15/03/2026
Something big is happening for the hypermobility community.
For the first time since 2017, the diagnostic criteria for Ehlers Danlos syndromes and hypermobility spectrum disorders are being updated.
The new global criteria will be published December 1, 2026.
That might sound like something that only matters to doctors or researchers, but it actually matters a lot for people like us.
Because many people in this community are not just dealing with one condition.
A lot of us are dealing with what people often call the trifecta
POTS
MCAS
and hypermobile EDS.
These conditions show up together in the same people all the time in this community.
Your connective tissue affects your blood vessels.
Your blood vessels affect your autonomic nervous system.
And your immune system interacts with all of it.
Which is why so many people with hypermobility also end up dealing with things like
POTS
mast cell issues
dizziness
tachycardia
GI problems
joint instability
chronic fatigue
For a long time, a lot of patients have been told these things were unrelated or just random symptoms.
But patients and researchers have been noticing these patterns for years.
Updates like this matter because diagnostic criteria shape how doctors recognize these conditions.
And when doctors recognize them sooner, people get answers sooner.
People get taken seriously sooner.
And hopefully fewer people spend years being dismissed while trying to figure out what is happening in their body.
This new framework will replace the current criteria from 2017 and is based on years of international research, collaboration, and patient experience.
So this could be a really important step forward for the hypermobility and dysautonomia community.
I will definitely be keeping an eye on this as more information comes out.
This is really exciting for our community that has been navigating all of this for so long 🩵