der Kolk (2014) wrote:
âThe body keeps the score. If the memory of trauma is encoded in the viscera, in heartbreaking and gut-wrenching sensations, in autoimmune disorders and skeletal/muscular problems, then treatment needs to address the body as well as the mind.â
For many women living with endometriosis, the experience is not simply gynecological. It can be neurological, immune, hormonal, emotional, and deeply embodied.
This is one of the reasons my work as a psychotherapist increasingly sits at the intersection of body and mind.
Psychotherapy is often imagined as something that happens only through talking. Yet many modern therapeutic approaches recognise that healing also happens through the body â through regulation of the nervous system, through restoring a sense of safety, through working with the rhythms of breath, sensation, and emotion.
As trauma researcher Peter Levine (2010) writes:
âTrauma is not just an event that took place sometime in the past; it is also the imprint left by that experience on mind, brain, and body.â
When we understand this, psychotherapy becomes something different. It becomes a way of supporting the bodyâs capacity to regulate, integrate, and heal â alongside the medical care people receive for physical conditions.
During Endometriosis Awareness Month, my hope is simple.
That fewer women are dismissed.
That fewer women are told their pain is normal.
And that the conversation continues to expand beyond organs and diagnoses to include the whole person â body, nervous system, and story.
If you are someone living with endometriosis or other complex overlapping conditions, please know that your experience matters and deserves to be taken seriously.
We are still learning. Medicine is still learning. And many of us in therapeutic work are listening closely to what the body has been trying to say for a very long time.
Happy Endometriosis Awareness Month.
If you need a therapist who understands.
You know where I am
Lyns đ