01/08/2025
Trek for Amarli 2025
Our beautiful Amarli and her family is hosting another trek this year on Sunday the 24th August!
This year they are joining forces with the incredible team from the Illawarra Convoy.
The trek's mission is to support Illawarra families in need, to raise awareness for the CureGRIN foundation and to honour their dream of seeing Amarli's name as the lead truck in the 2025 Illawarra Convoy.
Amarli was diagnosed with a rare genetic disorder at just 8 months of age, called GRIK 2 (1 of only 3 recorded cases in the world). This rare condition has profoundly affected Amarli's quality of life, health, and development. She regularly has seizures and common colds and viruses often lead to prolonged hospital stays, her fine motor and gross motor skills are affected, her inability to walk, speak and eat along with severe breathing difficulties mean that she requires 24/7 care.
This does not affect her ability however to melt the heart of everyone she meets!! 💖💖
This year Amarli's army will be trekking the 30km south Coast trek from Stanwell park down to Wollongong Harbour!
To support this incredible cause and register your support, please see the link below👇
https://www.eventbookings.com/b/event/trek-for-amarli-2025
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